Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 That is part of the problem with lupus and fibro too. Good days and bad days. People have trouble understanding how you can have fun at a function all day on Saturday and then have trouble getting out of bed on Sunday. We just have to get used to it. That, and: “you look so good, you don’t look sick”. I had to ride in the electric cart to get through the store yesterday. If I walked from one side to the other gathering the food, I wouldn’t have had the energy to cook for my husband. I feel embarrassed riding in the cart because I don’t look as sick as I feel. I came across an acquaintance who has never seen me in the cart before. It really embarrassed me. She made a joke about me being able to sit and ride around in comfort. I mumbled that I would rather be walking. My embarrassment seems dumb but I can’t help it. Does anyone else have that problem? From: msw164 Sent: Thursday, June 17, 2004 1:56 PM To: LUPIES My parents and sisters do not believe that I could have lupus they feel I have been misdiagnosed and I do not look sick only on the flare days. I have explained that I have good days and I have flare days they do not understand. Get your FREE personalized email signature at My Mail Signature! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Cheryl, I haven't had to ride it that cart...yet. Or maybe I should say I haven't given in yet...but have had many days when I would have been better off Had I given in. I understand what your saying about people not understanding. It's like "if you can walk to & from the car, why can't you walk in here". Of "you were in here yesterday & didn't look like anything was wrong so how did you get so sick so fast?" I feel embarrassed the mad that I let them make me feel that way! Guess it would be easier to just wear a sign, huh?! lol We also get that about Jace. He does look perfectly healthy most days. He does have a handicap tag because some days he couldn't walk from the car to the dr.'s office. He gets around now better than I do, but that handicap tag still comes in handy! You just use that cart all you want to & don't worry about the people out there who are ignorant of what this disease can do. I can sure relate to family not understanding it too. My mom is the worst of all! I know she cares & means well (I think) but she can sure make me feel so guilty! -- good days/bad days That is part of the problem with lupus and fibro too. Good days and bad days. People have trouble understanding how you can have fun at a function all day on Saturday and then have trouble getting out of bed on Sunday. We just have to get used to it. That, and: “you look so good, you don’t look sick”. I had to ride in the electric cart to get through the store yesterday. If I walked from one side to the other gathering the food, I wouldn’t have had the energy to cook for my husband. I feel embarrassed riding in the cart because I don’t look as sick as I feel. I came across an acquaintance who has never seen me in the cart before. It really embarrassed me. She made a joke about me being able to sit and ride around in comfort. I mumbled that I would rather be walking. My embarrassment seems dumb but I can’t help it. Does anyone else have that problem? ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Cheryl, I haven't had to ride it that cart...yet. Or maybe I should say I haven't given in yet...but have had many days when I would have been better off Had I given in. I understand what your saying about people not understanding. It's like "if you can walk to & from the car, why can't you walk in here". Of "you were in here yesterday & didn't look like anything was wrong so how did you get so sick so fast?" I feel embarrassed the mad that I let them make me feel that way! Guess it would be easier to just wear a sign, huh?! lol We also get that about Jace. He does look perfectly healthy most days. He does have a handicap tag because some days he couldn't walk from the car to the dr.'s office. He gets around now better than I do, but that handicap tag still comes in handy! You just use that cart all you want to & don't worry about the people out there who are ignorant of what this disease can do. I can sure relate to family not understanding it too. My mom is the worst of all! I know she cares & means well (I think) but she can sure make me feel so guilty! -- good days/bad days That is part of the problem with lupus and fibro too. Good days and bad days. People have trouble understanding how you can have fun at a function all day on Saturday and then have trouble getting out of bed on Sunday. We just have to get used to it. That, and: “you look so good, you don’t look sick”. I had to ride in the electric cart to get through the store yesterday. If I walked from one side to the other gathering the food, I wouldn’t have had the energy to cook for my husband. I feel embarrassed riding in the cart because I don’t look as sick as I feel. I came across an acquaintance who has never seen me in the cart before. It really embarrassed me. She made a joke about me being able to sit and ride around in comfort. I mumbled that I would rather be walking. My embarrassment seems dumb but I can’t help it. Does anyone else have that problem? ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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