RE: Need EDS skin test after fact ... Autopsy

[Guest guest]

Caro,

I don't know the answer to your question but maybe Betty Cammack can be of

assistance, since her son's autopsy came back positive for VEDS. That is

what she posted yesterday. Best Wishes and Hugs!

Sincerely, S.

Need EDS skin test after fact ... Autopsy

> Hi all,

>

> I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

> our last chance. I can just see the SSD and VA pension people asking me

> questions. I will only know what is in the final records. A few of his

doctors are

> looking back at how Bill did not express his pain normally. It seems, IMHO

> perhaps the opposite of the pain meds that did not work on him. If you

have pain all

> of the time and cannot explain it ... who knows, you give up.

>

> If it was EDS that caused him not to express himself that skin test would

> help. Or, I am aware it could be too late for that. Reason for all of this

is

> Bill's Military pension is still pending. With him having brain cancer

that is

> reason he could not complete the application forms. Also, many of his old

> medical records seem to show he had pain, or was super sensitive to pain

with the

> doctors dismissing him. Bill once said to me he gave up because no one

believed

> him. Caro

>

>

>

[Guest guest]

Caro,

I don't know the answer to your question but maybe Betty Cammack can be of

assistance, since her son's autopsy came back positive for VEDS. That is

what she posted yesterday. Best Wishes and Hugs!

Sincerely, S.

Need EDS skin test after fact ... Autopsy

> Hi all,

>

> I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

> our last chance. I can just see the SSD and VA pension people asking me

> questions. I will only know what is in the final records. A few of his

doctors are

> looking back at how Bill did not express his pain normally. It seems, IMHO

> perhaps the opposite of the pain meds that did not work on him. If you

have pain all

> of the time and cannot explain it ... who knows, you give up.

>

> If it was EDS that caused him not to express himself that skin test would

> help. Or, I am aware it could be too late for that. Reason for all of this

is

> Bill's Military pension is still pending. With him having brain cancer

that is

> reason he could not complete the application forms. Also, many of his old

> medical records seem to show he had pain, or was super sensitive to pain

with the

> doctors dismissing him. Bill once said to me he gave up because no one

believed

> him. Caro

>

>

>

[Guest guest]

Caro,

I don't know the answer to your question but maybe Betty Cammack can be of

assistance, since her son's autopsy came back positive for VEDS. That is

what she posted yesterday. Best Wishes and Hugs!

Sincerely, S.

Need EDS skin test after fact ... Autopsy

> Hi all,

>

> I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

> our last chance. I can just see the SSD and VA pension people asking me

> questions. I will only know what is in the final records. A few of his

doctors are

> looking back at how Bill did not express his pain normally. It seems, IMHO

> perhaps the opposite of the pain meds that did not work on him. If you

have pain all

> of the time and cannot explain it ... who knows, you give up.

>

> If it was EDS that caused him not to express himself that skin test would

> help. Or, I am aware it could be too late for that. Reason for all of this

is

> Bill's Military pension is still pending. With him having brain cancer

that is

> reason he could not complete the application forms. Also, many of his old

> medical records seem to show he had pain, or was super sensitive to pain

with the

> doctors dismissing him. Bill once said to me he gave up because no one

believed

> him. Caro

>

>

>

[Guest guest]

Dear Caro,

I am so sorry that you are having so much to deal with on top of Bill's

death. It sounds like a lot depends on all of these decisions that have to be

made

so quickly. I hope that you can get some good direction on who can help you

get everything done .to accomplish all of this. I amm so sorry Caro for all

your troubles.

[Guest guest]

Dear Caro,

I am so sorry that you are having so much to deal with on top of Bill's

death. It sounds like a lot depends on all of these decisions that have to be

made

so quickly. I hope that you can get some good direction on who can help you

get everything done .to accomplish all of this. I amm so sorry Caro for all

your troubles.

[Guest guest]

Dear Caro,

I am so sorry that you are having so much to deal with on top of Bill's

death. It sounds like a lot depends on all of these decisions that have to be

made

so quickly. I hope that you can get some good direction on who can help you

get everything done .to accomplish all of this. I amm so sorry Caro for all

your troubles.

[Guest guest]

Caro

My son had an autopsy done just after he died and his DNA was sent to

Seattle in November so that was about 6 months after the autopsy. They did

use a tissue sample from the liver. As long as something is saved they can

use it and as has posted he did test positive for VEDS. Hope this

helps.

Betty

Need EDS skin test after fact ... Autopsy

> Hi all,

>

> I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

> our last chance. I can just see the SSD and VA pension people asking me

> questions. I will only know what is in the final records. A few of his

doctors are

> looking back at how Bill did not express his pain normally. It seems, IMHO

> perhaps the opposite of the pain meds that did not work on him. If you

have pain all

> of the time and cannot explain it ... who knows, you give up.

>

> If it was EDS that caused him not to express himself that skin test would

> help. Or, I am aware it could be too late for that. Reason for all of this

is

> Bill's Military pension is still pending. With him having brain cancer

that is

> reason he could not complete the application forms. Also, many of his old

> medical records seem to show he had pain, or was super sensitive to pain

with the

> doctors dismissing him. Bill once said to me he gave up because no one

believed

> him. Caro

>

>

>

[Guest guest]

Caro

My son had an autopsy done just after he died and his DNA was sent to

Seattle in November so that was about 6 months after the autopsy. They did

use a tissue sample from the liver. As long as something is saved they can

use it and as has posted he did test positive for VEDS. Hope this

helps.

Betty

Need EDS skin test after fact ... Autopsy

> Hi all,

>

> I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

> our last chance. I can just see the SSD and VA pension people asking me

> questions. I will only know what is in the final records. A few of his

doctors are

> looking back at how Bill did not express his pain normally. It seems, IMHO

> perhaps the opposite of the pain meds that did not work on him. If you

have pain all

> of the time and cannot explain it ... who knows, you give up.

>

> If it was EDS that caused him not to express himself that skin test would

> help. Or, I am aware it could be too late for that. Reason for all of this

is

> Bill's Military pension is still pending. With him having brain cancer

that is

> reason he could not complete the application forms. Also, many of his old

> medical records seem to show he had pain, or was super sensitive to pain

with the

> doctors dismissing him. Bill once said to me he gave up because no one

believed

> him. Caro

>

>

>

[Guest guest]

Caro

My son had an autopsy done just after he died and his DNA was sent to

Seattle in November so that was about 6 months after the autopsy. They did

use a tissue sample from the liver. As long as something is saved they can

use it and as has posted he did test positive for VEDS. Hope this

helps.

Betty

Need EDS skin test after fact ... Autopsy

> Hi all,

>

> I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

> our last chance. I can just see the SSD and VA pension people asking me

> questions. I will only know what is in the final records. A few of his

doctors are

> looking back at how Bill did not express his pain normally. It seems, IMHO

> perhaps the opposite of the pain meds that did not work on him. If you

have pain all

> of the time and cannot explain it ... who knows, you give up.

>

> If it was EDS that caused him not to express himself that skin test would

> help. Or, I am aware it could be too late for that. Reason for all of this

is

> Bill's Military pension is still pending. With him having brain cancer

that is

> reason he could not complete the application forms. Also, many of his old

> medical records seem to show he had pain, or was super sensitive to pain

with the

> doctors dismissing him. Bill once said to me he gave up because no one

believed

> him. Caro

>

>

>

[Guest guest]

Caro,

Yes, it is possible to have the skin cells collected during the

autopsy. This was done when my uncle died unexpectedly during heart

by-pass surgery. The cells were sent to Dr. Byers and it was confirmed that

he did have vascular EDS (or then it was called type IV.) Hope this helps .

kindest regards,

Joyce

At 06:48 PM 07/04/2004, you wrote:

>Hi all,

>

>I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

>our last chance. I can just see the SSD and VA pension people asking me

>questions. I will only know what is in th

[Guest guest]

Caro,

Yes, it is possible to have the skin cells collected during the

autopsy. This was done when my uncle died unexpectedly during heart

by-pass surgery. The cells were sent to Dr. Byers and it was confirmed that

he did have vascular EDS (or then it was called type IV.) Hope this helps .

kindest regards,

Joyce

At 06:48 PM 07/04/2004, you wrote:

>Hi all,

>

>I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

>our last chance. I can just see the SSD and VA pension people asking me

>questions. I will only know what is in th

[Guest guest]

I don't know why they couldn't, but I do know the cells need to be grown for

quite some time. And grown in a certain fashion. You would want the

doctor to contact the guy in Seattle to see exactly what procedure to use.

Love Lana

Need EDS skin test after fact ... Autopsy

Hi all,

I wonder, can the doctors doing an autopsy do a skin test. Seems to me its

our last chance. I can just see the SSD and VA pension people asking me

questions. I will only know what is in the final records. A few of his

doctors are

looking back at how Bill did not express his pain normally. It seems, IMHO

perhaps the opposite of the pain meds that did not work on him. If you have

pain all

of the time and cannot explain it ... who knows, you give up.

If it was EDS that caused him not to express himself that skin test would

help. Or, I am aware it could be too late for that. Reason for all of this

is

Bill's Military pension is still pending. With him having brain cancer that

is

reason he could not complete the application forms. Also, many of his old

medical records seem to show he had pain, or was super sensitive to pain

with the

doctors dismissing him. Bill once said to me he gave up because no one

believed

him. Caro

[Guest guest]

Dr. Byers in Seattle does the testing - I couldn't remember his name,

and just after I hit send, it came to me - of course!

Love Lana

[Guest guest]

Well with all I learned about EDS symptoms, his Mom has more than Bill did.

So in the end, she can be tested. Caro

[Guest guest]

Well with all I learned about EDS symptoms, his Mom has more than Bill did.

So in the end, she can be tested. Caro