C

[Guest guest]

Hi hon,

It doesn't look pleasant nor does it feel pleasant. What sucks is

that I have to wear long sleeve shirts and such on hot beautiful

days. I can't even put a bathing suit on because people would see the

patches... I want this taken care off asap because I want to go

swimming.

I will let you know what the derm says.

Hugs

Deanna

> Dear Deanna,

> I'm so sorry to read about all the pain you are in.....and now

you have psoriasis too?

> When will you get a break? ......I know a little bit about

Psoriasis.....my youngest son has it ......and it can really be

terrible.

> He has to use several different ointments for it ......and

several times a day To keep it under control.......If he runs out of

his meds.....and it is very expensive, so sometimes he just can't

afford it ......it comes back with a vengeance......it takes a long

time to get it under control again. One of the ointment he uses is

Elidel......but you have to use it several times a day ......and if

it is as bad as yours seems to have gotten it will take a while for

it to work.

> So I hope your dermatologist will recognize it for what it is and

give you some Medications that will work....My son suffers terribly

with his ......it gets in his hair and scalp also .......

>

> Good luck .....and give those doctor's grief till they do something

for you......as I know you will.......You `Fiesty Little Wench'

>

> Love- C.

>

>

>

>

> update, MM, Rhonda, &

>

>

> Hey all,

>

> Just wanted to drop a semi quick update for you all.

>

>

>

> Had to go see orthopedic surgeon Tuesday for the osteonecrosis in

my right knee for more films. (I haven't been able to literally move

my knee for hour's different times during the week - so we wanted to

see if the osteonecrosis had gotten worse) Films didn't show much of

the disease worsening but he did say that what I was experiencing was

from gas build up and such from the dead bone - He made it sound good

J Anyways he said there was nothing he can do for it - that I am to

continue to just sit and wait for the knee to crumble so I can get a

knee replacement. HELLO!!!!!! That does not sit well with me - I love

this surgeon to death and he has known me since 97 before I got sick

and he has seen me through everything - He is even Mike's surgeon for

both his workers comp accidents and knows our health history to a " T "

anyways I made some phone calls and I am going to see another Surgeon

for his opinion over at Strong Hosp in Aug. I haven't had the nerve

to tell my current surgeon - I don't want to upset him but I just

want a 2nd opinion. If this new surgeon says I have to sit and wait -

well then I guess that is what I will have to do - its just so damn

painful - and I have enough pain going on elsewhere to have to deal

with more J I have to get my films from this surgeon to take with me

to the new one plus the last progress report - so my current surgeon

will know I am getting a 2nd opinion L

>

> So for the osteonecrosis I get to continue to use crutches and/or

the walker when the knee is acting up really bad, keep it elevated as

much as possible, and ice it as much as possible - oh yeah and to

continue to sit and wait. Grrrrr

>

>

>

> Now I have been dealing with my dermatologist for 6 months know

on what he just says is eczema but I keep telling him the stuff he is

giving me isn't not cutting it and this is more that just eczema well

I did some research and from the looks of it this is Psoriasis - it

has spread all over (elbows, knee's, forearms, neck, scalp, and now

my butt cheeks) No comment from you Miss J Rheumy gave me some

samples of Elidel and I put it on some of the areas and it seems to

have helped some but not enough - I go to the derm tomorrow and I am

not going to be nice anymore to him - I don't have the $$ to keep

throwing away for stupid scripts that don't do jack shit!!!! He will

do something tomorrow and I will tell him that or I will take my

itchy, scaly ass elsewhere J

>

>

>

> Hmmm well I continue to up my dosages of the Cellcept as rheumy

has written and am know on 750 mg. another week I go up 250 mg. more.

I haven't noticed if it is working or not yet - can't remember if

this is one of the meds that take several weeks to kick in - but I do

know I so miss my methotrexate!!!! (I hated the shots but damn that

shit was a miracle drug for me) I just hope this med works as well if

not better and I so hope it helps this eczema /psoriasis situation

because apparently the methotrexate was L

>

>

>

> The fibro is kicking my butt lately but who knows if it's the

fibro or a combination of health issues, but the weather hasn't

helped. We have been having high humidity here and you southern

states can keep it J I still prefer this weather over snow though J

We just had a thunderstorm come through and it has cooled down a lot

since then - thank god we have a cold front coming in J

>

>

>

> Migraine hit me this evening so I am taking my migrahealth to

help alleviate it J So glad I got this drug. You have to order it

through a website but my neurologist who specializes in migraines

highly recommends it and I have been able to control my migraines

since starting it J

>

>

>

> I know there are messages I needed to reply to on the board but I

can't get to them right now - but should be able to tomorrow.

>

>

>

> Welcome to all the new members. MM glad all went well with the

procedure yesterday. Just please take it easy, try not to stress, and

be careful.

>

>

>

> Rhonda & - I go to Dr. Pryhuber rheumatology assoc. heck I

can't remember their entire name but it is he and Tammi Slotzhauer

that have the practice but are not taking any new patients - They are

too far away from both of you anyways - They are in Irondiquoite.

Rhonda I suggest if you can getting into the place where goes -

I have heard some good things about Dr. Condemi but would not give

up my Rheumy for the world - he is the bomb!!!!

>

>

>

> Okay that's it for now the knee is really killing me now that I

haven't had it elevated for awhile - uggggg Will write more tomorrow.

>

>

>

> God bless you all and goodnight.

>

>

>

> Hugs,

>

> Deanna

>

>

>

>

>

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