Re: I'm Official! My 2 cents - lana

[Guest guest]

,

Also look on the NDRF board (NATIONAL DYSAUTONOMIA Research Foundation) and

there are lots of folks who have POTS and EDS.

Also, Dr. Goldstein at NIH and I think it is maybe Dr. Low at Hopkins (?)

both have done research about EDS and POTS.... or at least found the connection

between them to exist and Dr.. G has shown that the stretchiness of the

vessals, arteries , etc,, contribute to blood pooling etc...

Thanks for the info Lana

>

>

>

>

>

> >>I'm personally starting to investigate POTS and mitral valve

> >prolapse

> >>syndrome since I believe they relate to me and some members of my

> >>family. I have some theories - but still need to do some

> >>investigation. I haven't found any info on POTS relating to EDS

> >yet,

> >>except on this board

> >

> >, someone has investigated this...take a look at this

> article:

> >http://potsplace.com/what_causes_pots.htm

> >

> >Love Lana

[Guest guest]

,

Also look on the NDRF board (NATIONAL DYSAUTONOMIA Research Foundation) and

there are lots of folks who have POTS and EDS.

Also, Dr. Goldstein at NIH and I think it is maybe Dr. Low at Hopkins (?)

both have done research about EDS and POTS.... or at least found the connection

between them to exist and Dr.. G has shown that the stretchiness of the

vessals, arteries , etc,, contribute to blood pooling etc...

Thanks for the info Lana

>

>

>

>

>

> >>I'm personally starting to investigate POTS and mitral valve

> >prolapse

> >>syndrome since I believe they relate to me and some members of my

> >>family. I have some theories - but still need to do some

> >>investigation. I haven't found any info on POTS relating to EDS

> >yet,

> >>except on this board

> >

> >, someone has investigated this...take a look at this

> article:

> >http://potsplace.com/what_causes_pots.htm

> >

> >Love Lana

[Guest guest]

Thanks for the info Lana

> > I'm personally starting to investigate POTS and mitral valve

> prolapse

> > syndrome since I believe they relate to me and some members of my

> > family. I have some theories - but still need to do some

> > investigation. I haven't found any info on POTS relating to EDS

> yet,

> > except on this board

>

> , someone has investigated this...take a look at this

article:

> http://potsplace.com/what_causes_pots.htm

>

> Love Lana

[Guest guest]

You're very welcome. Dr. Grubb seems to be a very different type of doctor,

from things I've read that he's written. I would love to meet him in person

sometime.

Love Lana 0 :-)

Re: I'm Official! My 2 cents - lana

Thanks for the info Lana

> > I'm personally starting to investigate POTS and mitral valve

> prolapse

> > syndrome since I believe they relate to me and some members of my

> > family. I have some theories - but still need to do some

> > investigation. I haven't found any info on POTS relating to EDS

> yet,

> > except on this board

>

> , someone has investigated this...take a look at this

article:

> http://potsplace.com/what_causes_pots.htm

>

> Love Lana

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

_____

[Guest guest]

You're very welcome. Dr. Grubb seems to be a very different type of doctor,

from things I've read that he's written. I would love to meet him in person

sometime.

Love Lana 0 :-)

Re: I'm Official! My 2 cents - lana

Thanks for the info Lana

> > I'm personally starting to investigate POTS and mitral valve

> prolapse

> > syndrome since I believe they relate to me and some members of my

> > family. I have some theories - but still need to do some

> > investigation. I haven't found any info on POTS relating to EDS

> yet,

> > except on this board

>

> , someone has investigated this...take a look at this

article:

> http://potsplace.com/what_causes_pots.htm

>

> Love Lana

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

_____

[Guest guest]

You're very welcome. Dr. Grubb seems to be a very different type of doctor,

from things I've read that he's written. I would love to meet him in person

sometime.

Love Lana 0 :-)

Re: I'm Official! My 2 cents - lana

Thanks for the info Lana

> > I'm personally starting to investigate POTS and mitral valve

> prolapse

> > syndrome since I believe they relate to me and some members of my

> > family. I have some theories - but still need to do some

> > investigation. I haven't found any info on POTS relating to EDS

> yet,

> > except on this board

>

> , someone has investigated this...take a look at this

article:

> http://potsplace.com/what_causes_pots.htm

>

> Love Lana

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

_____