Question: EDS, POTS, and Medicaid

[Guest guest]

I just spoke to a woman on the phone who asked me to ask the lists the following

question.

She has both EDS and Postural Orthostatic Tachycardia Syndrome (POTS). The POTS

was so disabling, she was unable to work. Her doctor prescribed Procrit to help

with the POTS. The Procrit helped her POTS and she was able to return to work.

Once she returned to work, Ohio Medicaid cut off her coverage for the Procrit.

As a result, the disabling POTS symptoms have returned and she is no longer able

to keep her job. She has contacted the local media and her politicians in the

hopes that somehow the state Medicaid will reinstate her coverage of the

Procrit.

Her question: Has anyone had similar experiences? If so, what did you do?

Please email answers to me at kdavis@... and I will forward them to her

directly.

-Barb