Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi , I was on DHEA last year thru my rhuemy. Didn't seem to do squat for me. You can buy it over the counter currently and started at small dosages - worked my way up to the highest you can safely take under a doctors orders and still didn't do nothing for me - but hopefully it can help others that suffer from lupus. Good luck with it. Deanna > Hi!! Has anyone ever been on DHEA??? I am enrolled in a new study- > it is on reducing vascular damage in female SLE patients using DHEA. > I haven't started yet, but am supposed to soon. I will let you all > know what they find out. DHEA is supposed to be approved for use in > lupus in the next year or so. Supposed to help reduce flares, but I > don't know what dose or anything. It's a double blind study, so I > won't know when I get it or the placebo. I will let you know when I > get results (takes about 5 months total). Hope you are all doing > well, take care friends!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi , I was on DHEA last year thru my rhuemy. Didn't seem to do squat for me. You can buy it over the counter currently and started at small dosages - worked my way up to the highest you can safely take under a doctors orders and still didn't do nothing for me - but hopefully it can help others that suffer from lupus. Good luck with it. Deanna > Hi!! Has anyone ever been on DHEA??? I am enrolled in a new study- > it is on reducing vascular damage in female SLE patients using DHEA. > I haven't started yet, but am supposed to soon. I will let you all > know what they find out. DHEA is supposed to be approved for use in > lupus in the next year or so. Supposed to help reduce flares, but I > don't know what dose or anything. It's a double blind study, so I > won't know when I get it or the placebo. I will let you know when I > get results (takes about 5 months total). Hope you are all doing > well, take care friends!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi , I was on DHEA last year thru my rhuemy. Didn't seem to do squat for me. You can buy it over the counter currently and started at small dosages - worked my way up to the highest you can safely take under a doctors orders and still didn't do nothing for me - but hopefully it can help others that suffer from lupus. Good luck with it. Deanna > Hi!! Has anyone ever been on DHEA??? I am enrolled in a new study- > it is on reducing vascular damage in female SLE patients using DHEA. > I haven't started yet, but am supposed to soon. I will let you all > know what they find out. DHEA is supposed to be approved for use in > lupus in the next year or so. Supposed to help reduce flares, but I > don't know what dose or anything. It's a double blind study, so I > won't know when I get it or the placebo. I will let you know when I > get results (takes about 5 months total). Hope you are all doing > well, take care friends!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 -Thanks Deanna, I don't really hold out hope for myself, but I hope that my participating might help them gain more knowledge about what it does and does not do. I guess they will be doing ultrasounds of my arms, has to do with vascular damage repair and heart disease related to lupus in women. I'll post when I know more. Thanks for your response...take care - In LUPIES , " Deanna H. " wrote: > Hi , > I was on DHEA last year thru my rhuemy. Didn't seem to do squat for > me. You can buy it over the counter currently and started at small > dosages - worked my way up to the highest you can safely take under a > doctors orders and still didn't do nothing for me - but hopefully it > can help others that suffer from lupus. > Good luck with it. > Deanna > > > > > Hi!! Has anyone ever been on DHEA??? I am enrolled in a new study- > > > it is on reducing vascular damage in female SLE patients using > DHEA. > > I haven't started yet, but am supposed to soon. I will let you all > > know what they find out. DHEA is supposed to be approved for use > in > > lupus in the next year or so. Supposed to help reduce flares, but > I > > don't know what dose or anything. It's a double blind study, so I > > won't know when I get it or the placebo. I will let you know when > I > > get results (takes about 5 months total). Hope you are all doing > > well, take care friends!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 -Thanks Deanna, I don't really hold out hope for myself, but I hope that my participating might help them gain more knowledge about what it does and does not do. I guess they will be doing ultrasounds of my arms, has to do with vascular damage repair and heart disease related to lupus in women. I'll post when I know more. Thanks for your response...take care - In LUPIES , " Deanna H. " wrote: > Hi , > I was on DHEA last year thru my rhuemy. Didn't seem to do squat for > me. You can buy it over the counter currently and started at small > dosages - worked my way up to the highest you can safely take under a > doctors orders and still didn't do nothing for me - but hopefully it > can help others that suffer from lupus. > Good luck with it. > Deanna > > > > > Hi!! Has anyone ever been on DHEA??? I am enrolled in a new study- > > > it is on reducing vascular damage in female SLE patients using > DHEA. > > I haven't started yet, but am supposed to soon. I will let you all > > know what they find out. DHEA is supposed to be approved for use > in > > lupus in the next year or so. Supposed to help reduce flares, but > I > > don't know what dose or anything. It's a double blind study, so I > > won't know when I get it or the placebo. I will let you know when > I > > get results (takes about 5 months total). Hope you are all doing > > well, take care friends!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 -Thanks Deanna, I don't really hold out hope for myself, but I hope that my participating might help them gain more knowledge about what it does and does not do. I guess they will be doing ultrasounds of my arms, has to do with vascular damage repair and heart disease related to lupus in women. I'll post when I know more. Thanks for your response...take care - In LUPIES , " Deanna H. " wrote: > Hi , > I was on DHEA last year thru my rhuemy. Didn't seem to do squat for > me. You can buy it over the counter currently and started at small > dosages - worked my way up to the highest you can safely take under a > doctors orders and still didn't do nothing for me - but hopefully it > can help others that suffer from lupus. > Good luck with it. > Deanna > > > > > Hi!! Has anyone ever been on DHEA??? I am enrolled in a new study- > > > it is on reducing vascular damage in female SLE patients using > DHEA. > > I haven't started yet, but am supposed to soon. I will let you all > > know what they find out. DHEA is supposed to be approved for use > in > > lupus in the next year or so. Supposed to help reduce flares, but > I > > don't know what dose or anything. It's a double blind study, so I > > won't know when I get it or the placebo. I will let you know when > I > > get results (takes about 5 months total). Hope you are all doing > > well, take care friends!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Okay I tried Dhea for at least six months and it did nothing for me. On the other hand my vet was telling me to try my dog on coq10. and ester c for her arthritis( she is young 1.5 yrs old.). well we kept talking and he told me that it works for people also with auto-immune diseases. He told me to take 50 mg. per 50 lbs of body weight for the coq10. He said it has to do with something called adt or adp in the cells? anyways it helps that thing carry oxygen to cells. Well a few weeks later I read a report that a lot of lupus patients have a lower level of the adp or adt( whatever it is ). He also told me that a lot of the medicines we take lower the levels of these chemicals in our blood stream. Well it has been about 6 weeks now and I feel much better. I mean we have nothing to loose we already feel like crap so anything above that is better. You all have a great day I went back to work today after 2 weeks off for my laproscopy and I am tired.... bye for now. marion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Okay I tried Dhea for at least six months and it did nothing for me. On the other hand my vet was telling me to try my dog on coq10. and ester c for her arthritis( she is young 1.5 yrs old.). well we kept talking and he told me that it works for people also with auto-immune diseases. He told me to take 50 mg. per 50 lbs of body weight for the coq10. He said it has to do with something called adt or adp in the cells? anyways it helps that thing carry oxygen to cells. Well a few weeks later I read a report that a lot of lupus patients have a lower level of the adp or adt( whatever it is ). He also told me that a lot of the medicines we take lower the levels of these chemicals in our blood stream. Well it has been about 6 weeks now and I feel much better. I mean we have nothing to loose we already feel like crap so anything above that is better. You all have a great day I went back to work today after 2 weeks off for my laproscopy and I am tired.... bye for now. marion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Okay I tried Dhea for at least six months and it did nothing for me. On the other hand my vet was telling me to try my dog on coq10. and ester c for her arthritis( she is young 1.5 yrs old.). well we kept talking and he told me that it works for people also with auto-immune diseases. He told me to take 50 mg. per 50 lbs of body weight for the coq10. He said it has to do with something called adt or adp in the cells? anyways it helps that thing carry oxygen to cells. Well a few weeks later I read a report that a lot of lupus patients have a lower level of the adp or adt( whatever it is ). He also told me that a lot of the medicines we take lower the levels of these chemicals in our blood stream. Well it has been about 6 weeks now and I feel much better. I mean we have nothing to loose we already feel like crap so anything above that is better. You all have a great day I went back to work today after 2 weeks off for my laproscopy and I am tired.... bye for now. marion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 I have been taking the dhea for 3 months now, and I feel great! I was so tired before, so thought it was worht the shot. My memory has improved, I can focus, no more brain fog, and no more headaches. I take 50 mg daily. > Hi . I was reading your post on DHEA and I have been on and off of it for about a year and a half. So far it seems to be helping with my fatigue, I think. I'm still tired alot but when I come off of it for awhile I notice that I'm more tired. I have noticed more facial hair and acne, but nair hair and retnia A seems to take care of most of it. What type research are you doing? I would love to hear more. If you want to email me direct you can at nursealso@c... Oh, I started taking 25mg daily and have worked up to 75mg. Just F.Y.I. Take care, Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 I'm very interested the usage of DHEA for Lupus patients. I've read about 2 studies, where it helped relieve Lupus symptoms. I asked my rheumy about it and he didn't want to even discuss it. He won't talk about anything that isn't FDA approved. I'm going to try it. Robyn In LUPIES , " bandit5125 " wrote: > I have been taking the dhea for 3 months now, and I feel great! I > was so tired before, so thought it was worht the shot. My memory has > improved, I can focus, no more brain fog, and no more headaches. I > take 50 mg daily. > > > > > Hi . I was reading your post on DHEA and I have been on and > off of it for about a year and a half. So far it seems to be helping > with my fatigue, I think. I'm still tired alot but when I come off > of it for awhile I notice that I'm more tired. I have noticed more > facial hair and acne, but nair hair and retnia A seems to take care > of most of it. What type research are you doing? I would love to > hear more. If you want to email me direct you can at nursealso@c... > Oh, I started taking 25mg daily and have worked up to 75mg. Just > F.Y.I. Take care, Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 I buy the dhea at walmart, its about 9.00 a bottle for 50 pills at 50 mg. It has worked wonders for me, my only concern was one of the side effects was hair loss, but it never happened to me. I strarted taking one every other day, then went to one every day and have done well on it. Good luck!!!!- Quote Link to comment Share on other sites More sharing options...
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