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Hi missy, Sorry that you are feeling so crappy. Personally I have never had to suffer the nose sores, but I know that several of the girls here have. It was not too long ago that they were all talking about what makes them feel better. I think that bag balm was one of the things that was recommended.

As far as the medication, well they simply have to do something about that. In my opinion, I don't think that it is a wise idea to stop seeing the rheumy. Talk it over some more with your parents. It is very important to have someone who specializes in this, because they can usually provide a lot more help and information, than a primary physician. And if you have a good rheumy they are hard to come by so I would hold on to them.

Well I wish you luck. Let me know how it goes, with your folks. Sorry, I couldn't give you more info at the moment. You might go on s site, www.izarion.com and see what she has on there. There is a lot of wonderful information there.

Love, hugs, and prayers,

msw164 wrote:

I have had really hard day not feeling very well. I have a sore in my nose that just doesn't want to go away. I just feel awful all over. My family dr. thinks I do not need my rhemu. She thinks she can take on all my care. Last time I seen my rhemu he was talking about chemo. Family dr. up my doses of malaria rx to 600mg aday the rhemu said that was to much. That we could try the chemo or something else. Not sure what to do. I need to function for my kids and husband. I just feel like I can bearly go. Hope everyone is doing good today. Missy"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

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a thanks for the bagbalm opinion I Tried it .. I have been

trying to get better for days but it seems that Im not. I am 35

years old until tommorrow. My parents do not except my diagnosis

they

believe there has been a mistake in the diagnosis. I wish they where

right.

> I have had really hard day not feeling very well. I have a sore in

> my nose that just doesn't want to go away. I just feel awful all

> over. My family dr. thinks I do not need my rhemu. She thinks she

> can take on all my care. Last time I seen my rhemu he was talking

> about chemo. Family dr. up my doses of malaria rx to 600mg aday

the

> rhemu said that was to much. That we could try the chemo or

> something else. Not sure what to do. I need to function for my

kids

> and husband. I just feel like I can bearly go. Hope everyone is

> doing good today. Missy

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

>

>

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