- Get this guys---------- unbelieveable

[Guest guest]

Hugs -

Actually- I have done that before- with the morphine when it was 90 mgs -----

will tell you , I finally slept though- even though it wasn't a very good

feeling when I woke...... but with the handfull that I had thought I took- had

I taken another handfull with as many as the morning's dose- I am pretty sure I

would not have been able to stay home- most likely- wouldnt remember the ride to

the hospital....... the morning container is quite full.

Yes- I do hope that even though I went through a more painful ( than usual )

experience - that this doctor will learn something....... There are so few

cases of EDS in Michigan- even emergency ( well- I imagine most ER's are

uninformed ) has no idea what it is to live with.......... most times - when I

have to go into ER- they always say the same thing- ..... " You are on a lot of

medications - we really need to get you off these all together. " Ugh. Makes ya

just wanna smack em for saying such when you are feeling miserable enough to go

in anyhow.

I am hoping for what you said there as well-------- about hoping he'll go in

to speak to my dr about it and learn the little knowledge my dr has about

it........ but he is learning and thats the main point........ most are so

unwilling here.

I am feeling some better but definitely going to have beer on hand for

situations as such...... I didn't have anything in the house except some

homemade wine a former boyfriend made ( gag)- hate wine...... but if necessary-

I would have drank it........ My Aunt went across the driveway and got one for

me from my Gramps house....... I didn't even know gramps had beer on hand

LOL........ but I guess for his son in laws when he has company perhaps. I did

mess up my schedule quite well though and unfortunately am having a time with

it...... its almost like starting over again..... I ended up in the wheelchair

for a couple of those days and still a bit at night lately- it just helps to put

less pressure on my legs that way..... but am back to using the cane/amigo (

scooter ) again............. bad thing about that scooter is no where to put

legs up....... * Guess I could throw em up and over the basket * boy that would

be real lady like.......... Dad keeps saying he will rig something up for my

legs- ( I'm dreading that hehe ------- he builds things like Fred Flintstone)

but I didn't type that- no one saw that- its a figment of your imaginations

uhhuh ....... snickers.

I will call dr today and hopefully be able to talk directly to him and see if

he will be willing to up the dose on one or the other because now that I did

that mistake I set myself back too far and feel like I need to start at square

one and go back to that point again due to it was nearly making me feel human,

for at least 20 minutes off and on during the day and now that is gone ........

but it could be worse- I am sure it could be a whole lot worse. But Amen am

definitely better than the day that I did it......... ty so much for caring and

asking :-)

Wow- what is the reason you are only on 2.5 meth now? I must say I was a tad

bit frightened to try beer along with my medications but guess it got to the

point that I didnt care- between that and the kids arguing ......... guess we

all get to a point where we just say to **** with it and tip the bottle or do

whatever we can to help the pain. Has been quite a while since I've had beer

myself , miss mudslides ....... ever try one of those? Been nearly a year or

more since I've had one- may have someone pick a bottle of that premixed stuff

along with the beer to keep on hand for those moments of TJ

stupidity............

Its not that warm here yet- well not for me but I'm one of those that wear

layers and layers of clothes...... we had a few nice days then snow- then rain

and now Im hoping, because Im looking out the window and seeing no rain that

perhaps we'll have a nice enough day, that I can let some fresh air in........

Exactly on the two steps forward and 3 back......

Watch out Oprah--------- You just may end up with a bunch of EDS'rs on your

show----------- actually thats a great idea!!!!!!!

Hugs and hope you are feeling as well as can be------------TJ

Hey -

Just be glad you didn't think your forgot your meds, then took them again!

I've done that, but luckly with just very small doses, so I didn't get any major

problems, like you could have gotten if you had taken 2 doses!

Sorry you suffered so long though. Maybe, this doctor will take some time to

find out a little about EDS now. We can only hope. !

Maybe he'll go in on Monday and talk to your doctor about it. If he's any

kind of a good doctor, he will.

So, are you feeling better now? I bet that beer tasted good! I've had some

over the last few days, cause I'm pretty much off my meds now. Just 2.5 mg of

meth a day now. It's been sunny and warm here, and nothing tastes so good as a

cold beer on a warm evening! hehe. I hadn't had any in so long cause of my

meds.

I would have gotten mad too. It's so frustrating. Like 2 steps foward and 3

back.

Something has to be done about the ignorance in the medical field of this

horrible disorder that so many are suffering with every day.

We need Oprah!

Hugs,