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Re: To Mojo and MM

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Hey , you always do strike me like a person who doesn't let much get

him down. And of course all of us are allowed our weak moments. Hope this

one doesn't last too long. I'm sure once you start feeling a bit better

you'll also feel better.

Mojo

To Mojo and MM

> Thanks for the kind words and encouragement. I'm a very positive

> upbeat person 99% of the time. I count myself lucky every day that

> I'm having a lot less of a rought time than most people on this

> board. I have a soft bed, a roof over my head, and someone who loves

> me more than life. Life is good. I just have periods where I feel

> like I can't participate in my life and that it's passing me by. I'm

> in my prime and lupus is stealing it from me. Guess I grieve for it

> every now and then, then I move on. I'll bounce back in no

> time....probably once all the barium passes after today...lol.

>

> Thanks again. You both mean a lot to me.

>

>

>

> > , Good luck with the scan. I just went t hrough a bunch of

> them, and

> > have some more in the

> > next few weeks. Not fun, but necessary.

> >

> > On the struggle with energy levels, or lack thereof, I don't

> think we ever

> > get used to losing our ability

> > to get around as we wish. Feels like such a betrayal, especially

> if we've

> > had very active lives before

> > Lupus got a foothold. I have found for myself, that finding a way

> to be

> > useful and justify my exist-

> > ence works for me most of the time. Nothing works all the time,

> but most of

> > the time I can point to

> > my involvement with this group, with children, and with my art and

> writing,

> > and say that I am not

> > just taking up space on the planet. Trying to find a positive

> good in

> > each day helps a lot. I am not

> > trying to be a Pollyanna, here, either. When I give in to my

> depression and

> > fears, I have an awful time, but when I look for ways to be useful

> to someone

> > else, I physically feel stronger. Hope that is

> > helpful for you, too. Loving hugs, MM

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

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