Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi Ann my name is Carol. I am fairly new to the group but haven't posted for a while. Glad you were able to join the group. I'm sorry to hear you've had such a rough time but glad you were able to meet at least one rheumy who understood and listened to you. Reading your post made me think of a book I just read about Lupus written by Suzy Szasz. She is from back east and tells her story of living with lupus since she was ten. She talks about her experiences in the hospital and doctors who just wanted to poke and prodd her to learn more about the disease rather than help her. Her story is amazing and very helpful I thought. If you like to read the name of the book is Lupus Living with it " Why you don't have to be healthy to be happy " It was very easy reading and I really enjoyed it. I hope things continue to get better for you! Feel free to vent anytime! Carol- -- In LUPIES , " soteary122 " wrote: > HI!! I wanted to thank everyone for the wonderful emails i've > received so far. My name is Ann and i'm from RI. I'm a 23 yr. old > who's been dealing with SLE since i was 17. I was in remission for > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 i wanted to thank you for the book suggestion. I'll definitely check it out ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 i wanted to thank you for the book suggestion. I'll definitely check it out ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 i wanted to thank you for the book suggestion. I'll definitely check it out ann Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.