Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Hello Serap and welcome do this group. I was 22 (I'm now almost 40) and just newlywed when diagnosed with Lupus Nephritis. My first three years were on the rocks and my kidneys were not doing well at all. My doctors told me I would have to think twice about pregnancy. Then I went into a long remission & 7 years after being diagnosed I had my first son, now 9 years old. I was on prednisone throughout the pregnancy, but had to get off imuran prior to getting pregnant. The pregnancy was considered high risk, but everything went ok, so the doctors agreed that if I continue in a remission period I can consider another pregnancy after some rest. 2.5 years later I gave birth to my second son, Kasper, now 7. During the pregnancy with him I was on very little medication, mostly on Lasix, due to fluid retention. I thought that was it. Actually, I started having some lupus issues and never even dreamed of having another child. I considered myself lucky to have two and we weren't planning on having more anyway. Well, fate had something else in store for us. When Kasper was almost 3, I found out I was pregnant and some months later I had another baby boy, now 3.5 years old. I was on more medication during that pregnancy and it wasn't an easy one, but everything turned out ok, and I'm a proud mother of 3 boys. It wasn't until about two years ago when things started going downhill for me again. I think I was given that nice long remission to be able to become a mother, more that I ever dreamed off. Each case is different, but if you are doing well and have doctors who will see you through, you may want to consider another pregnancy. There is no guarantee, but you don't get that even when healthy. Speak with your doctors, see what they tell you, consider the medication you are on and the steps you will need to take. Also, don't forget in most cases lupus pregnancies are high risk and there's more tests and more running around to be considered during the pregnancy. If you do decide to go ahead with it, please make sure your obgyn is a high risk specialist. If not, get yourself one. Good luck to you. Listen to your doctors, but also to your body and your heart. Mojo A newcomer > Hello everyone; > First of all, I would like to thank group moderators for their warm > welcome messages. My name is Serap, I am 32 and from Pittsburgh. I > was diagnosed with lupus a year ago. I am on methotraxate (10 mg > each week) since then. Although my disease is not too severe, I am > still scared of it. I have a 5 year old daughter, but I would like > to have one more. Does anybody have any experience pregnancy with > lupus? I am scared if my lupus worsens during pregnancy. Any > comment will be appreciated. > Thanks... > > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
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