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~Lonestars~ book

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Hello group. I see so many folks here addressing the very question needs

us to answer to help her help us. " What do you what your Family and friends to

know/ understand about your EDS and how it affects you. She will be back from

vacation soon. I'm guessing for most of us, we have people in our lives we wish

could " Really " understand what is to live in our shoes. The pain, isolation,

what ever has changed in your life due to EDS. Whether we have the daily pain,

or we are a care taker of someone that life has been changed by this syndrome,

or both, I think we all have a story to tell. Think about it. Cindylouwho.

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