Re: Diagnosed with fibroids and scared to death..

[Guest guest]

Dear AD:

Your feelings of fear are quite understandable, and many of us felt the way

you did when first diagnosed.

However, your doctor's refusal to give you any information and reassurance

about your fibroids is really appalling. Absolutely unacceptable. Shame on her,

for depriving you of the most basic information that could have educated and

comforted you, about an extremely common, benign condition.

The actual word " doctor " derives from the Latin word for " teacher. " And of

all the hats that a good physician wears, teaching and imparting information is

one of the most important. Your doctor sounds painfully deficient in this

area. To me, this would be a red flag to go elsewhere. Don't accept this shabby,

inadequate medical " treatment. " You and all of us women here deserve much

better.

Wherever did your lazy doctor get the idea that it was ok to give you a

" referral " --to Dr. Internet. " As if the information on the Internet was ALL

reliable, factual and truthful!!!!!??!!

The good news is, the more you know the FACTS about fibroids, and understand

all your options on how to intervene....or NOT to intervene...and how to

treat symptoms--the more in control you'll feel-- and the less scared.

UNLIKE your doctor, we on this list (the LOL, or " Ladies of the List) are

all here to listen and support you.

So, WELCOME , and any questions...fire away!

Roma

In a message dated 1/8/2004 5:58:03 PM Eastern Standard Time,

axdagb@... writes:

My obgyn whom I have been seeing for the

last 5 years for my annual check up had not detected it previously.

How could it go undetected. When I questioned her, how she could

have missed it... during the pelvic exam she said that it was probably

behind my pelvic bone and so it could not have been detected until it

got to the current size. I wasn't convinced and I am still not. As

I had never heard of fibroids and had just been diagnosed with having

them, there were a lot of questions on my mind almost immediately,

but she wasn't very sensitive or comforting and she simply told me to

go and read up on them on the internet. I was about to burst into

tears and that's all she told me (I couldn't beleive it). Well, I

have been getting educated about fibroids and this forum has been

very helpful. I just had an ultrasound done. Do any of you have any

referrals for a good (compassionate) doctor in the L.A. area

specializing in myomectomy. I am thinking that this is probably the

best option for me, because I don't yet have kids and I am only 32.

[Guest guest]

Dear AD:

Your feelings of fear are quite understandable, and many of us felt the way

you did when first diagnosed.

However, your doctor's refusal to give you any information and reassurance

about your fibroids is really appalling. Absolutely unacceptable. Shame on her,

for depriving you of the most basic information that could have educated and

comforted you, about an extremely common, benign condition.

The actual word " doctor " derives from the Latin word for " teacher. " And of

all the hats that a good physician wears, teaching and imparting information is

one of the most important. Your doctor sounds painfully deficient in this

area. To me, this would be a red flag to go elsewhere. Don't accept this shabby,

inadequate medical " treatment. " You and all of us women here deserve much

better.

Wherever did your lazy doctor get the idea that it was ok to give you a

" referral " --to Dr. Internet. " As if the information on the Internet was ALL

reliable, factual and truthful!!!!!??!!

The good news is, the more you know the FACTS about fibroids, and understand

all your options on how to intervene....or NOT to intervene...and how to

treat symptoms--the more in control you'll feel-- and the less scared.

UNLIKE your doctor, we on this list (the LOL, or " Ladies of the List) are

all here to listen and support you.

So, WELCOME , and any questions...fire away!

Roma

In a message dated 1/8/2004 5:58:03 PM Eastern Standard Time,

axdagb@... writes:

My obgyn whom I have been seeing for the

last 5 years for my annual check up had not detected it previously.

How could it go undetected. When I questioned her, how she could

have missed it... during the pelvic exam she said that it was probably

behind my pelvic bone and so it could not have been detected until it

got to the current size. I wasn't convinced and I am still not. As

I had never heard of fibroids and had just been diagnosed with having

them, there were a lot of questions on my mind almost immediately,

but she wasn't very sensitive or comforting and she simply told me to

go and read up on them on the internet. I was about to burst into

tears and that's all she told me (I couldn't beleive it). Well, I

have been getting educated about fibroids and this forum has been

very helpful. I just had an ultrasound done. Do any of you have any

referrals for a good (compassionate) doctor in the L.A. area

specializing in myomectomy. I am thinking that this is probably the

best option for me, because I don't yet have kids and I am only 32.

[Guest guest]

Hi,

First I have to say that you made a GREAT decision about seeking another doctor.

You go girl! Your doc's " explanation " sounds fishy and her bed side manner is

uncalled for and terrible. It's her job to explain about fibroids and treatment

options. Many women here have had fibroids as large or larger than yours and

have had them removed by a myo. Don't let anyone tell you this is too big to

remove.

It's good that you don't have a lot of symptoms including the heavy bleeding.

You might try an RE (Reproductive Endocrinologist). They are often more

practiced in Myos than plain GYNs.

You might ask for a saline sono (SAS) or MRI for a better picture.

Don't be afraid. You will have a lot of support from this group. Ask questions.

Tell them your specific fears and they will help you. You are not alone and the

people here are filled with compassion.

Welcome!

Ku

axdagb wrote:

I was diagnosed with fibroids 3 weeks ago and I am scared to death.

My obgyn said that it is grapefruit sized. I haven't had major

symptoms so I never suspected anything was wrong until I felt the

lump on my abdomen and went to the doc to get it checked out. The

only symptoms that I'd experienced were lower back pain once in a

while and lately bloating. My obgyn whom I have been seeing for the

last 5 years for my annual check up had not detected it previously.

How could it go undetected. When I questioned her, how she could

have missed it... during the pelic exam she said that it was probably

behind my pelvic bone and so it could not have been detected until it

got to the current size. I wasn't convinced and I am still not. As

I had never heard of fibroids and had just been diagnosed with having

them, there were a lot of questions on my mind almost immediately,

but she wasn't very sensitive or comforting and she simply told me to

go and read up on them on the internet. I was about to burst into

tears and that's all she told me (I couldn't beleive it). Well, I

have been getting educated about fibroids and this forum has been

very helpful. I just had an ultrasound done. Do any of you have any

referrals for a good (compassionate) doctor in the L.A. area

specializing in myomectomy. I am thinking that this is probably the

best option for me, because I don't yet have kids and I am only 32.

Thank you.

AD