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Re: Update on headaches, etc....

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What really surprised me, was that he also wants me to go to a

chiropractor. It's a doctor that he knows, and he feels he will be

able to help me and not hurt the EDS part of me. I told him about

Mike and the discussion on cranial-sacral therapy and also

myofascial release, and he said those may be a consideration as

well, but wants me to try this doctor first. I'm to call him in two

weeks to let him know how I'm doing. He did, however, give me

another name of someone that does those (or maybe one of them and I

don't remember which one). His name is Jay Burr (Mike, this is for

your sake if you're reading this) and he used to do physical therapy

at a former clinic where my doctor worked.

----------------------

I did a quick web search for CST trained practitioners in Omaha and

came up with 70 names, including a Jay Burr, PT.

If you have paid any attention at all to any of the posts I have

done where I have helped people find practitioners, you already know

that I NEVER recommend someone with just the basic training unless

there is no other option.

In all candor and total honesty, there are at least a dozen in Omaha

that are far more qualified. The Burr that I found just shows one

class in CST but three in NMT. As info, I don't much care for NMT

work for EDS folks because I find it to be too damn aggressive at

times and it quite frankly hurts.

One name in particular, however, caught my eye. It is a Betty

. She is an LMT. Her phone number is . Her

listing shows having taken CST I and II twice each, Somato Emotional

Release, four classes in Process Acupressure, and nine classes in

Zero Balancing. In simple terms, Zero Balancing is a major

energetic modality. Process Acupressure is essentially a knock-off

of Jin Shin Do acupressure. The developer of it actually got her

start by going through the Jin Shin Do program and then putting her

own spin on things.

Also in total honesty, if I was in Omaha and was looking for someone

to work on me, Betty is the one I would call, hands-down.

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One other question, Mike, before I sign off - are the energy and

acupressure modalities covered at all by insurance, do you know?

---------------

It depends on how what your insurance covers and how the therapist

codes it. Generally, for things like massage to be covered by

insurance, you need a prescription from your primary care provider.

It will be a prescription for something like massage to relax tight

muscles or whatever. Your therapist will then code according to

what the prescription says. Standard medical coding will be used

because you probably won't be covered if they spell out exactly what

they are doing - like running energy. They will code for the

condition and symptoms and not necessarily the specific techniques

used. This sucks, but that's the way it is if you want to get

coverage.

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Lana,

Have you noticed any positive changes yet (I know, I know - it's only been a

couple of days....)? I am glad that you went to see the doctor and had this

assessed!

Jill

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Lana,

Have you noticed any positive changes yet (I know, I know - it's only been a

couple of days....)? I am glad that you went to see the doctor and had this

assessed!

Jill

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Lana,

Have you noticed any positive changes yet (I know, I know - it's only been a

couple of days....)? I am glad that you went to see the doctor and had this

assessed!

Jill

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Hi Jill,

Well, I'm beginning to notice very slight improvements. The med he gave me

to help me sleep I believe is going to help. I haven't had a headache yet,

so I don't know about the med for that.

Today I had my first manipulation with the chiropractor. He first showed me

my xrays. I have a pretty bad neck, I think he said at C5 and C6. He felt

I must have had a very bad trauma to my neck in the past 20 years or so. I

don't remember it if I did. It is close to becoming fused in that area. He

believes he can keep it from doing that; however, he can't put me in the

normal range, as it's too degenerated. My doctor had told me several years

ago, that I had cervical disk degeneration. Also, in the lower spine, there

is a place that is right next to the stage my neck is in. He will better be

able to help that area. He also said I have one hip about an inch higher

than the other, and that it's also rotated forward to quite an extent. He

feels he'll be able to correct that. BUT, he told me it will take some

time, and quite a few treatments, and would like to see me be able to be on

a maintenance program, even after he has those two areas as good as he can

get them. That would mean once a week to see if I need manipulation. For

now, and probably a couple months, it will be three times a week, and then

for several weeks after that, twice a week. He did do a mild manipulation

of my neck and back today, but I don't really feel a lot better yet. He did

say there is a LOT of inflammation in both places.

If anyone on the list has had a history with chiropractors, I would be

interest in what you have to say about it.

I'm hoping to improve, and believe I will, but I think it may take a few

weeks to feel much better. Thanks for asking, Jill! How are YOU doing?

Love Lana

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Hi Jill,

Well, I'm beginning to notice very slight improvements. The med he gave me

to help me sleep I believe is going to help. I haven't had a headache yet,

so I don't know about the med for that.

Today I had my first manipulation with the chiropractor. He first showed me

my xrays. I have a pretty bad neck, I think he said at C5 and C6. He felt

I must have had a very bad trauma to my neck in the past 20 years or so. I

don't remember it if I did. It is close to becoming fused in that area. He

believes he can keep it from doing that; however, he can't put me in the

normal range, as it's too degenerated. My doctor had told me several years

ago, that I had cervical disk degeneration. Also, in the lower spine, there

is a place that is right next to the stage my neck is in. He will better be

able to help that area. He also said I have one hip about an inch higher

than the other, and that it's also rotated forward to quite an extent. He

feels he'll be able to correct that. BUT, he told me it will take some

time, and quite a few treatments, and would like to see me be able to be on

a maintenance program, even after he has those two areas as good as he can

get them. That would mean once a week to see if I need manipulation. For

now, and probably a couple months, it will be three times a week, and then

for several weeks after that, twice a week. He did do a mild manipulation

of my neck and back today, but I don't really feel a lot better yet. He did

say there is a LOT of inflammation in both places.

If anyone on the list has had a history with chiropractors, I would be

interest in what you have to say about it.

I'm hoping to improve, and believe I will, but I think it may take a few

weeks to feel much better. Thanks for asking, Jill! How are YOU doing?

Love Lana

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In a message dated 3/13/04 3:34:12 PM Eastern Standard Time, EDSLana@...

writes:

<< If anyone on the list has had a history with chiropractors, I would be

interest in what you have to say about it. >>

Lana,

Email Judy King.....she is a chiropractor and Reikki master........she always

has lots of good sound advice for EDSers about chiropractic care, and will

not steer you in the wrong direction if it is not a good choice for you. I will

send you her email off list.

Hugs,

Sue

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