Re: Should the shoes stay or go?

[Guest guest]

>Zoe's sleeping habits lately are taking a toll on all of us. She has a hard

>time getting to sleep then wakes a few times a night. She gave up naps

>awhile ago and gets a lot of physical exercise, so she usually sleeps like a

>stone. The shoes are too small and I'm afraid the 14 " bar is probably too

>small as well. I can still wedge her shoulders between the heels, but it's

>definitely cramping her shoulders. I'm assuming when we receive the size 9

>prototypes from Markell, they will make the space between the heels even

>smaller...

There's no bar longer than 14 " ? If not - someone needs to contact the mfr.

and have them make longer ones. Darbi is wearing the 12 " bar now and she's

only 13mo old.

>As I mentioned before, Zoe is a large 3 year old. Her regular shoe size is 9

>and her clothing size is 5/6. She is 36 pounds and 42 inches standing. She

>is one of those kids who has some " sensory issues " , so she is very

>sensitive.

boys that age will wear a larger shoe anyway, so the sizes need to go up

considerably. My 4 year old who has much smaller feet than his brother is

wearing a 10-1/2 now. He just turned 4. Wore a 9-1/2 or 10 his whole 3rd

year (depending on the shoe). His big brother, in contrast wore a 9 at 2

IIRC. Yes, he does have big feet. Wearing a 3 at not quite 6 right

now. So the boys are going to need even larger shoes to make it to 4 or

5. Now a CF baby might have smaller feet, but Darbi is kind of following

in Merek's footsteps with average to large feet. She's wearing a 4 now at

13mo. Her Markell shoes are too small 2's right now.

Some children are going to be larger. The masses now doing this will bring

more of these babies/children out needing different equipment.

>Anyway, what would you do if you were me?

I dunno, print some stuff off for him? Email Dr. Ponseti? Maybe change

her sleeping arrangement? Is there something at night that particularly

bothers her? Is it tangling? That seems to me to be the worst part

sleeping like that. I'd go nuts.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

>Zoe's sleeping habits lately are taking a toll on all of us. She has a hard

>time getting to sleep then wakes a few times a night. She gave up naps

>awhile ago and gets a lot of physical exercise, so she usually sleeps like a

>stone. The shoes are too small and I'm afraid the 14 " bar is probably too

>small as well. I can still wedge her shoulders between the heels, but it's

>definitely cramping her shoulders. I'm assuming when we receive the size 9

>prototypes from Markell, they will make the space between the heels even

>smaller...

There's no bar longer than 14 " ? If not - someone needs to contact the mfr.

and have them make longer ones. Darbi is wearing the 12 " bar now and she's

only 13mo old.

>As I mentioned before, Zoe is a large 3 year old. Her regular shoe size is 9

>and her clothing size is 5/6. She is 36 pounds and 42 inches standing. She

>is one of those kids who has some " sensory issues " , so she is very

>sensitive.

boys that age will wear a larger shoe anyway, so the sizes need to go up

considerably. My 4 year old who has much smaller feet than his brother is

wearing a 10-1/2 now. He just turned 4. Wore a 9-1/2 or 10 his whole 3rd

year (depending on the shoe). His big brother, in contrast wore a 9 at 2

IIRC. Yes, he does have big feet. Wearing a 3 at not quite 6 right

now. So the boys are going to need even larger shoes to make it to 4 or

5. Now a CF baby might have smaller feet, but Darbi is kind of following

in Merek's footsteps with average to large feet. She's wearing a 4 now at

13mo. Her Markell shoes are too small 2's right now.

Some children are going to be larger. The masses now doing this will bring

more of these babies/children out needing different equipment.

>Anyway, what would you do if you were me?

I dunno, print some stuff off for him? Email Dr. Ponseti? Maybe change

her sleeping arrangement? Is there something at night that particularly

bothers her? Is it tangling? That seems to me to be the worst part

sleeping like that. I'd go nuts.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

Joanne

We had to get a larger pair of shoes. wore his until he was three and

three months. He is now three months with out his shoes and I am wondering if

we should have gotten another pair of shoes. He had very severe bcf.

The sleeping thing was bad for us too. Hang in there. I work full time and to

not get sleep stunk. My friends who had kids without the FAB would tell me all

kinds of things to do, but they really didn't know. It wasn't the same. What

finally worked for us was to bring him to bed with us. I got sleep and so did

. Dad was not thrilled especially when he would get kicked. Ouch! I

would tell myself that is was only for a short period and that seemed to help.

Hang in there you are almost at the finish line!

Tonya and

San Diego, CA

bcf

Should the shoes stay or go?

I just e-mailed Dr. Herzenberg to ask him to clarify his recommendations

about when to discontinue the FAB. We had a checkup a month before Zoe's

third birthday in March. At that time, he said if she wasn't tolerating the

FAB or if the size 8 shoes became too small, we could stop using it and to

come back in 6 MONTHS! I've asked if we could come back sooner...

Well, my husband is ready to pitch the FAB. I've been holding on for dear

life. (I made the mistake of telling him that she should probably wear them

until she's four...

Zoe's sleeping habits lately are taking a toll on all of us. She has a hard

time getting to sleep then wakes a few times a night. She gave up naps

awhile ago and gets a lot of physical exercise, so she usually sleeps like a

stone. The shoes are too small and I'm afraid the 14 " bar is probably too

small as well. I can still wedge her shoulders between the heels, but it's

definitely cramping her shoulders. I'm assuming when we receive the size 9

prototypes from Markell, they will make the space between the heels even

smaller...

As I mentioned before, Zoe is a large 3 year old. Her regular shoe size is 9

and her clothing size is 5/6. She is 36 pounds and 42 inches standing. She

is one of those kids who has some " sensory issues " , so she is very

sensitive.

Anyway, what would you do if you were me?

Thanks in advance for any suggestions...

Joanne W. mom to Zoe (3-25-01, right clubfoot)

PS I would DEFINITELY not discontinue using the FAB before 3 years

old!!!!!!!!!!!!!!

_________________________________________________________________

Check out the coupons and bargains on MSN Offers! http://youroffers.msn.com

[Guest guest]

Joanne

We had to get a larger pair of shoes. wore his until he was three and

three months. He is now three months with out his shoes and I am wondering if

we should have gotten another pair of shoes. He had very severe bcf.

The sleeping thing was bad for us too. Hang in there. I work full time and to

not get sleep stunk. My friends who had kids without the FAB would tell me all

kinds of things to do, but they really didn't know. It wasn't the same. What

finally worked for us was to bring him to bed with us. I got sleep and so did

. Dad was not thrilled especially when he would get kicked. Ouch! I

would tell myself that is was only for a short period and that seemed to help.

Hang in there you are almost at the finish line!

Tonya and

San Diego, CA

bcf

Should the shoes stay or go?

I just e-mailed Dr. Herzenberg to ask him to clarify his recommendations

about when to discontinue the FAB. We had a checkup a month before Zoe's

third birthday in March. At that time, he said if she wasn't tolerating the

FAB or if the size 8 shoes became too small, we could stop using it and to

come back in 6 MONTHS! I've asked if we could come back sooner...

Well, my husband is ready to pitch the FAB. I've been holding on for dear

life. (I made the mistake of telling him that she should probably wear them

until she's four...

Zoe's sleeping habits lately are taking a toll on all of us. She has a hard

time getting to sleep then wakes a few times a night. She gave up naps

awhile ago and gets a lot of physical exercise, so she usually sleeps like a

stone. The shoes are too small and I'm afraid the 14 " bar is probably too

small as well. I can still wedge her shoulders between the heels, but it's

definitely cramping her shoulders. I'm assuming when we receive the size 9

prototypes from Markell, they will make the space between the heels even

smaller...

As I mentioned before, Zoe is a large 3 year old. Her regular shoe size is 9

and her clothing size is 5/6. She is 36 pounds and 42 inches standing. She

is one of those kids who has some " sensory issues " , so she is very

sensitive.

Anyway, what would you do if you were me?

Thanks in advance for any suggestions...

Joanne W. mom to Zoe (3-25-01, right clubfoot)

PS I would DEFINITELY not discontinue using the FAB before 3 years

old!!!!!!!!!!!!!!

_________________________________________________________________

Check out the coupons and bargains on MSN Offers! http://youroffers.msn.com

[Guest guest]

Joanne et al.

There are bars longer than 14 inches. The red bar (non-adjustable),

comes in 16 " and 18 " lengths. In addition, I could probably have

longer gold bars made, if and when the demand warrants it.

As for the heel seperation. I don't think the distance from center of

heel to center of heel will be any shorter going from size 8 to size

9. The additional length will extend forward toward the toes, not at

the back end.

Hope this helps!

Jay M.

[Guest guest]

Joanne et al.

There are bars longer than 14 inches. The red bar (non-adjustable),

comes in 16 " and 18 " lengths. In addition, I could probably have

longer gold bars made, if and when the demand warrants it.

As for the heel seperation. I don't think the distance from center of

heel to center of heel will be any shorter going from size 8 to size

9. The additional length will extend forward toward the toes, not at

the back end.

Hope this helps!

Jay M.