Re: Damb Shoulder - Slings

[Guest guest]

i am at a point where being put in a cast to my waist would be better

than what i have now (shoulder spica cast). this thing is almost

usless. remembering it is 39C today that is just over 102F (VERY HOT)

and has been in mid to high 30's for days <eek> and i would jump at a

cast from neck to waist gices you some idea of how much this is

hurting etc.

as it is Sunday afternoon now and i am hurting MORE i think more

tests will be needed. i see my osteo again on Thursday as well.

Sharon :-/

> I completely agree with you about it being difficult to get

a

> proper fit in the immobilaser slings. I have one for when my

shoulder

> dislocates and find i can still move my arm and the sling ends up

> slipping down too as I'm only tiny - I'm 5ft, weigh 38kg, have a

> 20inch waist and you could play the xylophone on my ribs! (I have

> terrible trouble keeping weight and muscle tone, but that's another

> issue)

>

> Sharon, I'm hoping to get something more subsyntial and immobilsing

> form my OS when I see him next as I'm still subluxing in the

current

> one. You might be as well asking your GP or a PT about a more

> immobilising splint such as the ones Rhea has been looking into for

> her shoulder. I'll let you know if Mac has any suggestions for mine

> though too.

>

> An MRI might not be a bad idea of it still giving you trouble after

> the weekend Darl. I actually have my shoulder MRI on Tuesday (they

> couldn't do an arthrogram because of my Iondine allergy) so I'm

> keeping everything crossed thta by some miracle he'll have some

idea

> of how to stabilse it when I see him too. Here's hoping!

>

> Take care and know I'm thinking of you and cringing at how painful

> these shoulders of ours can be!

>

> Love and hugs...Jo

> xxx

[Guest guest]

Oh Sharon I " m so sorry to hear of your shoulder trauma! Owch for

sure!!! :-X :'-C

I think I may have found a good shoulder brace for my subluxations

but I haven't actually recieved it in the mail yet! It's suppose to

pull the upper arm and hold the head of the upper arm bone in the

shoulder socket. And with the way the brace is designed your suppose

to have a decent amount of ROM. I think this brace may be good for

me for preventing subluxations. I'll let you know how effective it

is as soon as I get it though. I'll put down a few links with

different photos of the brace as well as the descriptions for it and

you can see what you think. I found a site that sells it for $38 US

(some of the sites list it as high as $60US) and will gladly pass it

on if you want.

http://ecom1.sammonspreston.com/sammons/hemiShoulder.html

http://www.wisdomking.com/product18683c357.html

http://www.ketteringsurgical.com/upperlimb/shoulder/hsiinfo.htm

The following URL is to the company I purchased mine from. Shipping

is a tad slow but I " m blaming that on the x-mas holidays.

http://www.alimed.com/product_detail.cfm?

VMID=9 & CategoryID=302 & FamilySKU=51%2D050

And Jo, maybe this brace would be an option for you :-S ??? It comes

in an x-tra small size of 9 inches around the biggest part of the

upper arm. Might still be too big for you... :-/ I'll let you both

know if I find it any help with my shoulder subluxations.

Hope this helps!

BOOOO shoulders are the pits >:-X

-Rhea

[Guest guest]

Just thought I'd add a bit to my last comment on 's shoulder.

After her surgery, the dr came out and told us that he couldn't get her arm

lined up perfectly, and that she will never have her full range of motion back.

(Which made me pretty mad - I thought he should have tried harder. I also think

he should have pinned it when it first happened! But, he let her linger in pain

for 2 weeks, and then only did the surgery after it had moved) Oh, that was

maddening!

Well, she hasn't been able to raise her arm straight up since. I'd say maybe

130 degrees. (I think that's right - not good a math. Maybe Mike can verify

this)

When Mike saw her, he worked on her shoulder for about 10 minutes.

almost immediately said " oh, this feels weird " . Things were moving around in

there, and Mike was only holding some points.

Right afterwards, she could raise it almost completely, and still can. Now, it

seems, he will have to work on her elbow, which seems to be restricting some of

her movement.

But, it was amazing, because after 10 minutes with Mike, she is able to move it

better than ever since the accident, even though the orthopedic surgeon said she

never would get all that motion back.

Re: Damb Shoulder - Slings

I completely agree with you about it being difficult to get a

proper fit in the immobilaser slings. I have one for when my shoulder

dislocates and find i can still move my arm and the sling ends up

slipping down too as I'm only tiny - I'm 5ft, weigh 38kg, have a

20inch waist and you could play the xylophone on my ribs! (I have

terrible trouble keeping weight and muscle tone, but that's another

issue)

Sharon, I'm hoping to get something more subsyntial and immobilsing

form my OS when I see him next as I'm still subluxing in the current

one. You might be as well asking your GP or a PT about a more

immobilising splint such as the ones Rhea has been looking into for

her shoulder. I'll let you know if Mac has any suggestions for mine

though too.

An MRI might not be a bad idea of it still giving you trouble after

the weekend Darl. I actually have my shoulder MRI on Tuesday (they

couldn't do an arthrogram because of my Iondine allergy) so I'm

keeping everything crossed thta by some miracle he'll have some idea

of how to stabilse it when I see him too. Here's hoping!

Take care and know I'm thinking of you and cringing at how painful

these shoulders of ours can be!

Love and hugs...Jo

xxx

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

[Guest guest]

Just thought I'd add a bit to my last comment on 's shoulder.

After her surgery, the dr came out and told us that he couldn't get her arm

lined up perfectly, and that she will never have her full range of motion back.

(Which made me pretty mad - I thought he should have tried harder. I also think

he should have pinned it when it first happened! But, he let her linger in pain

for 2 weeks, and then only did the surgery after it had moved) Oh, that was

maddening!

Well, she hasn't been able to raise her arm straight up since. I'd say maybe

130 degrees. (I think that's right - not good a math. Maybe Mike can verify

this)

When Mike saw her, he worked on her shoulder for about 10 minutes.

almost immediately said " oh, this feels weird " . Things were moving around in

there, and Mike was only holding some points.

Right afterwards, she could raise it almost completely, and still can. Now, it

seems, he will have to work on her elbow, which seems to be restricting some of

her movement.

But, it was amazing, because after 10 minutes with Mike, she is able to move it

better than ever since the accident, even though the orthopedic surgeon said she

never would get all that motion back.

Re: Damb Shoulder - Slings

I completely agree with you about it being difficult to get a

proper fit in the immobilaser slings. I have one for when my shoulder

dislocates and find i can still move my arm and the sling ends up

slipping down too as I'm only tiny - I'm 5ft, weigh 38kg, have a

20inch waist and you could play the xylophone on my ribs! (I have

terrible trouble keeping weight and muscle tone, but that's another

issue)

Sharon, I'm hoping to get something more subsyntial and immobilsing

form my OS when I see him next as I'm still subluxing in the current

one. You might be as well asking your GP or a PT about a more

immobilising splint such as the ones Rhea has been looking into for

her shoulder. I'll let you know if Mac has any suggestions for mine

though too.

An MRI might not be a bad idea of it still giving you trouble after

the weekend Darl. I actually have my shoulder MRI on Tuesday (they

couldn't do an arthrogram because of my Iondine allergy) so I'm

keeping everything crossed thta by some miracle he'll have some idea

of how to stabilse it when I see him too. Here's hoping!

Take care and know I'm thinking of you and cringing at how painful

these shoulders of ours can be!

Love and hugs...Jo

xxx

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

[Guest guest]

What i need now is something for the acute phase. i have a brace

(orthomerica highland shoulder sling) but with my arm in such pain

and me pretty much unable to move my shoulder, i need something now

that immobilises me better than the silly normal pouch sling

immobiliser.

Thanx Rhea my friend i will look into the brace though.

i hope to have my email back 2 u done soon, but my typing time is

limited.

Sharon :->

> Oh Sharon I " m so sorry to hear of your shoulder trauma! Owch for

> sure!!! :-X :'-C

>

> I think I may have found a good shoulder brace for my subluxations

> but I haven't actually recieved it in the mail yet! It's suppose

to

> pull the upper arm and hold the head of the upper arm bone in the

> shoulder socket. And with the way the brace is designed your

suppose

> to have a decent amount of ROM. I think this brace may be good for

> me for preventing subluxations. I'll let you know how effective it

> is as soon as I get it though. I'll put down a few links with

> different photos of the brace as well as the descriptions for it

and

> you can see what you think. I found a site that sells it for $38

US

> (some of the sites list it as high as $60US) and will gladly pass

it

> on if you want.

>

> http://ecom1.sammonspreston.com/sammons/hemiShoulder.html

>

> http://www.wisdomking.com/product18683c357.html

>

> http://www.ketteringsurgical.com/upperlimb/shoulder/hsiinfo.htm

>

> The following URL is to the company I purchased mine from.

Shipping

> is a tad slow but I " m blaming that on the x-mas holidays.

>

> http://www.alimed.com/product_detail.cfm?

> VMID=9 & CategoryID=302 & FamilySKU=51%2D050

>

> And Jo, maybe this brace would be an option for you :-S ??? It

comes

> in an x-tra small size of 9 inches around the biggest part of the

> upper arm. Might still be too big for you... :-/ I'll let you

both

> know if I find it any help with my shoulder subluxations.

>

>

> Hope this helps!

>

> BOOOO shoulders are the pits >:-X

>

> -Rhea

[Guest guest]

What i need now is something for the acute phase. i have a brace

(orthomerica highland shoulder sling) but with my arm in such pain

and me pretty much unable to move my shoulder, i need something now

that immobilises me better than the silly normal pouch sling

immobiliser.

Thanx Rhea my friend i will look into the brace though.

i hope to have my email back 2 u done soon, but my typing time is

limited.

Sharon :->

> Oh Sharon I " m so sorry to hear of your shoulder trauma! Owch for

> sure!!! :-X :'-C

>

> I think I may have found a good shoulder brace for my subluxations

> but I haven't actually recieved it in the mail yet! It's suppose

to

> pull the upper arm and hold the head of the upper arm bone in the

> shoulder socket. And with the way the brace is designed your

suppose

> to have a decent amount of ROM. I think this brace may be good for

> me for preventing subluxations. I'll let you know how effective it

> is as soon as I get it though. I'll put down a few links with

> different photos of the brace as well as the descriptions for it

and

> you can see what you think. I found a site that sells it for $38

US

> (some of the sites list it as high as $60US) and will gladly pass

it

> on if you want.

>

> http://ecom1.sammonspreston.com/sammons/hemiShoulder.html

>

> http://www.wisdomking.com/product18683c357.html

>

> http://www.ketteringsurgical.com/upperlimb/shoulder/hsiinfo.htm

>

> The following URL is to the company I purchased mine from.

Shipping

> is a tad slow but I " m blaming that on the x-mas holidays.

>

> http://www.alimed.com/product_detail.cfm?

> VMID=9 & CategoryID=302 & FamilySKU=51%2D050

>

> And Jo, maybe this brace would be an option for you :-S ??? It

comes

> in an x-tra small size of 9 inches around the biggest part of the

> upper arm. Might still be too big for you... :-/ I'll let you

both

> know if I find it any help with my shoulder subluxations.

>

>

> Hope this helps!

>

> BOOOO shoulders are the pits >:-X

>

> -Rhea