Re: Severe Spinning Dizzyness, etc - Bernadette

[Guest guest]

Bernadette -

Please keep us updated on anything you learn.

I wish I could offer some insight - but I am just in the learning

stages of all of this. My 8 yo has some of the same problems -

although not even close to being as severe as your daughter. She

wakes up at night soaking wet and pale - with occasional nightmares.

She, too, is a constipated kid. She eats like a horse in the

evening, but I can rarely get her to eat before noon. She loves meat.

She has almost passed out twice during choir rehersals when they had

to stand for long periods.

I've had some 'get dizzy and pass out' periods in my life - and I've

been told by a couple doctors to eat more salt. Recently I've

started doing that and have felt better.

Is there any relation to water intake?

Do you think it's the protien or fat or both that is causing the

problem? Have you ever tried a high protien shake? (No fat an

usually easy to digest). Or it could be the type of protien - would

soy protien be better?

I remember being told once that I lacked the appropriate enzymes to

digest meat and that's why I didn't like to eat it (it made me sorta

nauseaus) I took some digestive supplements and it got better - I

have now become a major carnivore and don't need the supplements any

more. The doctor that recomended the enzymes said the less meat I

ate the fewer enzymes my body would produce and the more I ate meat

the better my body would be at digesting it. Probably not what is

wrong with your daughter, however.

Since the episodes occur on weekends - could it be that it's some

sort of withdrawl from the meds?

Hope you can figure out something to relieve her problem soon -

sounds pretty awful.

-- In ceda , " bernadette " wrote:

> Has anyone had these and what was the cause and or treatment. We

can't

> seem to figure out what would be effective treatment.

>

> Approximately once of twice a month, when my 17 yr old eats a larger

> heavy protein, or fatty meal she will wake in the night with severe,

> severe spinning dizziness. When little (7 or 8) she would describe

this

> as being in a tornado. Each time, she is sweating profusely and

pyjamas

> are wet, yes wet, had to be sweating long before waking.. She is

pale,

> pale, pale and sometimes gets dusky, unable to focus eyes due to

> dizziness. She has extreme, extreme nausea, is shaking and can't

bear

> to be touched, says even her skin is crawling. She is extremely

upset.

> Sometimes, she will throw up sour smelling partially or undigested

food.

> I have learned to treat the episode by giving her gravol 50 mgm po

> before she throws up or after, if unable to swallow it soon

enough. It

> is very difficult for her to make herself swallow the gravol and

water

> with so much nausea. The other thing that helps is domperidone 10

mgm

> which I usually get her to take before the gravol. She has

domperidone

> 10 mgm prn up to 4 times per day ordered. If she has any nausea

after an

> evening meal I will get her to take domperidone then, and often

before

> bed in an effort to prevent occurrences which are so frightening to

us

> both and so horrible for her to endure. The episode usually lasts

10 to

> 20 minutes and she is totally exhausted afterwards, falling asleep

in

> total exhaustion although she is too frightened to return to own

bed.

> Often, her muscles in arms and legs and neck will be achy, stiff the

> next day.

>

> She gets full very quickly at meals and eats small or tiny

amts.at all

> meals. Problem is she seems to be eating less and less all the

time and

> few vegetables and almost no red meat, or any meat for that matter.

Hg.

> is borderline. She used to like salmon, but now the odour of it

causes

> nausea. I know her protein intake is inadequate but protein food

is a

> major trigger for nausea or turning her off a meal entirely, but

> particularly triggers these nighttime episodes. The other

contributing

> trigger is a more physically active day...say if we took her to the

> swimming pool that day and she came home hungry and ate more than

usual

> for her. Right now she lives on Mr. Noodle, sometimes made into

egg

> drop soup, or Kraft dinner with extra Cheese Whiz in it, the odd

half

> banana, half peanut butter sandwich.

>

> On weekends, when she does not need to focus and take LA Dexedrine

that

> totally kills her appetite, she can eat bacon and eggs plus a better

> dinner. These episodes occur almost entirely on weekends with

larger

> food intake....also 2nd day of her period, or when she has a virus.

> Unfortunately, snack foods like salty pop corn, potato chips and

> cheesies are fairly well tolerated but perhaps it is the high salt

> content that allows for digestion of these foods in view of her Low

BP

> and Orthostatic Intolerance. On 5 occaisons she has had episodes

while

> awake and up that resulted very quickly in vomiting, almost

projectile

> in nature. She also has some heartburn, usually experienced on

waking

> in the morning and she has always been a constipated kid from

infancy.

> My sister was amazed I never had to deal with any gooey, messy

diapers

> and the leaking down the leg, not once.

> It seems to me like food is staying in the stomach too long, not

getting

> out of it, or not being moved along through the bowel adequately.

Has no

> loose B.M.'s or wind.

>

> Doctors thought that she could be having sleep apnea and she just

had a

> sleep study indicating no apnea but restless leg syndrome which we

have

> both known for years. She also has some deep sleep with lots of

> dreaming (rem sleep)...so sleep apnea is not the problem. I was

tempted

> to hold her Dexedrine and take her for Chinese to trigger a night

> episode during the study, but episodes are so horrible that even I,

> tough mother that I have had to become could not bring myself to do

this

> to her. Might have been better to have forced myself to do so,

however.

>

> Mike, do you have any polarity or acupressure methods that I could

try

> and how often does one have to do them to get continuous results?

If

> anyone has had similar a pattern, and investigation that yielded

answers

> plus effective treatment it would be so great to hear. Sorry for

the

> length, but I felt best to provide the full picture as she had a

painful

> rigid untouchable abdomen with daytime episode last Sun. Rigid,

painful

> abdomen is new aspect but resolved after 40 min. with domperidone

and

> when nausea and dizziness subsided.

> Thanks in advance for all suggestions and similar experiences.

> Bernie

>

>

>

>

>