Re: Re: Update on Deb (VA)

[Guest guest]

You go girl! I think that memo is a great idea. People are sometimes

cruel not on purpose, but because they are ignorant. It is sometimes up to

us to teach the. Most of the healthy people take it forgranted and don't

really understand what it means to live with an every day illness.

Let us know how it goes when and if you decide to do it.

Mojo

Update on Deb (VA)

> >

> >

> > > It's been kinda a rough spring. I caved in and went back on a

> 2-week

> > > round of prednisone. Only 10 mg, but still I didn't want to do

> it.

> > > I needed to take Nikki out touring colleges and I just couldn't

> the

> > > way I felt before. I feel so much more alive and functioning.

> I

> > > hope research can soon come up with something to help without

> doing

> > > harm. I still have my fingers crossed. I haven't been on the

> board

> > > lately. It is so much work to keep up with all the mails.

> Work is

> > > same old same old. Two steps forward and one back, there's

> nothing

> > > like feeling helpless to stress you out. Boss doesn't

> understand, he

> > > assumes everything is going as planned. Maybe I just need to

> have a

> > > little more faith that people want to do their jobs?? Sigh...

> Today I

> > > had to sit out a meeting because one girl brought 4-5 different

> > > scented lotions and invited everyone to try them. When I said I

> > > couldn't stay her comment was " It's fruit scented! YOu can't be

> > > sensitive to fruit scents! How do you eat a pear... Holding

> your

> > > nose??? " What a snotty bi...ch! She is allergic to wheat,

> maybe

> > > I'll slip a little wheat gluten into her next food and say " You

> can't

> > > suffer from just a little wheat! Especially if it's fruit

> > > flavored???! " Ha! I'm two migraine pills down now. Insurance

> only

> > > allows 12 per month.

> > > I did swing my stick a bit at work today and it felt better! I

> > > called the lady who was so rude and she apologized. She said

> she was

> > > trying to make a joke and didn't realize how it sounded.

> Probably a

> > > load of crap, knowing the source, but just by calling I let her

> know

> > > how much it offended me and how insensitive she was. It also

> made an

> > > impact for the next time we have to have a meeting. I told her

> I

> > > thought if anyone would understand sensitivity she would, since

> she

> > > has the whole wheat-wheat gluten thing going on! She admitted

> she

> > > just wasn't thinking, she was just excited about sharing the new

> > > product. Standing up for onself in a nice way feels good! And

> I got

> > > a laugh venting in the office.

> > >

> > > I tried to find a support site for raising teenagers, but all I

> can

> > > find is a site for troubled teenagers, and I don't have one of

> > > those! I just need advice on how to help her put her best foot

> > > forward (which I never got from my alcoholic mom, therefore had

> to

> > > stumble thru - I dropped out of reg high school, married an

> > > alcoholic, got beat up, left him, lost him and child in

> accident,

> > > then went back to school at a small private christian HS).

> Suffice

> > > it to say I never got " raised right " and I'm kicking myself for

> not

> > > keeping Nikki in modeling, or dance, or something! I know

> there is

> > > nothing shabby about her getting a retail job (she was hired

> first

> > > application, first try!) but her job doesn't relate to animals

> and

> > > that is where she wants to work. Nikki is my only child, so I

> didn't

> > > have anyone to " practice " on. She is not doing very well in

> school.

> > > Her test scores are always high, but she is late with almost

> all her

> > > assignments and that brings her average way down I just keep my

> > > deadlines on an organizer and BOOM they're done. She puts them

> off.

> > > Anyone have any awesome organizational tools that might help?

> I keep

> > > coming up with ideas, but it's like trying to build a better

> > > mousetrap, someone has already done it better than I could and

> I'd

> > > like to benefit from their experience.

> > >

> > > Back to the parenting websites! Over half of those listed

> wanted

> > > photos of " discipline " and " spanking " ! One said Photos of Mom's

> > > spanking daughters wanted. No sickos allowed. Uh, excuse me,

> but

> > > how could you want photos of that and NOT be a sicko? I was

> afraid

> > > to log in to any of them and be spammed with more porn than I

> already

> > > get with Yahoo... sucks.

> > >

> > > That's about my routine the past few days. Nikki & I

> went " college

> > > shopping " last week. She likes the small town rural college

> Radford

> > > University. It's really nice and not too restrictive, but 6

> hours

> > > away from here, not near any major airport or anything. So far

> > > everyone I've known has lived within 1-2 hours of a major

> airport so

> > > I'm not too sure how I'd handle that. I guess Roanoke has a

> fairly

> > > decent size airport though, so I'm probably ok. (In case of

> > > emergency I'd like to know I could get there) It's still a

> little

> > > far for weekend visits. Local colleges just don't have

> > > the " independence " factor though. But regardless of the

> location we

> > > all think it's best if she lives on campus her freshman year.

> Course

> > > she is only a junior in hs right now, but I just discovered

> that her

> > > senior year grades will not be considered on her application,

> so she

> > > is pretty much screwed unless she goes for a late admission. I

> don't

> > > know her GPA, but it is around a " C " . Competitive colleges are

> > > looking at 3.5 or higher. Oh well, if we try hard enough I'm

> sure we

> > > will find something that will help.

> > >

> > > Now I get the lovely prednisone reduction withdrawal starting

> tomorrow

> > > I'm down to 7.5 mg right now. I'm only breaking the 5 mg tabs in

> > > half - I haven't done this for awhile and I hope I do ok without

> > > having to call the doc for the 1mg tabs. But for the past

> couple of

> > > weeks I've been GREAT!

> > >

> > > Hi to everyone, and I'm sorry I missed so much. You all who

> write

> > > everyday have my respect and gratitude for keeping up with all

> this!

> > > Hope everyone is enjoying lovely spring weather like we are!

> > > Hugs........Deb VA

> > >

> > >

> > >

> > >

> > >

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