Re: To Robyn: Re: Update on me and question.

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Robyn, I have been seeing my Rhuemy for over a year and it has only been the last few weeks that I seem to be getting relief. I too am on Plaquenil and when she prescribed that she told me to take Prilosec every morning becase it was going to be hard on my stomache. If I run out of Prilosec and don't take it for a couple of days I get the world's greatest heartburn. (This was new to me as I have always had my dad's cast iron stomache.) I usually get at supply of the Prilosec from either my Rhuemy or my family doctor. They had a lot of samples and it saves me a ton of money as the Prilosec is expensive. You might ask for some samples and give it a try and see if it helps with your stomach problems.

barb

jrtrobyn wrote: Hi, this is Robyn, Have you experienced any side effects from the Avinza? I posted a few times that I had bad, bad intestinal cramps, nausea, etc from the Plaquenil. I hear it has helped others, but I don't know if I can trade the pain for the stomach problems. I was only diagnosed with Lupus a few months ago and I have not had a pain free day yet. I am grateful for the days with less pain. I know that the more I exert myself, the more pain I have. Fatigue turns to pain for me. Please tell me more about Avinza. Thanks so much, take care, Robyn> In a message dated 5/14/2004 1:29:28 PM US Mountain Standard Time, > katebird01@y... writes:> > > , I don't know about anyone else, but I never had pain free days for > a

few years and then a couple of months ago they started me on a new med > called Avinza. That keeps me pain free, not just the fibro and lupus, but also the > migraines I used to get. that's about it for me!> a > > > I don't post much but I read all the messages. I've been to my new rheumy > > a couple of times now and have been having tests, all results are not in yet. > > However, he told me on Monday that in addition to the lupus I have > > fibromyalgia. I am just beginning to learn about that diagnosis as it was not > > something I expected or knew anything about. Heck, after more than four years, I'm > > still learning about lupus.> > > > I see that y'all sometimes wish each other more pain free days and my > > question is do you really have pain free days? I don't know what

that feels like, > > I can't remember pain free days. I have days of more pain and less pain but > > can't imagine no pain. I sure hope to get some soon.> > > > I know that many of you have gone through very trying > > > >"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies __________________________________________________