Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi Simone .. Remember .. the skin is an organ .. if he is getting rashes, then he has organ involvement. How long has your hubby been on the prednisone, plaquenil, and the imuran? Just curious, because they all have different times for how long it takes them to make a difference. Prednisone starts almost immediately and in the larger doses can be felt within an hour or two of taking it. Plaquenil takes at least 6 weeks to 4 months before seeing a difference in pain levels. Imuran also takes a while to take full effect even though you may feel the side effect of nausea almost immediately, the suppressing of the immune system takes several weeks. Many people do quite well on chemo to treat Lupus .. others do not .. like in all drugs .. it is a gamble to see if the med will work or not. What may work in one person will not work in another and vice versa. That is just the nature of Lupus .. everyone is different with different symptoms so there is no one course of treatment. good luck .. " Rion " > Thanks for responding to my email-I'm not sure what type of lupus my > husband has, after reading all the posts he seems to be doing better > than most people, he hasnt had any problems with his organs, he has > alot of joint pain and skin rashes, gets really high fevers some > nights that turn into cold sweats, and his hands freeze up on him > sometimes which really scares him badly. his is prednisone and > plaquenil, and imuran, and has only be hospitalized once for about 5 > days. His doctor just can't seem to find the right combination of > medicine to control this disease. He is talking about putting him on > Chemo. Well enough said, once again thanks for responding to my > post, I really need a new friend right now that understands. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi , Dwight's been on plaquenil for about 3 months and prednisone it seems like forever, his doctor keeps adjusting his dosage. His doctor is talking about trying a new experimental drug on Dwight, Dwight couldnt remember the name of it, also Dwight's platlet count is really low about 106, it was 5000 when he first got sick. Do you know what platlets do? Thanks for your concern, its nice to have someone to discuss this with. Simone > > Thanks for responding to my email-I'm not sure what type of lupus my > > husband has, after reading all the posts he seems to be doing better > > than most people, he hasnt had any problems with his organs, he has > > alot of joint pain and skin rashes, gets really high fevers some > > nights that turn into cold sweats, and his hands freeze up on him > > sometimes which really scares him badly. his is prednisone and > > plaquenil, and imuran, and has only be hospitalized once for about 5 > > days. His doctor just can't seem to find the right combination of > > medicine to control this disease. He is talking about putting him on > > Chemo. Well enough said, once again thanks for responding to my > > post, I really need a new friend right now that understands. > > Quote Link to comment Share on other sites More sharing options...
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