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[Guest guest]

,

I am

Cheryl. I am married to a kind, faithful man who has a mental problem. He

is bipolar. Sometimes he causes me trouble but he tries hard to be a good

husband. He works even though he has a hard time doing it. I have

been disabled for several years now and get small SS checks. It has been

hard on him to carry the load alone. I have had lupus since a teen but

didn’t get a proper dx until in my 40’s. I am 57, have 2

grown kids who live out of state. I have fibromyalgia and a bunch of

other garbage too now. This is a good place to vent, tell jokes, ask

questions, blab, and cry, whatever. We all understand how you feel.

I remember very well how I felt when I was first dxed. I was scared but

relieved too. I had Dr’s for years telling me I was imagining things,

was nervous, and thought too much about myself and other degrading things. Finally,

someone believed me and actually had a name for what was wrong with me! I

went home and looked up lupus in the dictionary. Don’t do it!

It said: “a fatal disease”. EEK! It was an old book but

a long time ago Dr’s didn’t have the skills to dx it until the

person was nearly dead. We have lots of drugs and knowledge now and

expect to one day lick this disease.

My name is I am 44 mother of one 17 soon to be 18 year old and a

teacher. I have only had my lupus confirmed since September. I am

sure that I have had it for close to 10 years already. I have asthma,

hypothyroid, and depression. I have crackly knees, sore back, weird

joints, and a bunch of other complaints. My kidneys are killing me but so

far they are o.k. Doctor thinks it is my back. I basically feel

like the doctors can't do much for me. I am on the malaria drug and take

a bunch of stuff for my asthma. But otherwise the doc's are in a wait and

see mode.

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