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Welcome ,

We have a friendly group where you can feel comfortable

sharing sadness, joy, jokes, stories, complaints or anything you like. There

is good info on

here so ask any questions you may have too. We all try to

help each other. Nice to meet you. My daughter and her family live in

Charolette NC.

I am REAL sorry about your mother. She has a mental problem and you have

probably always known that. You have a good attitude the way you concentrate

on your blessings and not the s#%@ your mom dishes out. I admire you.

From:

Sent: Monday, April 26, 2004 8:00

PM

To: LUPIES

Subject: HI.My name is

stacy

I was diagnosed with lupus 9/11/02. A terrable day for us

all. I am still trying to come to terms with this illness.I am so happy i found

your web site. It is vey informative. I have just moved to north carilina and i

am tring to find a good doctor so far no good. I will not give up hope.

A little about myself,I am 32 yrs and have 2 children My son

is 13 my daughter is 10. I also have a life partner whom has been a gift from

heaven to me. She does everything for this family when i am not able too. One

of the loves of my life is to watch my children do their tieknowndo. They are

green belts.They have 6 classes a week. And i push myself to go to them there

have ben times i have not been able to go. Like all of us knows every minute of

every day is a struggle.

One of the reasons i am glad i found you web site is other

than the people who live with me i have no support! My mother told me after i

told her i was sick that " it is to much stress for her and she would

rather i did not speak to her anymore " So now i just mail her christmas

pictures of the kids " not of me " she said she does not want to see me

either " Most i can gather out of it is that she is just selfish and does

not want to be a mother to me. Only to her heathy chidren. Who by they way do

not speak to me ether. I think they are afaid she will find out. Enough of

that.

I am generally a happy person considering the pain and

everything else. I love my life even with lupus because i share it with my kids

and my life parner. And they are every reason to wake up in the morning.

Thanks for listening! your new freind

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