Sleep study results was: NIH Update/

March 18, 2004

Hi ,

Thanks for asking. The sleep doc called me yesterday while I was inn the

middle of an Antique barn so I tried to make myself comfortable on one on their

antique sofas!! Some peoplle came to look at it so I kept moving around from

sofa to sofa!!

The doctor is very intellectual and a little hard to understand. From what I

could gather, I have something called ideopathic hypersomnia and evidentally a

pretty convincig case where I fell asleep on the average of 2 minutes of

getting into bed throughout the daytime naps. I think 5 minutes is the cutoff

for

narcalepsy. I couldn't understand his answer to my question of how this was

differennt or if it was different from narcolepsy. I started Provigil today and

see him again in 2 weeks. He didn't want me to wait to my appt. to start. He

said I needed to start immediately.

I was still tired today but I didn't fall asleep any or fall out of my chair

any!! PROGRESS!

Thanks for asking!

In a message dated 3/18/04 10:46:56 PM Eastern Standard Time,

ngsamuelson@... writes:

> ,

> It's me waiting for result's from NIH. How did your sleep study go?

> Sincerely, S.

March 18, 2004

I can't wait to go in for my appt to find out the result of my sleep study.

Have to wait till the 22nd.

Let me know how your meds work.

I'm so hoping they will get me on something so that I won't keep falling asleep

all day, and being so tired when I am awake. It'll be so wonderful!

Hugs,

March 18, 2004

I can't wait to go in for my appt to find out the result of my sleep study.

Have to wait till the 22nd.

Let me know how your meds work.

I'm so hoping they will get me on something so that I won't keep falling asleep

all day, and being so tired when I am awake. It'll be so wonderful!

Hugs,

March 18, 2004

, I'd be interested to know what the difference is also, when you find

out. I think Mike is still having issues. I'm glad you finally got an

answer though! Provigil didn't work for Mike - I hope it does for you. Let

me know how it's going, OK? You'll be in my thoughts.

Love Lana

March 18, 2004

, I'd be interested to know what the difference is also, when you find

out. I think Mike is still having issues. I'm glad you finally got an

answer though! Provigil didn't work for Mike - I hope it does for you. Let

me know how it's going, OK? You'll be in my thoughts.

Love Lana

March 19, 2004

Apparently idiopathic hypersomnia and narcolepsy are indeed

different, and the difference has to do with the number of sleep

onset REM periods... See the paragraph below from the Idiopathic

Hypersomnia website...

http://www.talkaboutsleep.com/sleepdisorders/idiopathic_hypersomnia.ht

m

Idiopathic hypersomnia - The term " idiopathic " means without known

cause. This type of hypersomnia is similar to narcolepsy in that the

individual is excessively sleepy, falls asleep at inappropriate

times, frequently takes naps, and sleeps at night for greater than 10

hours. In some cases of idiopathic hypersomnia, cataplexy and

hypnagogic hallucinations may be present and resemble the symptoms of

narcolepsy. However, in idiopathic hypersomnia there are insufficient

sleep onset REM periods to justify the diagnosis of narcolepsy.

Hope this helps,

---------------------------------------------------

> From what I could gather, I have something called ideopathic

hypersomnia and evidentally a pretty convincig case where I fell

asleep on the average of 2 minutes of getting into bed throughout the

daytime naps. I think 5 minutes is the cutoff for narcalepsy. I

couldn't understand his answer to my question of how this was

different or if it was different from narcolepsy.

March 19, 2004