Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hi all, Has anyone heard of this, my MIL told me today that she is a bleeder. That after her dialysis it takes longer that usual for her bleeding to stop. Yesterday she bled bad enought not to go to her senior citizen routines. Helen, Bill's mom still ignores her EDS but I wonder is this is related. She has the bruise easy tendency too. Or, maybe this is just part of dialysis? Caro. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 In a message dated 3/28/2004 7:42:44 PM Eastern Standard Time, CDillardda@... writes: Hi all, Has anyone heard of this, my MIL told me today that she is a bleeder. That after her dialysis it takes longer that usual for her bleeding to stop. Yesterday she bled bad enought not to go to her senior citizen routines. Helen, Bill's mom still ignores her EDS but I wonder is this is related. She has the bruise easy tendency too. Or, maybe this is just part of dialysis? Caro. ______________________ Hi Caro: One of the jobs that I did while working as an RN, many years ago was, coincidentally as a dialysis nurse. During dialysis, we gave the patients a drug called Heparin before the procedure & I would expect, it is still used, but you should surely confirm that. The reason this was done, is to actually " thin " the blood, so the it flowed freely during the dialysis process/machines, allowing the blood to be " cleansed " . So, thinning the blood was done on purpose for the procedure & it was generally done over a period of 3 to 4 hours, three times a week. And, it was our practice to routinely check the bleeding time of the blood during the dialysis process, to make sure that the clotting times were within the proper range for the time of the procedure & it is not uncommon for people to take longer for the blood to clot after the procedure is completed, while the Heparin levels decrease. Surely it would take longer to clot than if the average person, or even most EDS patients, were having their blood drawn for regular blood test. ____________________ BUT, this bleeding should not go on for hours & hours or through to the next day, for instance. You weren't specific as to how long she continued to bleed after the dialysis was completed, nor how much (quantity) she bled. Did she bleed for a day? Was it more than perhaps a cup full, or perhaps a tablespoon? ____________________ Should she have any concern, or anyone in the family, a simple question to the staff should determine whether or not her bleeding times are within normal range. _____________________ And as always, this is neither meant to be, nor is it, medical advise. I encourage you to seek medical advice from her treating medical team. _____________________ As always, if you have any other concerns or questions, please don't hesitate to write back or call. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 In a message dated 3/28/2004 11:09:13 PM Eastern Standard Time, Boop4@... writes: > BUT, this bleeding should not go on for hours &hours or through to the next > > day, for instance. You weren't specific as to how long she continued to > bleed > after the dialysis was completed, nor how much (quantity) she bled. Did she > > bleed for a day? Was it more than perhaps a cup full, or perhaps a > tablespoon? > ____________________ I am not sure. She says she normally takes just longer for the bleeding to stop. About 15 minutes and she has to add pressure. The other day was different. She also mentions she is seeing some specialist this week about why her BP drops so low at times. She has BP drops and spikes and what sounds like POTS symptoms. I " begged " my MIL to take the papers on EDS that Bill sent to her to her doctor. Hopefully she did it. > Should she have any concern, or anyone in the family, a simple question to > the staff should determine whether or not her bleeding times are within > normal > range. My MIL normally clots too fast. Her implant or shunts, not sure of the correct name, keeps getting clogged and having to be replaced. She is covered with scars from the procedures. Well, she never mentioned the above problems before so it might be an isolated case. Thank you for your information. Caro. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 In a message dated 3/28/2004 11:09:13 PM Eastern Standard Time, Boop4@... writes: > BUT, this bleeding should not go on for hours &hours or through to the next > > day, for instance. You weren't specific as to how long she continued to > bleed > after the dialysis was completed, nor how much (quantity) she bled. Did she > > bleed for a day? Was it more than perhaps a cup full, or perhaps a > tablespoon? > ____________________ I am not sure. She says she normally takes just longer for the bleeding to stop. About 15 minutes and she has to add pressure. The other day was different. She also mentions she is seeing some specialist this week about why her BP drops so low at times. She has BP drops and spikes and what sounds like POTS symptoms. I " begged " my MIL to take the papers on EDS that Bill sent to her to her doctor. Hopefully she did it. > Should she have any concern, or anyone in the family, a simple question to > the staff should determine whether or not her bleeding times are within > normal > range. My MIL normally clots too fast. Her implant or shunts, not sure of the correct name, keeps getting clogged and having to be replaced. She is covered with scars from the procedures. Well, she never mentioned the above problems before so it might be an isolated case. Thank you for your information. Caro. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 In a message dated 3/28/2004 11:09:13 PM Eastern Standard Time, Boop4@... writes: > BUT, this bleeding should not go on for hours &hours or through to the next > > day, for instance. You weren't specific as to how long she continued to > bleed > after the dialysis was completed, nor how much (quantity) she bled. Did she > > bleed for a day? Was it more than perhaps a cup full, or perhaps a > tablespoon? > ____________________ I am not sure. She says she normally takes just longer for the bleeding to stop. About 15 minutes and she has to add pressure. The other day was different. She also mentions she is seeing some specialist this week about why her BP drops so low at times. She has BP drops and spikes and what sounds like POTS symptoms. I " begged " my MIL to take the papers on EDS that Bill sent to her to her doctor. Hopefully she did it. > Should she have any concern, or anyone in the family, a simple question to > the staff should determine whether or not her bleeding times are within > normal > range. My MIL normally clots too fast. Her implant or shunts, not sure of the correct name, keeps getting clogged and having to be replaced. She is covered with scars from the procedures. Well, she never mentioned the above problems before so it might be an isolated case. Thank you for your information. Caro. Quote Link to comment Share on other sites More sharing options...
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