Re: To Lorra

[Guest guest]

Lorra, then you are lucky. It is so important to have a good support system. I am lucky too. Between neighbors, friends and family I get lots of support. But not many people are as lucky as we are.

Hope you start getting relief from the pain pretty soon.

Mojo

Input > Hi everyone!!! It's Lorra again. I have had SLE for 12 yrs now and > after the first 3 to 4 yrs my lupus was for the most part calm. Now > it's decided to pay me a nasty visit. I was on 60mg of pred. for a > long time and finally finally came off and havent had the need for > it till now. First it was 5mg then 10mg the 7 /12 then 10 and 20mg > and now today its 40mg. Plus He doubled my bp meds and my zoloft too > 200 a day and stronger pain meds. It has just thrown me for a loop > LOL. So I had a hissy fit on the way home and on the way to work and > at work for a while. So now i am getting used to the idea. I dont > like it but gettting used to it. LOL I have gone through menapause > and I am having hot flashs, not sleeping, short of breath, swelling, > and frickin moody. Any suggestions on how too get me through this > mess???? HELP!!!!!!!!!!!!!! I go back to the doc on the 17th too > see if any of this is working. Anyway talk to ya soon. > > Love Lorra Lupie > > > > "The LUPIES Store" Come check out our store... > http://www.cafepress.com/thelupies > > "The LUPIES Web Page" > http://www.itzarion.com/lupusgroup.html > > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies >

[Guest guest]

Well, with 60 mg prednisone you'll be in the dump for a while. Sorry to say this, but unfortunately that's what this miracle drug gives you. I was on long term high dosages twice. First, many years ago when I was diagnosed I was on 60 mg for about 3 months and stayed on prednisone for about 6 years before I could get off it completely. Then a year and a half ago I was on 40mg for 6 months, and the only reason I was on 40 not 60 was because the doctor knew I would have a nervous break down if I was on 60. It took me over a year, but I was able to get off it in January.

Good luck Lorra. I know tear jerkers like Steel Magnolias really helped. My hubby knew if I was watching something about health problems and crying that meant I needed to let it out and he left me alone. Gross Anatomy is another one. Both for me where very close to home. In Steel Magnolias it's the kidney thing that I was so close to, in Gross Anatomy it's lupus in general.

We're here to hear you out whenever you feel like whining. We understand best what you are going through.

Mojo

Input > Hi everyone!!! It's Lorra again. I have had SLE for 12 yrs now and > after the first 3 to 4 yrs my lupus was for the most part calm. Now > it's decided to pay me a nasty visit. I was on 60mg of pred. for a > long time and finally finally came off and havent had the need for > it till now. First it was 5mg then 10mg the 7 /12 then 10 and 20mg > and now today its 40mg. Plus He doubled my bp meds and my zoloft too > 200 a day and stronger pain meds. It has just thrown me for a loop > LOL. So I had a hissy fit on the way home and on the way to work and > at work for a while. So now i am getting used to the idea. I dont > like it but gettting used to it. LOL I have gone through menapause > and I am having hot flashs, not sleeping, short of breath, swelling, > and frickin moody. Any suggestions on how too get me through this > mess???? HELP!!!!!!!!!!!!!! I go back to the doc on the 17th too > see if any of this is working. Anyway talk to ya soon. > > Love Lorra Lupie > > > > "The LUPIES Store" Come check out our store... > http://www.cafepress.com/thelupies > > "The LUPIES Web Page" > http://www.itzarion.com/lupusgroup.html > > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies >