Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Sue and , My official dx is MCTD with suspect Lupus. I know what you are going through too. To me, it seems like limbo - always waiting for the next show to drop. I would love to hear from you both how you handle it. It seems some doctors don't take it too seriously because it's not full blown Lupus yet. However, other than major organ involvement, I have all the symptoms of Lupus PLUS sjogrens, raynauds,scleroderma, etc. I think it will be great for us (and others with MCTD) to share our experiences as they are slightly different than regular Lupies. I look forward to hearing from you. Jerri Quote Link to comment Share on other sites More sharing options...
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