Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 , I was diagnosed with Lupus about six months ago and my main issues are sore and swollen joints, mouth sores and extreme fatigue. I get the facial rash every once in a while. Anyway I've been taking Imuran for five of those six months along with Prednisone. So far the side effects and scary reactions haven't occurred. I've been able to get the Prednisone down to 5 mg a day. For what it's worth it may help you too, although I know everyone is different. I do know how you feel about thinking it's all in your head. Before a diagnosis I was beginning to think I was crazy, all these tests and everything was coming back " normal " . Good Luck Kim Date: Tue, 27 Apr 2004 18:26:45 -0700 (PDT) > > Subject: confused > > I was diagnosed with Lupus two years ago eventhough I have no positive blood tests, but I have pluerisy often , mouth sores, sore joints, fatigue, red face, and Raynaud's. I started to take Plaquenil two years agao and seemed to manage well with that and pain meds. In this past FEb I had an incident with not being able to breath, It feels like a knife in my lungs. I was then put on steroids. I cannot seem to get off the steroids without going back to where I was with the lung pain. Now they want to start me on Imuran, It looks like a scary drug. I still kind of feel like maybe this is something else? Has anyone else gone through anything like this? Plus with this flare none of my blood test come back showing anything. Is this in my head? > > > Quote Link to comment Share on other sites More sharing options...
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