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These diseases SUCK!

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Get ready for a rant and whine session!!!

I just spent another 3 hours at the doctor and am no farther along in

grappling with this than before I went in. My ANA, CR-P and SED rate

are normal and there is nothing in the bloodwork that indicates

inflammation, yet my knees, hips, ankles and hands are mega-duty

swollen and I have rheumatoid nodules on my elbows! A few weeks ago,

the CR-P was very high; now it's totally normal.

The bloodwork did show a positive RF again, hypothyroidism, very high

SS-DNA, and borderline DS-DNA.

So, what the heck?! My doctor was shaking her head! My bloodwork

doesn't correlate with my history, symptoms and -- the most obvious --

the physical exam. She's keeping me on the Plaquenil, methotrexate

and Celebrex since they are helping with some things. I've had

cortisone injections in my hip which did no good, and today I had

cortisone injections in my ankles. Absolutely nothing is taking down

the ankle swelling and it hurts a lot.

My biggest fear is that since my test results are all over the place

and we're not yet pinpointing everything that's going on, I'm not

taking the correct meds and, basically, wasting my time. Any advice?

Suggestions?

-Anne

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