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Re: to Missy

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Missy, first of all - Happy Birthday.

I am so sorry you are not feeling good and that your parents cannot face

your disease, but rather try and treat it as a mistake. They must see how

bad you are feeling, they would help you a lot more if they could face it,

learn about it and try to help you as much as possible.

I think I already wrote you about the chemo. I don't know what treatment

you would be going through, but I was on chemo for 18 months. First six

months it was on a monthly basis, then every 3 months. I was on cytoxan and

I was also very, very scared when it was all new to me. When I got back from

the hospital after my first treatment, I was like a ghost, sleeping most of

the time for the first few days. A week later I was feeling better. I did

have nausea and was vomiting, but my doctors gave me pre-meds for the next

times and I only felt slight quizziness and was hardly ever sick to the

stomach. Chemo was no vacation, but it worked for me and thanks to it my

kidneys are doing so much better. I too have kids, three and they were 8, 5

and 2 when I was put on chemo. They knew I wasn't feeling good and they

helped me a lot. Kids are actually a very good aspect in cases like that.

They keep you going, but you have to remain strong. Take one day at a time

and enjoy the days when you are feeling good. If you let good thoughts in

and believe chemo will help, then it will. " Just let your body go with the

flow " - I know it sounds cliché, but it's true. There is nothing else you

can do. It is not your doing that you are ill and the best you can do for

yourself is get treated and not fight it.

I hope you start doing better before you have to decide about chemo, but

if it comes to that then so be it. Let it help you and believe me, you will

do just fine.

Mojo

not feeling very well

> >

> >

> > I have had really hard day not feeling very well. I have a sore

> in

> > my nose that just doesn't want to go away. I just feel awful all

> > over. My family dr. thinks I do not need my rhemu. She thinks

> she

> > can take on all my care. Last time I seen my rhemu he was

> talking

> > about chemo. Family dr. up my doses of malaria rx to 600mg aday

> the

> > rhemu said that was to much. That we could try the chemo or

> > something else. Not sure what to do. I need to function for my

> kids

> > and husband. I just feel like I can bearly go. Hope everyone is

> > doing good today. Missy

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >

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