Re: scalenes - Now Aase re SI Joints

[Guest guest]

I also asked for help in looking into what is going on in my upper

back and neck.

I told her what you had suggested too, and she was very interested,

and asked me to e-mail the correct spelling of it, since she wasn't

familiar with this English term (TOS).

It would really be interesting trying to gain some knowledge about

what is going on with the SI joints, the upper back and the neck.

-----------

(1) What is going on with your upper back and neck?

(2) What did I suggest? I " suggest " so much lately I sometimes

forget what and to who.

(3) TOS stands for Thoracic Outlet Syndrome. Another medical term

of broader scope would be vascular disorders of the upper extremity,

which by the way, is the title of a really, really good book on the

subject by Herbert Machledger, MD.

(4) What's going on with your SI joints? What are they doing or not

doing? The next sections will seem like they are veering off-track

but they relate to your SI issue.

(5) Remember my post about my class where I mentioned working on one

of my classmate's knee? That was the most significant result I got

while working on her but it wasn't the only major result. Working on

her was also a good reminder for me that you do not HAVE to have EDS

to be totally screwed up physically. Yeah, she had a LOT of issues

going on.

(6) The purpose of that session was for us to practice reading the

12 wrist pulses, assessing them to determine if any meridians were

excess or deficient in energy, and to then choose a release pattern

to affect a chosen meridian or pair of meridians to either increase

or decrease the energy in them. (After you actually do it a couple

of times and can see the results, you get very intrigued with the

possibilities they open up). I chose a release pattern that pretty

well addressed the entire body because it focused on the Gall

Bladder meridian, which is the longest one of the twelve.

(7) I started my Polarity and Jin Shin Do trainings at about the

same time. All the way thru both of them I have been impressed at

how incredibly complimentary they are to each other and have just

naturally gotten into a pattern when working on someone where I

blend them together and move from one to the other throughout a

session. Or I will select acupressure points for hand-placement

doing polarity instead of just broad area or will choose polarity

hand-positions when accessing acupoints. That kind of thing. When I

started, I was constantly having my instructors remind me " Mike -

that's something else - stay with what we are doing here. " By now,

however, it has changed and they are even asking me things

like " Mike - any points you can show the rest of them to use with

this. " (in Polarity) More importantly, I cannot just content myself

to " do " the basic release when I know how to add something extra in

that will actually help a classmate. I seem to never have a class

anymore where I don't end up " fixing " something for at least two or

three classmates.

(8) Now we are starting to get back to your SI thing. At any rate,

while I was working on Kim, one of her problems was a semi-frozen

left shoulder. After I did the JSD release in that area, I added in

some additional holds and points and - her shoulder just let go. I

then worked down her back. One thing I have been seeing fairly

often the last three months is how an acupressure or polarity

release can also release myofascial restrictions. At any rate,

while I was working on Kim's low back (left hand just above iliac

crest on the pelvic bone and right hand just below the ribs), her

left SI suddenly (by itself) just shifted and dropped. It basically

realigned her pelvis.

(9) Now - what is your SI doing or not doing? I am finding that a

lot of SI problems can be effectively treated using cranialsacral,

MFR, and/or energetic modalities like polarity or acupressure.

[Guest guest]

I also asked for help in looking into what is going on in my upper

back and neck.

I told her what you had suggested too, and she was very interested,

and asked me to e-mail the correct spelling of it, since she wasn't

familiar with this English term (TOS).

It would really be interesting trying to gain some knowledge about

what is going on with the SI joints, the upper back and the neck.

-----------

(1) What is going on with your upper back and neck?

(2) What did I suggest? I " suggest " so much lately I sometimes

forget what and to who.

(3) TOS stands for Thoracic Outlet Syndrome. Another medical term

of broader scope would be vascular disorders of the upper extremity,

which by the way, is the title of a really, really good book on the

subject by Herbert Machledger, MD.

(4) What's going on with your SI joints? What are they doing or not

doing? The next sections will seem like they are veering off-track

but they relate to your SI issue.

(5) Remember my post about my class where I mentioned working on one

of my classmate's knee? That was the most significant result I got

while working on her but it wasn't the only major result. Working on

her was also a good reminder for me that you do not HAVE to have EDS

to be totally screwed up physically. Yeah, she had a LOT of issues

going on.

(6) The purpose of that session was for us to practice reading the

12 wrist pulses, assessing them to determine if any meridians were

excess or deficient in energy, and to then choose a release pattern

to affect a chosen meridian or pair of meridians to either increase

or decrease the energy in them. (After you actually do it a couple

of times and can see the results, you get very intrigued with the

possibilities they open up). I chose a release pattern that pretty

well addressed the entire body because it focused on the Gall

Bladder meridian, which is the longest one of the twelve.

(7) I started my Polarity and Jin Shin Do trainings at about the

same time. All the way thru both of them I have been impressed at

how incredibly complimentary they are to each other and have just

naturally gotten into a pattern when working on someone where I

blend them together and move from one to the other throughout a

session. Or I will select acupressure points for hand-placement

doing polarity instead of just broad area or will choose polarity

hand-positions when accessing acupoints. That kind of thing. When I

started, I was constantly having my instructors remind me " Mike -

that's something else - stay with what we are doing here. " By now,

however, it has changed and they are even asking me things

like " Mike - any points you can show the rest of them to use with

this. " (in Polarity) More importantly, I cannot just content myself

to " do " the basic release when I know how to add something extra in

that will actually help a classmate. I seem to never have a class

anymore where I don't end up " fixing " something for at least two or

three classmates.

(8) Now we are starting to get back to your SI thing. At any rate,

while I was working on Kim, one of her problems was a semi-frozen

left shoulder. After I did the JSD release in that area, I added in

some additional holds and points and - her shoulder just let go. I

then worked down her back. One thing I have been seeing fairly

often the last three months is how an acupressure or polarity

release can also release myofascial restrictions. At any rate,

while I was working on Kim's low back (left hand just above iliac

crest on the pelvic bone and right hand just below the ribs), her

left SI suddenly (by itself) just shifted and dropped. It basically

realigned her pelvis.

(9) Now - what is your SI doing or not doing? I am finding that a

lot of SI problems can be effectively treated using cranialsacral,

MFR, and/or energetic modalities like polarity or acupressure.

[Guest guest]

I also asked for help in looking into what is going on in my upper

back and neck.

I told her what you had suggested too, and she was very interested,

and asked me to e-mail the correct spelling of it, since she wasn't

familiar with this English term (TOS).

It would really be interesting trying to gain some knowledge about

what is going on with the SI joints, the upper back and the neck.

-----------

(1) What is going on with your upper back and neck?

(2) What did I suggest? I " suggest " so much lately I sometimes

forget what and to who.

(3) TOS stands for Thoracic Outlet Syndrome. Another medical term

of broader scope would be vascular disorders of the upper extremity,

which by the way, is the title of a really, really good book on the

subject by Herbert Machledger, MD.

(4) What's going on with your SI joints? What are they doing or not

doing? The next sections will seem like they are veering off-track

but they relate to your SI issue.

(5) Remember my post about my class where I mentioned working on one

of my classmate's knee? That was the most significant result I got

while working on her but it wasn't the only major result. Working on

her was also a good reminder for me that you do not HAVE to have EDS

to be totally screwed up physically. Yeah, she had a LOT of issues

going on.

(6) The purpose of that session was for us to practice reading the

12 wrist pulses, assessing them to determine if any meridians were

excess or deficient in energy, and to then choose a release pattern

to affect a chosen meridian or pair of meridians to either increase

or decrease the energy in them. (After you actually do it a couple

of times and can see the results, you get very intrigued with the

possibilities they open up). I chose a release pattern that pretty

well addressed the entire body because it focused on the Gall

Bladder meridian, which is the longest one of the twelve.

(7) I started my Polarity and Jin Shin Do trainings at about the

same time. All the way thru both of them I have been impressed at

how incredibly complimentary they are to each other and have just

naturally gotten into a pattern when working on someone where I

blend them together and move from one to the other throughout a

session. Or I will select acupressure points for hand-placement

doing polarity instead of just broad area or will choose polarity

hand-positions when accessing acupoints. That kind of thing. When I

started, I was constantly having my instructors remind me " Mike -

that's something else - stay with what we are doing here. " By now,

however, it has changed and they are even asking me things

like " Mike - any points you can show the rest of them to use with

this. " (in Polarity) More importantly, I cannot just content myself

to " do " the basic release when I know how to add something extra in

that will actually help a classmate. I seem to never have a class

anymore where I don't end up " fixing " something for at least two or

three classmates.

(8) Now we are starting to get back to your SI thing. At any rate,

while I was working on Kim, one of her problems was a semi-frozen

left shoulder. After I did the JSD release in that area, I added in

some additional holds and points and - her shoulder just let go. I

then worked down her back. One thing I have been seeing fairly

often the last three months is how an acupressure or polarity

release can also release myofascial restrictions. At any rate,

while I was working on Kim's low back (left hand just above iliac

crest on the pelvic bone and right hand just below the ribs), her

left SI suddenly (by itself) just shifted and dropped. It basically

realigned her pelvis.

(9) Now - what is your SI doing or not doing? I am finding that a

lot of SI problems can be effectively treated using cranialsacral,

MFR, and/or energetic modalities like polarity or acupressure.

[Guest guest]

Hi Mike,

1. What is going on in my upper back and neck? I don't know exactly,

but I'll try to explain a bit: In my upper back, between my shoulder

blades, I think it is two vertebrae who does something, probably

slide out. The last time I had a really bad " epiode " of this, it

really seemed to me (in the mirror) that two of the vertebrae were

further out than the others. This thing can be brought on by

something like a wrong movement or e.g. somebody giving me a " bear

hug " . When it happens, I get awful pain attacks, really strong,

radiating pain down my arms. My arms feel very heavy, weak, and so

painful I couldn't even scream if I wanted to. The only thing I can

do, is to try to concentrate on breathing. The best thing is to sit

in a recliner or reclined bed, with the back reclined so that I get

some pressure on the area. Don't know why. When it happens, all the

muscles in the whole upper back and neck area gets really hard, I

don't know if it is really spasms, but. When it happens, it often

takes about a month to really calm down. During this period, I have

to be really careful, it very easily happens again. When the area is

" OK " , I still have discomfort and pain there, but not in this way,

when the " attacks " go on, nothing can touch the pain and there is no

way I can do anything to try to make it better, just breathing is

more than enough to handle. I don't know what would happen then if I

didn't use my breathing technique, because that is the only thing I

can do when the pain gets bad enough, I try to put myself in a state

where I don't just tense up, and try to sort of go a bit out of

myself and try to flow with the stream of pain instead of against it,

if that makes any sense to you. I remember trying to explain and

teach this technique to a friend with FMS who I felt so much kept

struggling against the pain only making it worse, but it is not easy

to explain and she really had no idea what I was talking about... I

try not to add to the tension that the muscles sort of go into by

themselves, I can't get them to not do that, but I try not making it

worse, I can imagine that if I tensed my muscles then, I could easily

have some really bad spasms? Or?

I had an episode where my collar bone went out at the shoulder a

while ago, and instintively I put my other hand on top of it and did

a movement and pushed, and it was OK. But something happened at the

back of my shoulder, along the scapula, and since then it has felt

funny. I have amongst others had electrical sensations, as if there's

a current buzzing there, also tingling and such. Never had that

before, how odd... I have no idea what it is...

The neck... I really have no idea what goes on in it. It seems to be

filled with shingle, he-he... There is a lot of sounds and I always

have an urge to stretch to relieve " the pressure " , but have to be

really careful, because it so easily goes completely wrong, and it

becomes " stuck " and really stiff and painful. I also have a muscle, I

think, on the left side, which often is very inflamed and swollen. At

the base of it (at the base of the skull), it often has a huge

swollen knot, I don't know, but maybe an inch in diameter? When the

neck acts up, it often sets of horrible migraines. I have several

types of migraines, but this one is really awful. The neck pain is

terrible then too, and if I could move around when it happens, I

suspect that I would be pacing, not laying in my bed. I just can't

find a comfortable position, and often end up sitting, holding my

neck and head with my hands, rocking, in desperation I guess. If I

had thought rat poison would help, I would have eaten a box at that

point, if you get my drift.

But besides that, I always have discomfort there too. And I get

problems down my arms. I can't be sure where it really comes from, if

it comes from the neck (which I feel it might do), the upper back or

both?

I'll try to explain what happens in my arms. I have a lot of tingling

and " electrical " sensations too, altough not that often as the

tingling. I get numbness too. I get a feeling of pressure, and

heaviness. The arms feels so heavy and they get weak. E.g. yesterday

at work they were acting up, and I had to type a case. I had such

problems controlling my hands, I am normally a fast typer, but it is

as if my fingers did not react as fast as they are supposed to, so I

mistyped all the time. And the pain was absolutely there and making

it hard. I had a really hard time pushing my manual wheelchair down

the halls at the office too. I feel quite sure that nerves are

getting compressed, but how and why, I have no idea.

2. I did tell you about some of this in an off list mail a while

ago, and it was then you mailed me back saying that what I explained,

sounded like it might be Thoracic Outlet Syndrome. I mailed you back

after that mail too, I think. I could go back to have a look in my

mailbox... No wonder you can't remember, you answer so many questions

and such... But anyway, we talked about it when we were talking about

you coming to the conference...

When I have tried to ask my RD about it, he has just been saying

lately " of course, you have EDS and we know what happens then " . I

have not been happy about that answer, which came when I suggested

getting some films done to figure out what happens. I really disagree

with him, we don't know what is going on, and with the combination of

EDS and psoriatic arthritis, we should check what is going on. I

mean, if some nerves get compressed over time, can't that lead to

permanent damage? Heck, he is not the one who would be paying the

price if that happened...

But now i hopefully get the films done before this summer, so I can

bring them and the reports... I wrote the lady back and spelled out

thoracic outlet syndrome for her and also included some definitions

done by some MD's, which I found on the net, as well as a few URL's

to web pages about it.

4. I don't know for sure what is going on with my SI joints either. I

can only guess. It is especially the right one which is troublesome.

It feels like it " slides " (subluxes, I guess) and then locks up in

that wrong position. Then nerves get compressed and the pain in that

area and down my leg, gets really bad. I can really not move or

anything, but of course I have to move, because I need to get it

back. This has prevented me from being able to lay down to sleep/rest

for a long time now. Earlier I could manage as long as I had my

waterbed, but the past two years I have been sleeping in a sitting

position in a hospital bed. I really miss being able to get proper

rest. I feel that my back is suffering too because of this, because

my back really needs me laying down for proper rest... I am sure you

understand what I mean... It makes it more or less impossible also to

be able to lay down for doing exercises, to be examined e.g. at the

doctor, to lay down on my back on a PT bench etc. etc. I can manage

to lay on a massage table on my tummy with a pillow under my tummy

for a while, but often it does go out then too. I can't sleep on my

tummy though, my neck and jaws won't let me do that. On the side is

trouble too, because of my shoulders. So I am sitting, and sometimes

also turning over to my side with the back of the bed reclined to

about 45 degrees, with my knees curled up. Somehow this is a bit

easier than laying on my side flat, but it is really not a good

position for resting either. So after years and years of this, I am

getting tired of it, and I am ready to see if something can be done.

And now I travel a lot because I am the president for the Norwegian

Pso. Assoc. too, and hotels are a nightmare. I now ask for 6 extra

duvets (of the thick and heavy kind we use here) and use them under

myself and to build up under my back and under my knees. I can't say

that I get good rest, but it is better than nothing, because then I

get no rest whatsoever... He-he... Can you imagine how many pillows

I'll be asking for in Buffalo, since you don't use duvets... I have

been thinking of maybe buying one of those air beds to put on top of

the bed, to make part of it better though, or even asking my OT to

apply for an air top mattress which I can use to take with me around,

but it is not easy because they have a motor and are heavy...

When it happens, I normally have to grab the side of the bed or

whatever, and pull to roll myself over and then roll off the bed

(ouch when the bed has wooden edges, he-he) and down on the floor.

Then I can get it back. Only when it first has happened once, it very

easily happens again, so I often has it going on.

Oh well... I hope this at least makes some sense to you. It is not

that easy for me to explain it, it would be a bit easier in

Norwegian, but... LOL...

Oh gosh, the time is flying... I have a docs appointment in only one

hour... I gotta go...

Thanks a lot for your input, it is really appreciated... One more

thing, really quickly. You earlier referred to something you said in

another post, but I had not read that one, so it didn't make any

sense to me. I have a lot of posts to read up on, and I just can't

manage to read all posts all the time. I am a lot behind since I have

been away, busy etc.... And also I haven't been on the list that long

this time either, so you probably posted a lot about the different

techniques you use etc. before I joined again... So a lot of what you

post, is also just difficult to understand because I just don't have

a clue...

Bye for now...

Aase Marit

>

>

>I also asked for help in looking into what is going on in my upper

>back and neck.

>

>I told her what you had suggested too, and she was very interested,

>and asked me to e-mail the correct spelling of it, since she wasn't

>familiar with this English term (TOS).

>

>It would really be interesting trying to gain some knowledge about

>what is going on with the SI joints, the upper back and the neck.

>

> -----------

>

>(1) What is going on with your upper back and neck?

>

>(2) What did I suggest? I " suggest " so much lately I sometimes

>forget what and to who.

>

>(3) TOS stands for Thoracic Outlet Syndrome. Another medical term

>of broader scope would be vascular disorders of the upper extremity,

>which by the way, is the title of a really, really good book on the

>subject by Herbert Machledger, MD.

>

>(4) What's going on with your SI joints? What are they doing or not

>doing? The next sections will seem like they are veering off-track

>but they relate to your SI issue.

>

>(5) Remember my post about my class where I mentioned working on one

>of my classmate's knee? That was the most significant result I got

>while working on her but it wasn't the only major result. Working on

>her was also a good reminder for me that you do not HAVE to have EDS

>to be totally screwed up physically. Yeah, she had a LOT of issues

>going on.

>

>(6) The purpose of that session was for us to practice reading the

>12 wrist pulses, assessing them to determine if any meridians were

>excess or deficient in energy, and to then choose a release pattern

>to affect a chosen meridian or pair of meridians to either increase

>or decrease the energy in them. (After you actually do it a couple

>of times and can see the results, you get very intrigued with the

>possibilities they open up). I chose a release pattern that pretty

>well addressed the entire body because it focused on the Gall

>Bladder meridian, which is the longest one of the twelve.

>

>(7) I started my Polarity and Jin Shin Do trainings at about the

>same time. All the way thru both of them I have been impressed at

>how incredibly complimentary they are to each other and have just

>naturally gotten into a pattern when working on someone where I

>blend them together and move from one to the other throughout a

>session. Or I will select acupressure points for hand-placement

>doing polarity instead of just broad area or will choose polarity

>hand-positions when accessing acupoints. That kind of thing. When I

>started, I was constantly having my instructors remind me " Mike -

>that's something else - stay with what we are doing here. " By now,

>however, it has changed and they are even asking me things

>like " Mike - any points you can show the rest of them to use with

>this. " (in Polarity) More importantly, I cannot just content myself

>to " do " the basic release when I know how to add something extra in

>that will actually help a classmate. I seem to never have a class

>anymore where I don't end up " fixing " something for at least two or

>three classmates.

>

>(8) Now we are starting to get back to your SI thing. At any rate,

>while I was working on Kim, one of her problems was a semi-frozen

>left shoulder. After I did the JSD release in that area, I added in

>some additional holds and points and - her shoulder just let go. I

>then worked down her back. One thing I have been seeing fairly

>often the last three months is how an acupressure or polarity

>release can also release myofascial restrictions. At any rate,

>while I was working on Kim's low back (left hand just above iliac

>crest on the pelvic bone and right hand just below the ribs), her

>left SI suddenly (by itself) just shifted and dropped. It basically

>realigned her pelvis.

>

>(9) Now - what is your SI doing or not doing? I am finding that a

>lot of SI problems can be effectively treated using cranialsacral,

>MFR, and/or energetic modalities like polarity or acupressure.

>

>

>

>To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

>

[Guest guest]

I have several

> types of migraines, but this one is really awful. The neck pain is

> terrible then too, and if I could move around when it happens, I

> suspect that I would be pacing, not laying in my bed. I just can't

> find a comfortable position, and often end up sitting, holding my

> neck and head with my hands, rocking, in desperation I guess. If I

> had thought rat poison would help, I would have eaten a box at that

> point, if you get my drift.

> But besides that, I always have discomfort there too. And I get

> problems down my arms. I can't be sure where it really comes from,

if

> it comes from the neck (which I feel it might do), the upper back

or

> both?

>

> I'll try to explain what happens in my arms. I have a lot of

tingling

> and " electrical " sensations too, altough not that often as the

> tingling. I get numbness too. I get a feeling of pressure, and

> heaviness. The arms feels so heavy and they get weak. E.g.

yesterday

> at work they were acting up, and I had to type a case. I had such

> problems controlling my hands, I am normally a fast typer, but it

is

> as if my fingers did not react as fast as they are supposed to, so

I

> mistyped all the time. And the pain was absolutely there and making

> it hard. I had a really hard time pushing my manual wheelchair down

> the halls at the office too. I feel quite sure that nerves are

> getting compressed, but how and why, I have no idea.

Hi Aase,

This sounds a lot like what has been happening with me, only without

the arm pain and tingling. I wonder if you too, don't have cervical

spinal stenosis, and with the arm/hand stuff going on, it sounds like

you also have myelopathy, which is nothing to sluff off! When I went

to the specialist (even though I didn't think much of him) he said I

wasn't having any neurological symptoms since I didn't have any

arm/hand involvement. Aase, I think you should have further tests

done to make sure what's going on, and from stuff I've read, it can

be dangerous if you let it go. Please let me know what you find out,

OK? Thinking of you girlfriend, I know some of what you're going

through!

Love Lana

[Guest guest]

I have several

> types of migraines, but this one is really awful. The neck pain is

> terrible then too, and if I could move around when it happens, I

> suspect that I would be pacing, not laying in my bed. I just can't

> find a comfortable position, and often end up sitting, holding my

> neck and head with my hands, rocking, in desperation I guess. If I

> had thought rat poison would help, I would have eaten a box at that

> point, if you get my drift.

> But besides that, I always have discomfort there too. And I get

> problems down my arms. I can't be sure where it really comes from,

if

> it comes from the neck (which I feel it might do), the upper back

or

> both?

>

> I'll try to explain what happens in my arms. I have a lot of

tingling

> and " electrical " sensations too, altough not that often as the

> tingling. I get numbness too. I get a feeling of pressure, and

> heaviness. The arms feels so heavy and they get weak. E.g.

yesterday

> at work they were acting up, and I had to type a case. I had such

> problems controlling my hands, I am normally a fast typer, but it

is

> as if my fingers did not react as fast as they are supposed to, so

I

> mistyped all the time. And the pain was absolutely there and making

> it hard. I had a really hard time pushing my manual wheelchair down

> the halls at the office too. I feel quite sure that nerves are

> getting compressed, but how and why, I have no idea.

Hi Aase,

This sounds a lot like what has been happening with me, only without

the arm pain and tingling. I wonder if you too, don't have cervical

spinal stenosis, and with the arm/hand stuff going on, it sounds like

you also have myelopathy, which is nothing to sluff off! When I went

to the specialist (even though I didn't think much of him) he said I

wasn't having any neurological symptoms since I didn't have any

arm/hand involvement. Aase, I think you should have further tests

done to make sure what's going on, and from stuff I've read, it can

be dangerous if you let it go. Please let me know what you find out,

OK? Thinking of you girlfriend, I know some of what you're going

through!

Love Lana

[Guest guest]

Hi Lana,

Thanks a lot for your support, I really appreciate it. Most of the

time I just try to live with things, but when nerves obviously are

involved in some way or another, it does make me feel unsure because

I feel it is nothing to fool around with. I really feel such things

are nothing to mess with at all. So I want to find out what goes on.

Hopefully I get a reply next week if they will write the necessary

referrals and then I can call the X-ray place and ask to come in

asap. It was really funny today, I actually felt really weak in my

legs also. I have experienced that before, but not like today. It

lasted a while, then it got better. I was walking only a few yards,

but I was really struggling. Lately I have felt that my hands haven't

worked properly, very clumsy, loose things all the time, the fingers

move slower than they are supposed to etc. etc. So something is

obviously going on, from between the shoulder blades and up. I hope

that I can find out about it soon, so I know about what I am really

dealing with. Now I have vacation for over a week, so I hope I can

get some rest. I have a lot to do though, but I can just hit the

recliner in between. I will try to be a bit conscious about movements

and such though, but it is really not easy to figure out what really

goes on and exactly where it comes from...

You mentioned several terms which I really am not all that familiar

with. Maybe I'll do a bit searching tonight and have a look around,

maybe a bit more of this can make some sense...

I try to be quite careful about my neck, I guess you know what I mean

when I say that. E.g. when I go back and forth to Oslo for meetings

etc., some of the pilots seem to think they are flying a military

plane rather than a passenger one. They aren't the ones to try for

really soft landings. So I always keep an eye out the window to know

where we are, and make sure to have my head straight forward and well

planted into the headrest when the plane hits the ground.... Because

I know that a sudden movement is no fun and can set of problems...

Have you found out more about what to do with your neck and when? If

we have to, we'll get a bed for you in Buffalo!!!!

hugs,

Aase Marit

>This sounds a lot like what has been happening with me, only without

>the arm pain and tingling. I wonder if you too, don't have cervical

>spinal stenosis, and with the arm/hand stuff going on, it sounds like

>you also have myelopathy, which is nothing to sluff off! When I went

>to the specialist (even though I didn't think much of him) he said I

>wasn't having any neurological symptoms since I didn't have any

>arm/hand involvement. Aase, I think you should have further tests

>done to make sure what's going on, and from stuff I've read, it can

>be dangerous if you let it go. Please let me know what you find out,

>OK? Thinking of you girlfriend, I know some of what you're going

>through!

>

>Love Lana

[Guest guest]

Hi Lana,

Thanks a lot for your support, I really appreciate it. Most of the

time I just try to live with things, but when nerves obviously are

involved in some way or another, it does make me feel unsure because

I feel it is nothing to fool around with. I really feel such things

are nothing to mess with at all. So I want to find out what goes on.

Hopefully I get a reply next week if they will write the necessary

referrals and then I can call the X-ray place and ask to come in

asap. It was really funny today, I actually felt really weak in my

legs also. I have experienced that before, but not like today. It

lasted a while, then it got better. I was walking only a few yards,

but I was really struggling. Lately I have felt that my hands haven't

worked properly, very clumsy, loose things all the time, the fingers

move slower than they are supposed to etc. etc. So something is

obviously going on, from between the shoulder blades and up. I hope

that I can find out about it soon, so I know about what I am really

dealing with. Now I have vacation for over a week, so I hope I can

get some rest. I have a lot to do though, but I can just hit the

recliner in between. I will try to be a bit conscious about movements

and such though, but it is really not easy to figure out what really

goes on and exactly where it comes from...

You mentioned several terms which I really am not all that familiar

with. Maybe I'll do a bit searching tonight and have a look around,

maybe a bit more of this can make some sense...

I try to be quite careful about my neck, I guess you know what I mean

when I say that. E.g. when I go back and forth to Oslo for meetings

etc., some of the pilots seem to think they are flying a military

plane rather than a passenger one. They aren't the ones to try for

really soft landings. So I always keep an eye out the window to know

where we are, and make sure to have my head straight forward and well

planted into the headrest when the plane hits the ground.... Because

I know that a sudden movement is no fun and can set of problems...

Have you found out more about what to do with your neck and when? If

we have to, we'll get a bed for you in Buffalo!!!!

hugs,

Aase Marit

>This sounds a lot like what has been happening with me, only without

>the arm pain and tingling. I wonder if you too, don't have cervical

>spinal stenosis, and with the arm/hand stuff going on, it sounds like

>you also have myelopathy, which is nothing to sluff off! When I went

>to the specialist (even though I didn't think much of him) he said I

>wasn't having any neurological symptoms since I didn't have any

>arm/hand involvement. Aase, I think you should have further tests

>done to make sure what's going on, and from stuff I've read, it can

>be dangerous if you let it go. Please let me know what you find out,

>OK? Thinking of you girlfriend, I know some of what you're going

>through!

>

>Love Lana

[Guest guest]

Hi Lana,

Thanks a lot for your support, I really appreciate it. Most of the

time I just try to live with things, but when nerves obviously are

involved in some way or another, it does make me feel unsure because

I feel it is nothing to fool around with. I really feel such things

are nothing to mess with at all. So I want to find out what goes on.

Hopefully I get a reply next week if they will write the necessary

referrals and then I can call the X-ray place and ask to come in

asap. It was really funny today, I actually felt really weak in my

legs also. I have experienced that before, but not like today. It

lasted a while, then it got better. I was walking only a few yards,

but I was really struggling. Lately I have felt that my hands haven't

worked properly, very clumsy, loose things all the time, the fingers

move slower than they are supposed to etc. etc. So something is

obviously going on, from between the shoulder blades and up. I hope

that I can find out about it soon, so I know about what I am really

dealing with. Now I have vacation for over a week, so I hope I can

get some rest. I have a lot to do though, but I can just hit the

recliner in between. I will try to be a bit conscious about movements

and such though, but it is really not easy to figure out what really

goes on and exactly where it comes from...

You mentioned several terms which I really am not all that familiar

with. Maybe I'll do a bit searching tonight and have a look around,

maybe a bit more of this can make some sense...

I try to be quite careful about my neck, I guess you know what I mean

when I say that. E.g. when I go back and forth to Oslo for meetings

etc., some of the pilots seem to think they are flying a military

plane rather than a passenger one. They aren't the ones to try for

really soft landings. So I always keep an eye out the window to know

where we are, and make sure to have my head straight forward and well

planted into the headrest when the plane hits the ground.... Because

I know that a sudden movement is no fun and can set of problems...

Have you found out more about what to do with your neck and when? If

we have to, we'll get a bed for you in Buffalo!!!!

hugs,

Aase Marit

>This sounds a lot like what has been happening with me, only without

>the arm pain and tingling. I wonder if you too, don't have cervical

>spinal stenosis, and with the arm/hand stuff going on, it sounds like

>you also have myelopathy, which is nothing to sluff off! When I went

>to the specialist (even though I didn't think much of him) he said I

>wasn't having any neurological symptoms since I didn't have any

>arm/hand involvement. Aase, I think you should have further tests

>done to make sure what's going on, and from stuff I've read, it can

>be dangerous if you let it go. Please let me know what you find out,

>OK? Thinking of you girlfriend, I know some of what you're going

>through!

>

>Love Lana

[Guest guest]

> Hi Lana,

It was really funny today, I actually felt really weak in my

> legs also. I have experienced that before, but not like today. It

> lasted a while, then it got better. I was walking only a few yards,

> but I was really struggling. Lately I have felt that my hands

haven't

> worked properly, very clumsy, loose things all the time, the

fingers

> move slower than they are supposed to etc. etc. So something is

> obviously going on, from between the shoulder blades and up. I hope

> that I can find out about it soon, so I know about what I am really

> dealing with. Now I have vacation for over a week, so I hope I can

> get some rest.

Aase, I'm not sure you should wait a whole week. If I'm interpreting

information I read on this, it could be very dangerous, as it's

interferring neurologically with you! Can you call and tell them

what is going on and that you think you have Spinal Stenosis with

Myelopathy and ask if it is an emergency type of situation?? Please

look at this article and do research on it. Let me know if this is

what you think is happening with you! http://www.spine-

health.com/topics/cd/overview/cervical/cerv03.html

I've done lots of research in the last week or so, or else I wouldn't

have recognized it. Yes, I did find out more about me - no surgery -

YEA! I don't have the myelopathy. I'll send you more when I get

home tonight, OK? But please check into this and get back with me on

what you find out.

Love you!

Lana

[Guest guest]

> Hi Lana,

It was really funny today, I actually felt really weak in my

> legs also. I have experienced that before, but not like today. It

> lasted a while, then it got better. I was walking only a few yards,

> but I was really struggling. Lately I have felt that my hands

haven't

> worked properly, very clumsy, loose things all the time, the

fingers

> move slower than they are supposed to etc. etc. So something is

> obviously going on, from between the shoulder blades and up. I hope

> that I can find out about it soon, so I know about what I am really

> dealing with. Now I have vacation for over a week, so I hope I can

> get some rest.

Aase, I'm not sure you should wait a whole week. If I'm interpreting

information I read on this, it could be very dangerous, as it's

interferring neurologically with you! Can you call and tell them

what is going on and that you think you have Spinal Stenosis with

Myelopathy and ask if it is an emergency type of situation?? Please

look at this article and do research on it. Let me know if this is

what you think is happening with you! http://www.spine-

health.com/topics/cd/overview/cervical/cerv03.html

I've done lots of research in the last week or so, or else I wouldn't

have recognized it. Yes, I did find out more about me - no surgery -

YEA! I don't have the myelopathy. I'll send you more when I get

home tonight, OK? But please check into this and get back with me on

what you find out.

Love you!

Lana

[Guest guest]

(1) I concur with the advice you have already been given by Lana

about more definitive testing.

(2) It sounds like you might be having a couple of vertebrae sublux

on you, probably in the T-3 to T-5 area. When mine have done it to

me in the past in that area, it feels like a steel strap all the way

around my body crushing my chest and ribs. Very painful, very hard

to breath. The problem with this and your description is that it

doesn't match nerve ennervation patterns. The main nerves for the

arms exit the spine through the cervical vertebrae, not the

thoracic, so subluxed vertebrae in the upper thoracic region doesn't

fit with the heavy, painful arm feeling. However, subluxed thoracic

vertebrae could place pressure on the cervical vertebrae and trigger

a nerve response. Either way, I agree that you need to get it

checked.

(3) Your description of very tight upper back muscles is suggestive

of muscle spasm.

(4) That collar bone thing where you pushed it back in place and

then felt something along the scapula makes sense because the

shoulder end of the clavicle joins the scapula at what is called the

acromioclavicular joint. You might have " pushed it back in " a bit

too far and caused a different pressure on the scap.

(5) Breath work and meditation for pain management is good. Beyond

that, I need to give some thought to coming up with some acupressure

release patterns for you to try to relax the area, things that you

can do for yourself. You would not be able to reach all of the

necessary points in the back with your hand, but you could if you

used a Theracane. If you don't have one already, I will have mine

with me at the conference and you can check it out.

(6) That electrical sensation, like a current buzzing and tingling,

sounds like some kind of nerve response.

(7) Sounds in the neck? Like a bowl of Rice Krispies? It is

probably just crepitus and is very common. When I roll my head

around it sounds like some one is walking on gravel in my neck. Of

and by itself it is not a problem. Like I told Lana recently, it is

a problem if it is being caused by bone on bone grinding.

(8) I also relate to that " stuck " feeling in the neck - mine does

the same thing, usually at C7-T1. It seems like it just " catches "

on me. I don't worry about it unless one of the vertebrae decides to

sublux as well.

(9) That muscle at the base of the skull could be one of two or

three different ones because the location is the mastoid process

which is an attachment point for several muscles. I can't tell from

your description which one it might be. There are, however, some

acupressure neck and shoulder releases that might help with the

swelling, tightness and inflammation. My main cautionary note on

this is about whether it is just a knot in a muscle or something

else. I say this because of the way it seems to trigger migraines.

Again here, I would recommend getting it checked to be sure.

(10) I will do some work with you at the conference to see what we

can come up on some other releases that might help your shoulder and

arm situation.

(11) You have EDS and you know what happens then? What kind of

horse puckey advice/help is that? Just live with it? I don't think

so. Sounds like a cop-out because he doesn't know what to do.

(12) As for your SI, yes, they can sublux, shift, get in the wrong

position, and lock up on you. They also can directly cause sciatica

pain and numbness in the buttocks and down the leg, which is what it

sounds like is happening to you. For the sciatica pain, you can try

two acupressure points. The first is really easy to find - dead

center in the back of the knee crease. The other is about two

finger widths out from the edge of the sacrum and about midway

between the top of the iliac crest and your ischial tuberosity (the

hard bone you sit on at the base of your buttocks). When I get

shots of sciatica, I work those two points.

[Guest guest]

(1) I concur with the advice you have already been given by Lana

about more definitive testing.

(2) It sounds like you might be having a couple of vertebrae sublux

on you, probably in the T-3 to T-5 area. When mine have done it to

me in the past in that area, it feels like a steel strap all the way

around my body crushing my chest and ribs. Very painful, very hard

to breath. The problem with this and your description is that it

doesn't match nerve ennervation patterns. The main nerves for the

arms exit the spine through the cervical vertebrae, not the

thoracic, so subluxed vertebrae in the upper thoracic region doesn't

fit with the heavy, painful arm feeling. However, subluxed thoracic

vertebrae could place pressure on the cervical vertebrae and trigger

a nerve response. Either way, I agree that you need to get it

checked.

(3) Your description of very tight upper back muscles is suggestive

of muscle spasm.

(4) That collar bone thing where you pushed it back in place and

then felt something along the scapula makes sense because the

shoulder end of the clavicle joins the scapula at what is called the

acromioclavicular joint. You might have " pushed it back in " a bit

too far and caused a different pressure on the scap.

(5) Breath work and meditation for pain management is good. Beyond

that, I need to give some thought to coming up with some acupressure

release patterns for you to try to relax the area, things that you

can do for yourself. You would not be able to reach all of the

necessary points in the back with your hand, but you could if you

used a Theracane. If you don't have one already, I will have mine

with me at the conference and you can check it out.

(6) That electrical sensation, like a current buzzing and tingling,

sounds like some kind of nerve response.

(7) Sounds in the neck? Like a bowl of Rice Krispies? It is

probably just crepitus and is very common. When I roll my head

around it sounds like some one is walking on gravel in my neck. Of

and by itself it is not a problem. Like I told Lana recently, it is

a problem if it is being caused by bone on bone grinding.

(8) I also relate to that " stuck " feeling in the neck - mine does

the same thing, usually at C7-T1. It seems like it just " catches "

on me. I don't worry about it unless one of the vertebrae decides to

sublux as well.

(9) That muscle at the base of the skull could be one of two or

three different ones because the location is the mastoid process

which is an attachment point for several muscles. I can't tell from

your description which one it might be. There are, however, some

acupressure neck and shoulder releases that might help with the

swelling, tightness and inflammation. My main cautionary note on

this is about whether it is just a knot in a muscle or something

else. I say this because of the way it seems to trigger migraines.

Again here, I would recommend getting it checked to be sure.

(10) I will do some work with you at the conference to see what we

can come up on some other releases that might help your shoulder and

arm situation.

(11) You have EDS and you know what happens then? What kind of

horse puckey advice/help is that? Just live with it? I don't think

so. Sounds like a cop-out because he doesn't know what to do.

(12) As for your SI, yes, they can sublux, shift, get in the wrong

position, and lock up on you. They also can directly cause sciatica

pain and numbness in the buttocks and down the leg, which is what it

sounds like is happening to you. For the sciatica pain, you can try

two acupressure points. The first is really easy to find - dead

center in the back of the knee crease. The other is about two

finger widths out from the edge of the sacrum and about midway

between the top of the iliac crest and your ischial tuberosity (the

hard bone you sit on at the base of your buttocks). When I get

shots of sciatica, I work those two points.