Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Missy, first of all - Happy Birthday. I am so sorry you are not feeling good and that your parents cannot face your disease, but rather try and treat it as a mistake. They must see how bad you are feeling, they would help you a lot more if they could face it, learn about it and try to help you as much as possible. I think I already wrote you about the chemo. I don't know what treatment you would be going through, but I was on chemo for 18 months. First six months it was on a monthly basis, then every 3 months. I was on cytoxan and I was also very, very scared when it was all new to me. When I got back from the hospital after my first treatment, I was like a ghost, sleeping most of the time for the first few days. A week later I was feeling better. I did have nausea and was vomiting, but my doctors gave me pre-meds for the next times and I only felt slight quizziness and was hardly ever sick to the stomach. Chemo was no vacation, but it worked for me and thanks to it my kidneys are doing so much better. I too have kids, three and they were 8, 5 and 2 when I was put on chemo. They knew I wasn't feeling good and they helped me a lot. Kids are actually a very good aspect in cases like that. They keep you going, but you have to remain strong. Take one day at a time and enjoy the days when you are feeling good. If you let good thoughts in and believe chemo will help, then it will. " Just let your body go with the flow " - I know it sounds cliché, but it's true. There is nothing else you can do. It is not your doing that you are ill and the best you can do for yourself is get treated and not fight it. I hope you start doing better before you have to decide about chemo, but if it comes to that then so be it. Let it help you and believe me, you will do just fine. Mojo not feeling very well > > > > > > I have had really hard day not feeling very well. I have a sore > in > > my nose that just doesn't want to go away. I just feel awful all > > over. My family dr. thinks I do not need my rhemu. She thinks > she > > can take on all my care. Last time I seen my rhemu he was > talking > > about chemo. Family dr. up my doses of malaria rx to 600mg aday > the > > rhemu said that was to much. That we could try the chemo or > > something else. Not sure what to do. I need to function for my > kids > > and husband. I just feel like I can bearly go. Hope everyone is > > doing good today. Missy > > > > > > > > > > " The LUPIES Store " Come check out our store... > > http://www.cafepress.com/thelupies > > > > " The LUPIES Web Page " > > http://www.itzarion.com/lupusgroup.html > > > > " The LUPIES online photo albums! " > > Check out what your fellow Lupies look like... > > http://www.picturetrail.com/lupies > > > > > > Quote Link to comment Share on other sites More sharing options...
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