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a, being off of the Pred is the greatest. I have developed some ouies but can live with them. I do not want to go back on the Pred. I was just doing some research and found that a lot of what I am experiencing falls under the symptoms of Sjogrens. I intend to bring that up with Rhuemy at next appointment. I believe I may have 2 or 3 things going on. Of course, I am not a doctor, but since my Rhuemy won't discuss why she will not diagnosis I have been checking things out myself. I don't care so much that I don't get a dx, but would like to know why. After 1 1/2 years, I do deserve that much. I think she is beginning to get the idea that I am really beginning to pay a lot of attention to what is happening. She know that I got copies of my labs for the last year and that the last set I had her office fax to me. In July I will have complied the results that I think need explaining and have all of my questions

written down. SURPRISE, Barb is not a meek lead me anywhere person any more. LOL This group has given me a lot of information and courage. As the saying goes, it is my body and I deserve to know what is going on with it.

Well, got right on that lecturing box didn't I? Sorry bout that.

barb

a Wahl wrote:

Barb,

I was wondering too, how I go about labeling my pics as some have when sending them in. I don't know how to do that, but would like to learn how. Some people have been able to even do that in their E-mails. That way I could tell the age Jazzy was in some of those pics

I just now got a digital camera, but the story on it is complicated at the moment. I may exchange it for another one, depending on how it works out. I really want one though. A friend of mine was sending me a lot of nice pics from a digital.

If you know anyone with digital camera you could get some new ones that way in a hurry, otherwise there is always one hour photo, which is what I did yesterday, but the pics of me didn't come out to good. So I will try again.

It must be great being off of the prednisone. Good for you hon,.

Love, hugs, and prayers, barb holkins wrote:

a, I too need to get some new pictures. The ones I have have family members in them and me on Pred!!! I have lost a little weight and my face looks more normal. Guess I would like to have a shot of just me so eveyone knows which one I am. LOL I also want to work with and get some labels attached to the pictures that are there so everyone will know which granddaughter they are looking at. Just in case they care.

barb

a Wahl wrote:

Thank you Barb, I appreciate that. I may have some new pics soon as well. Just got a new toy, but need to learn how to use it. Lol. Love, abarb holkins wrote:

a, you are a pretty lady and you have a darling daughter. Thank you for the pictures.

barb

a Wahl wrote:

Hey , Could you please put these in for me hon. Love, a"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies > ATTACHMENT part 2 image/jpeg name=MyPicture001.jpg> ATTACHMENT part 3 image/jpeg name=Jasmine and mommy.jpg> ATTACHMENT part 4 image/jpeg name=Jasmine 001.jpg> ATTACHMENT part 5 image/jpeg name=Jasmine.jpg> ATTACHMENT part 6 image/jpeg name=Picture.jpg

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