Re: Re: Type X?!?

March 11, 2004

Well, sounds to me like... There is a bleeding problem. The Petechiae are little

red blood like spots that appear on the skin. Striae distensae, Striae are

stretch marks, I don't know what distensae is. I read on another site that they

have extremely soft skin, thin skin and very stretchy. I couldn't understand

much of it either. Cindylouwho

From:

Sent: Thursday, March 11, 2004 9:25 PM

Subject: Re: Type X?!?

I read it and didn't understand a single word of it!! :-)

March 12, 2004

> This further suggests the dr mixed up the types in his head, because

It wouldn't be the first time this has happened.

I am going to try to look up some info on type X for you later today if I

have a chance. I am really not familiar with this, other than it is no

longer considered part of the current EDS nosology and was only described in

one family (Arneson et al, 1980, Steinmann et al 1993). Your best starting

point would be to look up these two authors and years, if you can.

My personal suspicion is your doc was using outdated data, but I could be

wrong.

Okay, gonna go make some coffee and see if I can shake the fuzziness outta

my head. TGIF

-Barb

March 12, 2004

Re: Type X?!?

At least I now know for sure that I

have some type of EDS and I'm not a hypochondriac like some people

have suggested (and I can feel like an official member of the group

now).

Hi . My daughter and I have EDS but we have symptoms from

several types so we are called a variant of EDS. I have mitral valve prolapse,

some hypermobility of the joints but not the to extent of a true HEDS type, easy

bruising, skin tears, flat feet, depressed sternum, kyphosis and

lordosis....plus a lot of other things too that are from EDS....

Bonnie

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