Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Nice post, Crystal, and glad you sent it! Nice to hear from you! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Nice post, Crystal, and glad you sent it! Nice to hear from you! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Nice post, Crystal, and glad you sent it! Nice to hear from you! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi Crystal, I appreciate your honesty here - this may be a difficult issue that many face and can't cope with, perhaps this might strike a chord and generate some helpful dialogue. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi Crystal, I appreciate your honesty here - this may be a difficult issue that many face and can't cope with, perhaps this might strike a chord and generate some helpful dialogue. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi Crystal, I appreciate your honesty here - this may be a difficult issue that many face and can't cope with, perhaps this might strike a chord and generate some helpful dialogue. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 In a message dated 3/19/04 12:17:02 AM Eastern Standard Time, caw1984@... writes: << Sorry this was so long but thanks for you time, >> Crystal, Sorry so late in replying but have not been on most of the weekend. What you described in your email is not a real abnormal, or unnatural reaction to chronic illness or no illness for that matter. Children are always looking for ways to get attention no matter what the avenue of getting it is. You should not feel so " bad " about using this ploy when you were a child. I bet if you surveyed a group of children with EDS they would confess to incidents like this where they use their EDS as a way to get attention. To be truthful, there probably is a large group of adults who do this too. There are many ploys that people with no illness use to get attention. Whoever this older person is that was your friend, she definitely does not understand children or EDS for that matter. Maybe writing her a letter explaining why this occurred and was in no way a " personal " thing might help. Maybe it is not worth your time and effort, only you can decide that for sure. Anyway, be assured we all understand about these kind of things here on the list. We understand that it was not meant to be dishonest, just a way for you to get attention. Perhaps developing a relationship with another person who has EDS would help. Instead of feeling bad about this, you could laugh at the different ways you used to get attention......LOL!!!!! Where are you from Crystal? Email me privately and maybe we can find someone who is close to you. For me, the relationships I have developed with others who have EDS are very important. Who better to understand what you are going through. Hugs, Sue Ginley Quote Link to comment Share on other sites More sharing options...
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