Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 I have been trying to find the “perfect” dosage of DMSA and ALA to not get reactions with my daughter. If I dose her every three hours faithfully, including nightime, I minimize the self-injurious behaviors, but if we do a four hour dose, we always get a huge blow up at the end of the fourth hour, except if it’s at night, and then we have behaviors first thing in the morning, even if she’s had a dose of chelation. And we always have a huge blow- up after the last dose, and sometimes another blow-up later in the day. I am mixing the DMSA and ALA in water, then giving it to her with a syringe. Her dosage now is 1/8 mg. ALA per lb., ¼ mg. DMSA per lb. Two weekends ago I tried taper off and it seemed to help a lot. The last half of the last day I added more water to the last batch I mixed so she was actually getting half of the above dosage, and we didn’t get any SIBs. Also, we just got tests back that show her metallathionine function is normal, something our DAN doctor said he hadn’t seen in any autistic child he had tested thus far, but I still feel she has mercury in her brain because of exposure in-utero and excessive exposure when I had my amalgam fillings out when I was still breastfeeding her, so that’s why I am using ALA with DMSA. Urine testing with DMSA alone showed very little in metals coming out. I am planning on doing hair analysis and urine after we do two more rounds. Thanks. Marina --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.726 / Virus Database: 481 - Release Date: 7/22/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Marina, I don't know if this will be any help, but we do just DMSA for the last two doses to " mop up " remaining mercury. Barb [ ] Tapering off dosage to lessen reaction---Andy, Moria, or anyone!!! I have been trying to find the " perfect " dosage of DMSA and ALA to not get reactions with my daughter. If I dose her every three hours faithfully, including nightime, I minimize the self-injurious behaviors, but if we do a four hour dose, we always get a huge blow up at the end of the fourth hour, except if it's at night, and then we have behaviors first thing in the morning, even if she's had a dose of chelation. And we always have a huge blow- up after the last dose, and sometimes another blow-up later in the day. I am mixing the DMSA and ALA in water, then giving it to her with a syringe. Her dosage now is 1/8 mg. ALA per lb., ¼ mg. DMSA per lb. Two weekends ago I tried taper off and it seemed to help a lot. The last half of the last day I added more water to the last batch I mixed so she was actually getting half of the above dosage, and we didn't get any SIBs. Also, we just got tests back that show her metallathionine function is normal, something our DAN doctor said he hadn't seen in any autistic child he had tested thus far, but I still feel she has mercury in her brain because of exposure in-utero and excessive exposure when I had my amalgam fillings out when I was still breastfeeding her, so that's why I am using ALA with DMSA. Urine testing with DMSA alone showed very little in metals coming out. I am planning on doing hair analysis and urine after we do two more rounds. Thanks. Marina --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.726 / Virus Database: 481 - Release Date: 7/22/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 We have had better results increasing the ALA when our son did not do that well on it instead of reducing the dosage. My theory is the higher dose keeps the mercury from re-settling and gets it out of the body. Your dose is small, so you can try doubling that for your next cycle. > I have been trying to find the " perfect " dosage of DMSA and ALA to not > get reactions with > my daughter. If I dose her every three hours faithfully, including > nightime, I minimize the > self-injurious behaviors, but if we do a four hour dose, we always get a > huge blow up > at the end of the fourth hour, except if it's at night, and then we have > behaviors first thing > in the morning, even if she's had a dose of chelation. And we always > have a huge blow- > up after the last dose, and sometimes another blow-up later in the day. > > > I am mixing the DMSA and ALA in water, then giving it to her with a > syringe. Her dosage > now is 1/8 mg. ALA per lb., ¼ mg. DMSA per lb. Two weekends ago I > tried taper off > and it seemed to help a lot. The last half of the last day I added more > water to the last > batch I mixed so she was actually getting half of the above dosage, and > we didn't get > any SIBs. > > Also, we just got tests back that show her metallathionine function is > normal, something > our DAN doctor said he hadn't seen in any autistic child he had tested > thus far, but I still > feel she has mercury in her brain because of exposure in-utero and > excessive exposure > when I had my amalgam fillings out when I was still breastfeeding her, > so that's why > I am using ALA with DMSA. Urine testing with DMSA alone showed very > little in metals > coming out. > > I am planning on doing hair analysis and urine after we do two more > rounds. > > Thanks. > > Marina > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.726 / Virus Database: 481 - Release Date: 7/22/2004 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 > I have been trying to find the " perfect " dosage of DMSA and ALA to not > get reactions with > my daughter. If I dose her every three hours faithfully, including > nightime, I minimize the > self-injurious behaviors, but if we do a four hour dose, we always get a > huge blow up > at the end of the fourth hour, except if it's at night, and then we have > behaviors first thing > in the morning, I would suggest that you try doing THREE hours at night if you can find any way to do so (and yes I do realize why this may be a lot harder). Seems to me your little one is sensitive to the " late " dose. (4 hours at night actually IS a " late " dose.) > even if she's had a dose of chelation. And we always > have a huge blow- > up after the last dose, and sometimes another blow-up later in the day. > > > I am mixing the DMSA and ALA in water, then giving it to her with a > syringe. Her dosage > now is 1/8 mg. ALA per lb., ¼ mg. DMSA per lb. Two weekends ago I > tried taper off > and it seemed to help a lot. The last half of the last day I added more > water to the last > batch I mixed so she was actually getting half of the above dosage, and > we didn't get > any SIBs. good-- seems like a good thing to continue with this! (or use DMSA only for last dose or two, as Barb suggests.....) > > Also, we just got tests back that show her metallathionine function is > normal, something > our DAN doctor said he hadn't seen in any autistic child he had tested > thus far, but I still > feel she has mercury in her brain because of exposure in-utero and > excessive exposure > when I had my amalgam fillings out when I was still breastfeeding her, > so that's why > I am using ALA with DMSA. I think it is likely she is mercury toxic because she is having such clear reaction to chelation. > Urine testing with DMSA alone showed very > little in metals > coming out. > > I am planning on doing hair analysis and urine after we do two more > rounds. okay, but it generally doesn't seem to tell much about mercury. Mineral transport being normal or abnormal (either way) is not very meaningful if you have been chelating for a while. Although the " other " toxic metals can be useful. good wishes, Moria Quote Link to comment Share on other sites More sharing options...
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