Re: Newbie / Hi

[Guest guest]

Hi :

Welcome to the group.

I'm sure others have the luxury of saying you'll be fine, but have all the

right to be scared. Don't let them think you don't.

Anyway, I think you should definitely follow through with your tests and

try and figure out what is happening to you. Hopefully, it is nothing

serious, but if not it's good to have an early diagnosis and start working

on getting better or to stop the problem from advancing.

I was 22 and just newlywed when I was diagnosed with Lupus Nephritis. I

was hardly able to get out of bed. I was athletic and always very active. I

was 22 and feeling like and 80 year old. Age has nothing to do with getting

seriously ill. However, due to modern medicine and my strong will I am still

doing ok and three children later I can say I have a good life. Believe it

can be the same with you.

Good luck to you and please let us know how you do with all the tests.

Mojo

Newbie

> Hi. I'm the new kid on the block at the moment. I haven't been

> diagnosed with Lupus, as of yet. It is just one of the many

> different DX's they're (docs) are looking at.They're looking at

> everything from lupus to MS to everthing inbetween. Today I had a

> MRI. My first ever. It sucked. I am 28 years old, married for the

> past 8 1\2 years, and I have three children (kevin 7 yrs has autism,

> and boy-girl twins,Jayden and Martha, who are three). It all started

> at the end of March as I was pouring a cup of coffee, of all things.

> I lost part of my vision in my left eye. Turns out my optic nerve is

> swollen, and my cardiolipins are all wrong(very high). My nerves are

> fried. I know it's pointless to over worry as what will be will be.

> I know that lesson very well. It just turns out that I am able to

> handle anyone elses problems better than my own, whether it's my

> parents, husband, children....I guess I just want to be somewhere

> where I can vent and find some humor, cuz right now I feel sort of

> bleak. You know how everybody tells you one thing but you know in

> your heart they're wrong? Everyone says by the end of all the

> testing I'll probably be the healthiest person they know who just

> needs blood thinners. I hope they're right, but I just have this

> feeling that it's something bigger.

>

>

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>

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