Re: symptoms of viral infection ????/NELL!

[Guest guest]

Nell: OK, I have to ask, because I really think that I have found

out what is going on here (kind of exciting when you finally

understand something).

I just met with Betsy Prohaska, a dietician in Dr. Hicks office

yesterday. By the way, she was wonderful and I would recommend her

to anyone. Very caring and knowledgable. But, one of the things

she said was that we may not see the " tremendous " results from teh

GFCF diet, because when I relayed what my son ate, she suggested

more of a Feingold type diet. She did suggest start with GFCF

first, but cautioned us that it may be gradual or slow improvements.

Now, keep in mind that I am thinking that my son may have a viral

issue, based on some symptoms that I hear on this board as well as

that he may not be a candidate for the " tremendous " GFCF results.

So, what I wanted to know is...did you start GFCF and then go to

enzymes? Did you see any help from GFCF diet? What other foods

were your son's problems? AND, can you explain what the striking

repsonse was with your viral treatment and what viral treatment you

used (olive leaf extract, acyclovir)????

Thanks! PS: We just started the GFCF this week. But, I continue

to believe that the viral connection is what is the main cause

disrupting my son's immune system, develop. delay, sensory issues,

etc. (no tests to back this up, just mom's gut)...would you give

an anti-viral if you were just starting out on the diet?

THANKS A TON!!!!!!! Kim

> --- In , " danasview " >

> This is exactly the same for my son. Enzymes gave great

improvement;

> even though casein/gluten were not really problems, other foods

> were. And the response to viral treatment has been striking.

>

> Nell

[Guest guest]

>

> Nell: OK, I have to ask, because I really think that I have found

> out what is going on here (kind of exciting when you finally

> understand something).

I know what you mean!

one of the things

> she said was that we may not see the " tremendous " results from teh

> GFCF diet, because when I relayed what my son ate, she suggested

> more of a Feingold type diet.

The very first thing I did with my son was Feingold. It lessened the

intensity of his problems but did not get rid of any of them. So, a

necessary part of his treatment but not the whole answer by any

means. It does help the whole family feel better though!

> So, what I wanted to know is...did you start GFCF and then go to

> enzymes?

Nope, I went straight from Feingold to Houston enzymes. They

were/are brilliant! A rush of empathy (never seen before),

cheerfulness, focus, *happiness.

> Did you see any help from GFCF diet? What other foods

> were your son's problems?

WHen the enzyme benefits started to come and go (largely because of

yeast/bacteria, but also I suppose because of viral), I tried SCD.

So he was GFCF for a while. Small improvements at first, but the

yeast actually got worse. Added in goat yogurt which was helpful,

but he was becoming intolerant to more and more foods. The worst

ones were any artificials, including corn syrup, some phenols

(apples, grapes, cherries), and corn.

I started chelating him at that point and by round 15 he had lost

his phenol sensitivity (to actual food, not artificials).

AND, can you explain what the striking

> repsonse was with your viral treatment and what viral treatment

you

> used (olive leaf extract, acyclovir)????

I'm not trying to be coy but I want to wait until writes up

the results of the study before I describe what happened in any

detail. Plus I'm still trying to work out what's what, I'm not

totally on top of it yet. The main improvements for n are much

better focus, calmness, intellectual curiosity, and a big jump in

emotional maturity, like he's suddenly 3 years older.

Nell

[Guest guest]

Nell, thanks for the reply. Very interesting that there can be so

many different causes or remedies that our kids respond to. About

the houston enzymes, did you use all of them (peptizide, no-fenol, I

can't remember them all)...or just some. Also, did you see any of

the typical reactions to the enzymes, like the irritability, etc?

And, did you have a doctor to help you with this decision, or did

you come up with this all on your own?

I am So confused....everyone is telling me that the diet is such a

huge help. Then, I hear that it doesn't work for everyone, and it

appears that my son's reactions to food fits that category...but

then I don't know if I should treat yeast, viral issues, food

issues, etc. Which one first, I guess.

Thanks and would you PLEASE keep me posted about the results that

will be published soon, so that I don't miss it? I would love to

know.

One last question...how did you know to treat for viral? Was there

a test you did? And, in the meantime, would you suggest treating

for viral first or using enzymes first?

Thanks again, You have been a huge help. Kim

> >

> > Nell: OK, I have to ask, because I really think that I have

found

> > out what is going on here (kind of exciting when you finally

> > understand something).

>

> I know what you mean!

>

> one of the things

> > she said was that we may not see the " tremendous " results from

teh

> > GFCF diet, because when I relayed what my son ate, she suggested

> > more of a Feingold type diet.

>

> The very first thing I did with my son was Feingold. It lessened

the

> intensity of his problems but did not get rid of any of them. So,

a

> necessary part of his treatment but not the whole answer by any

> means. It does help the whole family feel better though!

>

>

> > So, what I wanted to know is...did you start GFCF and then go to

> > enzymes?

>

> Nope, I went straight from Feingold to Houston enzymes. They

> were/are brilliant! A rush of empathy (never seen before),

> cheerfulness, focus, *happiness.

>

>

>

> > Did you see any help from GFCF diet? What other foods

> > were your son's problems?

>

> WHen the enzyme benefits started to come and go (largely because

of

> yeast/bacteria, but also I suppose because of viral), I tried SCD.

> So he was GFCF for a while. Small improvements at first, but the

> yeast actually got worse. Added in goat yogurt which was helpful,

> but he was becoming intolerant to more and more foods. The worst

> ones were any artificials, including corn syrup, some phenols

> (apples, grapes, cherries), and corn.

>

> I started chelating him at that point and by round 15 he had lost

> his phenol sensitivity (to actual food, not artificials).

>

>

> AND, can you explain what the striking

> > repsonse was with your viral treatment and what viral treatment

> you

> > used (olive leaf extract, acyclovir)????

>

>

> I'm not trying to be coy but I want to wait until writes up

> the results of the study before I describe what happened in any

> detail. Plus I'm still trying to work out what's what, I'm not

> totally on top of it yet. The main improvements for n are

much

> better focus, calmness, intellectual curiosity, and a big jump in

> emotional maturity, like he's suddenly 3 years older.

>

> Nell

[Guest guest]

did you use all of them (peptizide, no-fenol, I

> can't remember them all)...or just some.

n uses all 3 with every meal or snack, anywhere from 12 to 18 a

day.

Also, did you see any of

> the typical reactions to the enzymes, like the irritability, etc?

Definitely. The first few weeks were horrible -- meltdowns, rage,

running away from home naked. Little glimpses of improvement. Then

after about 2 weeks he was getting dressed by himself, playing

happily with his little sister, cooperating with chores, cheerful.

All of which was brand new.

> And, did you have a doctor to help you with this decision, or did

> you come up with this all on your own?

My experience with doctors is that they are well-meaning but don't

know anything about helping n. The best information is on the

net, and in 's book " Enzymes for Autism and Other Neurological

Conditions " .

>

> I am So confused....everyone is telling me that the diet is such a

> huge help. Then, I hear that it doesn't work for everyone, and it

> appears that my son's reactions to food fits that category...but

> then I don't know if I should treat yeast, viral issues, food

> issues, etc. Which one first, I guess.

The whole biomed deal is that there is no one right answer and you

have to experiment and try things to see what will work for your

child. You're on the right track by looking here for kids that sound

like yours and investigating those paths. MAny thngs you can work on

at the same time, although you do need to wait a few days after

trying something new to see what kind of result it has, if any.

I would start with Houston enzymes first, especially if you already

know your child has any kind of problem with food.

> One last question...how did you know to treat for viral? Was there

> a test you did?

He had a viral panel done by Immunosciences last summer that had his

Epstein-Barr virus titer at 406, with a reference range of under 100.

WHat I suspect are viral symptoms with him (although I'm just

figuring this out) are whooping, verbal tics, hyperness, motor

repetitions like stomping his foot over and over, and he looks like

his thoughts are zinging around in his head like a pinball.

Good luck -- you'll get there!

Nell