update, MM, Rhonda, &

[Guest guest]

Hey all,

Just wanted to drop a semi quick update for you all.

Had to go see orthopedic surgeon Tuesday for the

osteonecrosis in my right knee for more films. (I haven’t been able to

literally move my knee for hour’s different times during the week –

so we wanted to see if the osteonecrosis had gotten worse) Films didn’t

show much of the disease worsening but he did say that what I was experiencing

was from gas build up and such from the dead bone – He made it sound good

J Anyways he

said there was nothing he can do for it – that I am to continue to just

sit and wait for the knee to crumble so I can get a knee replacement.

HELLO!!!!!! That does not sit well with me – I love this surgeon to death

and he has known me since 97 before I got sick and he has seen me through

everything – He is even Mike’s surgeon for both his workers comp

accidents and knows our health history to a “T” anyways I made some

phone calls and I am going to see another Surgeon for his opinion over at

Strong Hosp in Aug. I haven’t had the nerve to tell my current surgeon –

I don’t want to upset him but I just want a 2nd opinion. If

this new surgeon says I have to sit and wait – well then I guess that is

what I will have to do – its just so damn painful – and I have

enough pain going on elsewhere to have to deal with more J I have to get

my films from this surgeon to take with me to the new one plus the last progress

report – so my current surgeon will know I am getting a 2nd opinion

L

So for the osteonecrosis I get to continue to use crutches

and/or the walker when the knee is acting up really bad, keep it elevated as

much as possible, and ice it as much as possible – oh yeah and to

continue to sit and wait. Grrrrr

Now I have been dealing with my dermatologist for 6 months

know on what he just says is eczema but I keep telling him the stuff he is

giving me isn’t not cutting it and this is more that just eczema well I

did some research and from the looks of it this is Psoriasis – it has

spread all over (elbows, knee’s, forearms, neck, scalp, and now my butt

cheeks) No comment from you Miss J Rheumy gave

me some samples of Elidel and I put it on some of the areas and it seems to

have helped some but not enough – I go to the derm tomorrow and I am not

going to be nice anymore to him – I don’t have the $$ to keep

throwing away for stupid scripts that don’t do jack shit!!!! He will do

something tomorrow and I will tell him that or I will take my itchy, scaly ass

elsewhere J

Hmmm well I continue to up my dosages of the Cellcept as rheumy

has written and am know on 750 mg. another week I go up 250 mg. more. I haven’t

noticed if it is working or not yet – can’t remember if this is one

of the meds that take several weeks to kick in – but I do know I so miss

my methotrexate!!!! (I hated the shots but damn that shit was a miracle drug

for me) I just hope this med works as well if not better and I so hope it helps

this eczema /psoriasis situation

because apparently the methotrexate was L

The fibro is kicking my butt lately but who knows if it’s

the fibro or a combination of health issues, but the weather hasn’t

helped. We have been having high humidity here and you southern states can keep

it J I still

prefer this weather over snow though J We just had a

thunderstorm come through and it has cooled down a lot since then – thank

god we have a cold front coming in J

Migraine hit me this evening so I am taking my migrahealth

to help alleviate it J So glad I got

this drug. You have to order it through a website but my neurologist who

specializes in migraines highly recommends it and I have been able to control

my migraines since starting it J

I know there are messages I needed to reply to on the board

but I can’t get to them right now – but should be able to tomorrow.

Welcome to all the new members. MM glad all went well with

the procedure yesterday. Just please take it easy, try not to stress, and be

careful…

Rhonda & – I go

to Dr. Pryhuber rheumatology assoc. heck I can’t remember their entire

name but it is he and Tammi Slotzhauer that have the practice but are not

taking any new patients – They are too far away from both of you anyways –

They are in Irondiquoite. Rhonda I suggest if you can getting into the place

where goes –

I have heard some good things about Dr. Condemi but would not give up my Rheumy

for the world – he is the bomb!!!!

Okay that’s it for now the knee is really killing me

now that I haven’t had it elevated for awhile – uggggg Will write

more tomorrow.

God bless you all and goodnight…

Hugs,

Deanna