Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hi welcome. This group is great. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hi welcome. This group is great. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Welcome, ! I'm sure you'll love it here in our family, and find lots of information, support and laughs! We've done a lot of the last one lately, and it helps us all to feel better. I'm 53, HEDS, 2 grown children, one husband (thank God it's only 1!!!) and a cock-a-poo. I live in Omaha, NE. Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Welcome, ! I'm sure you'll love it here in our family, and find lots of information, support and laughs! We've done a lot of the last one lately, and it helps us all to feel better. I'm 53, HEDS, 2 grown children, one husband (thank God it's only 1!!!) and a cock-a-poo. I live in Omaha, NE. Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Welcome aboard!! Betty VEDS (Calgary Canada) Newbie in the group > Hi! > > I'm new to the group so let me introduce myself. I'm 41 and have > EDS - figured in out at the first of the year. I've got four kids > (6, 8, 10, 12), they have EDS. > > Sister and Mom have EDS - not sure about my brother, but he > definitely has some symptoms. Grandma had EDS. Keeping my eye on my > sister's two boys. > > My girls and I have more of the hypermobility and GI symptoms. My > sis, mom and grandma - more of the bleeding problems. > > Based on all the symptoms I've been able to find I believe we have > Classical-Type II. > > I have decided not to get the offical diagnosis at this time - mostly > because of insurance issues. Because we have a family history of > diagnosis for most of the symptoms and there is no cure - I figure we > will just keep treating the symptoms and educate doctors as we go. > > Since it appears the following goes along with EDS I'll add that we > have ADD and Alzheimers in the family also. > > Looking forward to learning and sharing with ya'll! > > > > > > > > > > > > > To learn more about EDS, visit our website: http://www.ceda.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , Welcome to our CEDA family!This truly a great and wonderful group of people.! Sincerely, son Newbie in the group > Hi! > > I'm new to the group so let me introduce myself. I'm 41 and have > EDS - figured in out at the first of the year. I've got four kids > (6, 8, 10, 12), they have EDS. > > Sister and Mom have EDS - not sure about my brother, but he > definitely has some symptoms. Grandma had EDS. Keeping my eye on my > sister's two boys. > > My girls and I have more of the hypermobility and GI symptoms. My > sis, mom and grandma - more of the bleeding problems. > > Based on all the symptoms I've been able to find I believe we have > Classical-Type II. > > I have decided not to get the offical diagnosis at this time - mostly > because of insurance issues. Because we have a family history of > diagnosis for most of the symptoms and there is no cure - I figure we > will just keep treating the symptoms and educate doctors as we go. > > Since it appears the following goes along with EDS I'll add that we > have ADD and Alzheimers in the family also. > > Looking forward to learning and sharing with ya'll! > > > > > > > > > > > > > To learn more about EDS, visit our website: http://www.ceda.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , Welcome to our CEDA family!This truly a great and wonderful group of people.! Sincerely, son Newbie in the group > Hi! > > I'm new to the group so let me introduce myself. I'm 41 and have > EDS - figured in out at the first of the year. I've got four kids > (6, 8, 10, 12), they have EDS. > > Sister and Mom have EDS - not sure about my brother, but he > definitely has some symptoms. Grandma had EDS. Keeping my eye on my > sister's two boys. > > My girls and I have more of the hypermobility and GI symptoms. My > sis, mom and grandma - more of the bleeding problems. > > Based on all the symptoms I've been able to find I believe we have > Classical-Type II. > > I have decided not to get the offical diagnosis at this time - mostly > because of insurance issues. Because we have a family history of > diagnosis for most of the symptoms and there is no cure - I figure we > will just keep treating the symptoms and educate doctors as we go. > > Since it appears the following goes along with EDS I'll add that we > have ADD and Alzheimers in the family also. > > Looking forward to learning and sharing with ya'll! > > > > > > > > > > > > > To learn more about EDS, visit our website: http://www.ceda.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Welcome to the group ! You will find lots of information and friends here. Hugs, Sue Ginley Buffalo, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Welcome to the group ! You will find lots of information and friends here. Hugs, Sue Ginley Buffalo, NY Quote Link to comment Share on other sites More sharing options...
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