Re: Re: If chelating was answer - why not spread like wildfire?- WASNT THE ANSWER HERE

August 4, 2004

Unfortunately, my son is not one that was helped with chelation. I believe we

did that for about 3 years...nothing much to note. I am at a loss about that

one because he did show higher levels of some metals....dont know...dont think I

ever will.

As a matter of fact, nothing really has helped my son. No specific therapy has

shown much of anything in him to warrant staying on it. His schooling just

about the only thing. This has made me now extremely choosy about what I give

him. I am not just willing to try things anymore and pump him full of

stuff..we've been there and done that with nothing to show for it.

As much as these kids are called mysteries, my son has always been called a

mystery in comparison to other children under his particular doctor's care,

because they are helped by different things and my son has not been helped by

anything.

As of late we are trying the vitamin B6 and folic acid shots for a specific gene

mutation that affects cysteine...this is something that I see small improvements

in him with, especially helping his mood. Maybe once or twice a week with no

pattern to it, he would have an unexplained crying fit that lasted about 20

minutes or so and would hold his belly. This was believed to be from stomach

pain from colitis. The crying has stopped and his stools are more formed and

less stinky. These shots too I think have helped with the understanding of

toilet training and he is improving nicely with this one step at a time.

Hopefully, we are onto something with this one.

Its hard to explain, and I dont mean to offend by saying this, but my son is as

much of a normal autistic kid as a child could be. Its like he's a typical kid

but autistic, I dont know how to explain. He's a well behaved boy, not self

injurious and never has been, smiling and in a good mood mostly all the time,

yet definitely has an opinion about what he wants, listens to commands and can

do a few things for himself. You smile at him, he smiles back. He's calm and

sits and eats nicely, just an absolute doll and a beautiful boy. He's worked

hard to be here.

However Sal is categorized moderate autism and is nonverbal and not toilet

trained.

Anyone else have this experience with chelation or the gene mutation for

cysteine breakdown?

Mom to Salvatore-8

August 4, 2004

My goodness...if my son spoke about " anything " let alone the stuff you

said..forget it...I would fall to the ground. That's so exciting. I hope each

and everyday of his life that this can happen for him. I even dreamed the other

night that he started talking, I heard his voice and everything. It was raspy.

He gradually started talking but by a few days he was almost talking normally.

What a wonderful dream.

The doctor was giving Sal 1 mg per week of the methyl stuff (that name it too

long). Then I started to give it to him at home 2x per week to equal that full

1 mg dose. I did not like this and found it for some reason to be less

effective. I changed it back to 1 mg., it seems to work better for some reason.

Chelating as I said just didnt help Sal. When I first started the shots I heard

Sal actually say a few words, which he hasnt done in a LONG time. Right now he

is off the meds just to see if they really helped him. He will be returning

back on them within the next week or so.

About Dr. Vinitsky, I dont know about this person. Can you fill me in? Thanks.

________________________________________________________

CHristine,

Our son reacted just 1 hour after the very first administration of

ALA and DMSA. He began to talk about his grandfather who had died

about 1 year prior. This was so unusual that my husband and I were

stunned. Days following showed him with increased language -

noticing things that he had never noticed and commented on before,

and playing with toys that had been untouched for years. This was

the same for high dosage/pulse prednisone....like a switch that

turned on language and caused him to be very cooperative.

Gut bugs and inability to get a prescription for further Chemet

(DMSA) stopped the chelation after 1 1/2 years and prednisone was

stopped after approx 1 year because of it's terrible side effects.

We have been doing methycobalamin injections (with very little other

methylation vitamin additions) twice a week. We haven't seen much

improvement except on the day he receives the injection. He becomes

happier and talks a little more. We wonder if it was given every

other day - would it be more effective?....Do you see this? Our son

gets 0.18ML of methycob. every 3 days (filled by Hopewell Pharmacy).

I also am evaluating the method used by Dr. Vinitsky who uses 1 drop

of folic acid (5mg/drop Scientific Botanicals) dripped on 1 tablet

of 2 mg hydroxocobalamin (Perque) and placed under the tongue till

dissolved. Do you know which method is working for autistic

children????? Thanks! - Aly

August 4, 2004

,

What other things have you tried for your son? I am not able to remember any

introduction you did about your son and what level of autism he is at. I had

great success with some other things if you might be interested let me know.

Bonnie , Luke and s

mom.casti71@... wrote: