Used bookstores...and other things....

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In a message dated 5/6/04 2:31:40 PM, Mikem writes:

> (assuming you like browsing around

> in used book stores and doing so doesn't mess you up physically)

>

I do, it does, but it's worth it now and then. And thanks for the information

-- I'll make an excursion to Half-Priced Books in the next couple days and

see what they have....it's a matter of communicating with EVERYbody that

interests me, including doctors. I'm at the point in knowledge that they forget

I'm

not a med student, and can start tossing Latin at me faster than I can

interpret...

You're right, gracilis makes more sense -- our e-mails were crossing at odd

times (thank you, Yahoo...). I couldn't see in my illustrations where anything

terminated...

I'd love to have your notes. Yes, I'm self-diagnosing (but always lay out all

the information so my docs can arrive at their own conclusion); so far, it's

been self-defense. And any further improvement is going to have to originate

from me. Doctors have done about all they think possible. I need to figure out

if that's true, as well as do all I can to heal myself. For all intents and

purposes, I've been left on my own by the medicos, I guess until something

either goes wrong badly enough to risk treating me, or something happens they

know

they can fix.

BTW, I found that knowing what type EDS I have (or, what type they think I

have) led me to other probable symptoms I wouldn't have connected otherwise. But

there are enormous variations in my family. My great-aunt would bruise if the

wind was too strong; her sister, my mother's mother, however had complicated

foot problems her whole life, and not the bruising; my mother didn't have

either of those but did have hypermobile joints about like mine; and I seem to

have extreme dental complications that my ancestors didn't report. The arthritis

comes from my father's side. Just what I needed to make the EDS package

complete...

I still think the degree and range of symptoms is determined by when whatever

gene it is that governs EDS gets turned on; the earlier it activates, the

more widespread and complicated the symptoms. I can't give you anything other

than my strong sense that this would explain these variations.