Re: Just had a phone call from my mother who is home

[Guest guest]

Hey TJ,

Yeah the ER hasn't heard of EDS! The pretenders!Thanks goodness they gave

her some relief temporarily. She may need an oral antibiotic when she sees

your Doc on Wed. I just haven't felt well lately, so sorry I haven't kept up

with the computer and all the messages. Have you heard from the Judge Yet?

Hugs,

Just had a phone call from my mother who is home

> I'm gonna wring my dad's neck....... here I sat worrying and after the

test they sent her home......... he didn't inform me of any of

this.......... the phone buzzed about 10 minutes ago with mom's name on it

and I just figured Dad's phone (battery) died- and it was definitely mom's

voice.

>

> Whew what a relief........ relaxxxxxxxxing now- although she didnt really

get much found out but that is ER for ya..........

>

> Get this, this ER is where I spent nearly a year going back n forth and

she told them her daughter was the one with VEDS- he asked what that was....

Said he's never heard of ehlers danlos- wow!!!!!!

>

> They even call me by name when they see me without looking at my chart and

say everytime I come in- here's TJ again - the gal with ehlers....... and

now this one forgot what ehlers even is? Definitely gotta get a CD to

them.... geesh.

>

> Mom had the cat scan done- and they see nothing wrong- no tumor anyhow-

said it is something to do with her diabeities and gave her a big shot of

lasix and an antibiotic- so at least she will have had the cat scan and the

blood tests done before she see's my doctor on the 12th which will be a bit

helpful to him - I'm sure........ at least a tumor is ruled out.......

>

> She sounds fine- but was up all night long because of this sore throat and

stuff........ so hopefully now she will be able to rest- they are also

giving her a stomach pill- she doesnt know the name yet- dad went to get the

scripts....... So- hopefully she gets the rest she needs- the antibiotic

starts working and she'll have a better doctor on the 12th to help find out

what all is going on.

>

> See- had that other doctor given her an antibiotic when she went to him-

she wouldnt have had to go through what she went through this morn.

>

> I think I'll be able to get a couple hours sleep now myself- because i'm

so relieved that she's home...... so am off to go try that.

>

> Hugs to all- Happy Mother's Day-

> TJ

>

>

[Guest guest]

Hey TJ,

Yeah the ER hasn't heard of EDS! The pretenders!Thanks goodness they gave

her some relief temporarily. She may need an oral antibiotic when she sees

your Doc on Wed. I just haven't felt well lately, so sorry I haven't kept up

with the computer and all the messages. Have you heard from the Judge Yet?

Hugs,

Just had a phone call from my mother who is home

> I'm gonna wring my dad's neck....... here I sat worrying and after the

test they sent her home......... he didn't inform me of any of

this.......... the phone buzzed about 10 minutes ago with mom's name on it

and I just figured Dad's phone (battery) died- and it was definitely mom's

voice.

>

> Whew what a relief........ relaxxxxxxxxing now- although she didnt really

get much found out but that is ER for ya..........

>

> Get this, this ER is where I spent nearly a year going back n forth and

she told them her daughter was the one with VEDS- he asked what that was....

Said he's never heard of ehlers danlos- wow!!!!!!

>

> They even call me by name when they see me without looking at my chart and

say everytime I come in- here's TJ again - the gal with ehlers....... and

now this one forgot what ehlers even is? Definitely gotta get a CD to

them.... geesh.

>

> Mom had the cat scan done- and they see nothing wrong- no tumor anyhow-

said it is something to do with her diabeities and gave her a big shot of

lasix and an antibiotic- so at least she will have had the cat scan and the

blood tests done before she see's my doctor on the 12th which will be a bit

helpful to him - I'm sure........ at least a tumor is ruled out.......

>

> She sounds fine- but was up all night long because of this sore throat and

stuff........ so hopefully now she will be able to rest- they are also

giving her a stomach pill- she doesnt know the name yet- dad went to get the

scripts....... So- hopefully she gets the rest she needs- the antibiotic

starts working and she'll have a better doctor on the 12th to help find out

what all is going on.

>

> See- had that other doctor given her an antibiotic when she went to him-

she wouldnt have had to go through what she went through this morn.

>

> I think I'll be able to get a couple hours sleep now myself- because i'm

so relieved that she's home...... so am off to go try that.

>

> Hugs to all- Happy Mother's Day-

> TJ

>

>

[Guest guest]

Hey TJ,

Yeah the ER hasn't heard of EDS! The pretenders!Thanks goodness they gave

her some relief temporarily. She may need an oral antibiotic when she sees

your Doc on Wed. I just haven't felt well lately, so sorry I haven't kept up

with the computer and all the messages. Have you heard from the Judge Yet?

Hugs,

Just had a phone call from my mother who is home

> I'm gonna wring my dad's neck....... here I sat worrying and after the

test they sent her home......... he didn't inform me of any of

this.......... the phone buzzed about 10 minutes ago with mom's name on it

and I just figured Dad's phone (battery) died- and it was definitely mom's

voice.

>

> Whew what a relief........ relaxxxxxxxxing now- although she didnt really

get much found out but that is ER for ya..........

>

> Get this, this ER is where I spent nearly a year going back n forth and

she told them her daughter was the one with VEDS- he asked what that was....

Said he's never heard of ehlers danlos- wow!!!!!!

>

> They even call me by name when they see me without looking at my chart and

say everytime I come in- here's TJ again - the gal with ehlers....... and

now this one forgot what ehlers even is? Definitely gotta get a CD to

them.... geesh.

>

> Mom had the cat scan done- and they see nothing wrong- no tumor anyhow-

said it is something to do with her diabeities and gave her a big shot of

lasix and an antibiotic- so at least she will have had the cat scan and the

blood tests done before she see's my doctor on the 12th which will be a bit

helpful to him - I'm sure........ at least a tumor is ruled out.......

>

> She sounds fine- but was up all night long because of this sore throat and

stuff........ so hopefully now she will be able to rest- they are also

giving her a stomach pill- she doesnt know the name yet- dad went to get the

scripts....... So- hopefully she gets the rest she needs- the antibiotic

starts working and she'll have a better doctor on the 12th to help find out

what all is going on.

>

> See- had that other doctor given her an antibiotic when she went to him-

she wouldnt have had to go through what she went through this morn.

>

> I think I'll be able to get a couple hours sleep now myself- because i'm

so relieved that she's home...... so am off to go try that.

>

> Hugs to all- Happy Mother's Day-

> TJ

>

>

[Guest guest]

Hey TJ,

I got Larry's bad cold plus the same old EDS stuff. I surely hope your Mom

feels better. Best wishes on Wed. Gotta go to bed now.

Hugs,

Just had a phone call from my mother who is home

>

>

> > I'm gonna wring my dad's neck....... here I sat worrying and after the

> test they sent her home......... he didn't inform me of any of

> this.......... the phone buzzed about 10 minutes ago with mom's name on

it

> and I just figured Dad's phone (battery) died- and it was definitely

mom's

> voice.

> >

> > Whew what a relief........ relaxxxxxxxxing now- although she didnt

really

> get much found out but that is ER for ya..........

> >

> > Get this, this ER is where I spent nearly a year going back n forth

and

> she told them her daughter was the one with VEDS- he asked what that

was....

> Said he's never heard of ehlers danlos- wow!!!!!!

> >

> > They even call me by name when they see me without looking at my chart

and

> say everytime I come in- here's TJ again - the gal with ehlers.......

and

> now this one forgot what ehlers even is? Definitely gotta get a CD to

> them.... geesh.

> >

> > Mom had the cat scan done- and they see nothing wrong- no tumor

anyhow-

> said it is something to do with her diabeities and gave her a big shot

of

> lasix and an antibiotic- so at least she will have had the cat scan and

the

> blood tests done before she see's my doctor on the 12th which will be a

bit

> helpful to him - I'm sure........ at least a tumor is ruled out.......

> >

> > She sounds fine- but was up all night long because of this sore throat

and

> stuff........ so hopefully now she will be able to rest- they are also

> giving her a stomach pill- she doesnt know the name yet- dad went to get

the

> scripts....... So- hopefully she gets the rest she needs- the

antibiotic

> starts working and she'll have a better doctor on the 12th to help find

out

> what all is going on.

> >

> > See- had that other doctor given her an antibiotic when she went to

him-

> she wouldnt have had to go through what she went through this morn.

> >

> > I think I'll be able to get a couple hours sleep now myself- because

i'm

> so relieved that she's home...... so am off to go try that.

> >

> > Hugs to all- Happy Mother's Day-

> > TJ

> >

> >

[Guest guest]

Yikes so sorry to hear that you got it too - its not like a normal cold-

its like 4 times the normal cold isn't it? Thanks for the well wishes.........

Hope you get some good z's and keeping you in my prayers............ My son

said his lasted about 4 days- I say hockey puck-------- this has been going on

more than 4 days........

Hugsssssssss- TJ

Hey TJ,

I got Larry's bad cold plus the same old EDS stuff. I surely hope your Mom

feels better. Best wishes on Wed. Gotta go to bed now.

Hugs,

Just had a phone call from my mother who is home

>

>

> > I'm gonna wring my dad's neck....... here I sat worrying and after the

> test they sent her home......... he didn't inform me of any of

> this.......... the phone buzzed about 10 minutes ago with mom's name on

it

> and I just figured Dad's phone (battery) died- and it was definitely

mom's

> voice.

> >

> > Whew what a relief........ relaxxxxxxxxing now- although she didnt

really

> get much found out but that is ER for ya..........

> >

> > Get this, this ER is where I spent nearly a year going back n forth

and

> she told them her daughter was the one with VEDS- he asked what that

was....

> Said he's never heard of ehlers danlos- wow!!!!!!

> >

> > They even call me by name when they see me without looking at my chart

and

> say everytime I come in- here's TJ again - the gal with ehlers.......

and

> now this one forgot what ehlers even is? Definitely gotta get a CD to

> them.... geesh.

> >

> > Mom had the cat scan done- and they see nothing wrong- no tumor

anyhow-

> said it is something to do with her diabeities and gave her a big shot

of

> lasix and an antibiotic- so at least she will have had the cat scan and

the

> blood tests done before she see's my doctor on the 12th which will be a

bit

> helpful to him - I'm sure........ at least a tumor is ruled out.......

> >

> > She sounds fine- but was up all night long because of this sore throat

and

> stuff........ so hopefully now she will be able to rest- they are also

> giving her a stomach pill- she doesnt know the name yet- dad went to get

the

> scripts....... So- hopefully she gets the rest she needs- the

antibiotic

> starts working and she'll have a better doctor on the 12th to help find

out

> what all is going on.

> >

> > See- had that other doctor given her an antibiotic when she went to

him-

> she wouldnt have had to go through what she went through this morn.

> >

> > I think I'll be able to get a couple hours sleep now myself- because

i'm

> so relieved that she's home...... so am off to go try that.

> >

> > Hugs to all- Happy Mother's Day-

> > TJ

> >

> >

[Guest guest]

BUMMER!!! Did it interfere with your anniversary plans??

Love Lana 0 :-)

Re: Just had a phone call from my mother who is home

Hey TJ,

I got Larry's bad cold plus the same old EDS stuff. I surely hope your Mom

feels better. Best wishes on Wed. Gotta go to bed now.

Hugs,

[Guest guest]

Hey TJ,

Thanks for the well wishes! Larry's cold lasted a week, so mine will last 2

weeks for sure. My best wishes to you and your Mom. June isn't that far

away, so I do hope you will have good news soon.

Hugs,

Just had a phone call from my mother who is home

> >

> >

> > > I'm gonna wring my dad's neck....... here I sat worrying and after

the

> > test they sent her home......... he didn't inform me of any of

> > this.......... the phone buzzed about 10 minutes ago with mom's name

on

> it

> > and I just figured Dad's phone (battery) died- and it was definitely

> mom's

> > voice.

> > >

> > > Whew what a relief........ relaxxxxxxxxing now- although she didnt

> really

> > get much found out but that is ER for ya..........

> > >

> > > Get this, this ER is where I spent nearly a year going back n

forth

> and

> > she told them her daughter was the one with VEDS- he asked what that

> was....

> > Said he's never heard of ehlers danlos- wow!!!!!!

> > >

> > > They even call me by name when they see me without looking at my

chart

> and

> > say everytime I come in- here's TJ again - the gal with

ehlers.......

> and

> > now this one forgot what ehlers even is? Definitely gotta get a CD

to

> > them.... geesh.

> > >

> > > Mom had the cat scan done- and they see nothing wrong- no tumor

> anyhow-

> > said it is something to do with her diabeities and gave her a big

shot

> of

> > lasix and an antibiotic- so at least she will have had the cat scan

and

> the

> > blood tests done before she see's my doctor on the 12th which will

be a

> bit

> > helpful to him - I'm sure........ at least a tumor is ruled

out.......

> > >

> > > She sounds fine- but was up all night long because of this sore

throat

> and

> > stuff........ so hopefully now she will be able to rest- they are

also

> > giving her a stomach pill- she doesnt know the name yet- dad went to

get

> the

> > scripts....... So- hopefully she gets the rest she needs- the

> antibiotic

> > starts working and she'll have a better doctor on the 12th to help

find

> out

> > what all is going on.

> > >

> > > See- had that other doctor given her an antibiotic when she went

to

> him-

> > she wouldnt have had to go through what she went through this morn.

> > >

> > > I think I'll be able to get a couple hours sleep now myself-

because

> i'm

> > so relieved that she's home...... so am off to go try that.

> > >

> > > Hugs to all- Happy Mother's Day-

> > > TJ

> > >

> > >

[Guest guest]

Hey Lana,

Well there were no plans. Larry had to work. We'll celebrate next week. When

we got married we were so tired after the wedding we waited until the next

weekend to go to the beach on our honeymoon. So maybe next week we can sneak

off to the beach for a day or so. Just don't know, one of the other cats,

Pooh Pooh is on Chemotherapy now. She's only 3 years old.

Love,

Re: Just had a phone call from my mother who is home

>

>

>

> Hey TJ,

> I got Larry's bad cold plus the same old EDS stuff. I surely hope your Mom

> feels better. Best wishes on Wed. Gotta go to bed now.

> Hugs,

>

>

>

>

>

[Guest guest]

> Pooh Pooh is on Chemotherapy now. She's only 3 years old.

Poor Pooh!!! I HATE when animals are sick - they can't/don't

understand! Poor baby, and poor you, ! If you're like me, you

will worry and wear yourself out trying to pamper her. Please try to

take it easy!

Love Lana

[Guest guest]

Your welcome and yep - usually lasts a bit longer on me too- She said her sore

throat is better but not the coughing......... at least she is on an antibiotic

now though and is getting a bit better.

As for the hearing, I think I misunderstood you as I am dealing with 2

situations, I think you meant the SSI one? The June one is a custody battle-

ridiculous one at that......... As for SSI, haven't heard a word- not one

word.....

Hugs and Take care- I am still taking driixoral atop of all my medications and

getting loads of sleep......... darn sore throat is trying to leave but take my

voice with it...... I can barely talk........ but it will go away

eventually....... Are you squeaking too? lol........ Feel better soon- Love- TJ

Just had a phone call from my mother who is home

> >

> >

> > > I'm gonna wring my dad's neck....... here I sat worrying and after

the

> > test they sent her home......... he didn't inform me of any of

> > this.......... the phone buzzed about 10 minutes ago with mom's name

on

> it

> > and I just figured Dad's phone (battery) died- and it was definitely

> mom's

> > voice.

> > >

> > > Whew what a relief........ relaxxxxxxxxing now- although she didnt

> really

> > get much found out but that is ER for ya..........

> > >

> > > Get this, this ER is where I spent nearly a year going back n

forth

> and

> > she told them her daughter was the one with VEDS- he asked what that

> was....

> > Said he's never heard of ehlers danlos- wow!!!!!!

> > >

> > > They even call me by name when they see me without looking at my

chart

> and

> > say everytime I come in- here's TJ again - the gal with

ehlers.......

> and

> > now this one forgot what ehlers even is? Definitely gotta get a CD

to

> > them.... geesh.

> > >

> > > Mom had the cat scan done- and they see nothing wrong- no tumor

> anyhow-

> > said it is something to do with her diabeities and gave her a big

shot

> of

> > lasix and an antibiotic- so at least she will have had the cat scan

and

> the

> > blood tests done before she see's my doctor on the 12th which will

be a

> bit

> > helpful to him - I'm sure........ at least a tumor is ruled

out.......

> > >

> > > She sounds fine- but was up all night long because of this sore

throat

> and

> > stuff........ so hopefully now she will be able to rest- they are

also

> > giving her a stomach pill- she doesnt know the name yet- dad went to

get

> the

> > scripts....... So- hopefully she gets the rest she needs- the

> antibiotic

> > starts working and she'll have a better doctor on the 12th to help

find

> out

> > what all is going on.

> > >

> > > See- had that other doctor given her an antibiotic when she went

to

> him-

> > she wouldnt have had to go through what she went through this morn.

> > >

> > > I think I'll be able to get a couple hours sleep now myself-

because

> i'm

> > so relieved that she's home...... so am off to go try that.

> > >

> > > Hugs to all- Happy Mother's Day-

> > > TJ

> > >

> > >

[Guest guest]

No my voice is okay....just tired...

Re: Just had a phone call from my mother who is home

Your welcome and yep - usually lasts a bit longer on me too- She said her sore

throat is better but not the coughing......... at least she is on an antibiotic

now though and is getting a bit better.

As for the hearing, I think I misunderstood you as I am dealing with 2

situations, I think you meant the SSI one? The June one is a custody battle-

ridiculous one at that......... As for SSI, haven't heard a word- not one

word.....

Hugs and Take care- I am still taking driixoral atop of all my medications and

getting loads of sleep......... darn sore throat is trying to leave but take my

voice with it...... I can barely talk........ but it will go away

eventually....... Are you squeaking too? lol........ Feel better soon- Love- TJ

[Guest guest]

Ooooh, poor little thing... Give her a cuddle from Peanut and I...

Peanut sure knows how it is to be really sick, she was so sick I was

afraid I would lose her last year because of her Canine Colitis. And

it was a real possibility, as she had violent vomiting and bloody

stools for months. It calmed down a bit in between, but then she got

really sick again. The last time, before they finally found out what

was wrong with her, she was really sick all hours for 14 days. During

the day only, she could vomit 8-9 times and also go poo as many

times. She was in so much pain it was awful to watch her. We were

awake half the night every night, the two of us. Luckily I was home

on a sick leave at the time, or it would never have worked. She does

have an episode now and then, but most of the time she is pretty OK

now, and that without real medication. She is on a special diet food,

an intestinal formula kibble, and gets probiotics also to help with

her stomach flora. Those two together is like medication to her. She

comes running if she feels a bit bad and I say " Peanut, come get your

Yoggy num-num " . She knows it helps her. She gets a bit every day and

then a bit more if she feels bad. The only symptom she has all the

time, is fatigue. She sleeps a lot more than Shanti did. She is more

like a puppy in that department, and she needs quiet mornings most of

the time, no walk in the morning, just pee on a puppy pad or just go

outside and do that and back in. I tried dragging her out every

morning before work, because that is just what you do with a dog, but

she hated it, she would shiver and cry and crawl up on my lap to

snuggle up. So she is much better off being left alone then, so she

can sleep as long as she needs to. Heck, I know how it is, so who

would I be if I didn't recognize that? So instead of dragging her

out, she gets to lay on my lap and cuddle for a while every morning

when I have to go to work. When I have time off, we often sleep in,

the both of us. She loves that, cuddles up in my arms and we go back

to sleep even if we have been awake. She's such a little doll, I love

her to bits and I am so happy that she is doing so well. I was so

scared last year when she got so very sick, she wasn't even a year

old. She will be 2 this June. We gotta have a party then, that is for

sure!!!! I wonder if you can make a doggie cake out of dog biscuits

with a cream made of yoghurt and dog chocolate? Hmmmm.... I am sure

that you can!!!! Gotta try that... To top it off, I think I will have

to convince the people at the local supermarket to offer slush with

no fake juice in it for that day, just ice water, so I can add

something nice she tolerates. She goes completely nuts when she sees

a slush puppy, she loves them but can't have them anymore because of

her diet. They just took the machine out after the winter, and I

hoped she had forgot about them, but she crawled up on my lap in my

high power chair, with no assistance, and stood on two on my lap

crying out loud. A lady passed us and told me that I was cruel if I

didn't let her at least have a bit, he-he... She understood how yummy

she thought it was, that crying left no doubt, that is for sure. You

should think I was being really cruel to her, she was so sad and

cried as if she was in bad pain. I guess that getting no slush is

really painful, because Peanut is a little doggy girl who loves yummy

things, that is for sure.... When I went to Bergen to get her, the

first thing she did, was stick her tongue into my coke bottle to have

a sip... I hate having to be so hard on her with those things,

because she really thinks it is awful, no doubt about that. But it is

not worth it, just one little thing can make her have bloody stools

the next day, it is amazing how little it takes to aggrevate that

colitis... And colitis sure is no joke... Ooooh, I love her soooo

much!!!! So I can imagine how awful it must be for you now with Pooh

Pooh sick and all.... No fun at all when they get sick and can't tell

you how they feel etc. It just makes it so hard... And there's

nothing we wouldn't do to make them feel better....

This evening has been flying by. I have to get to bed early today, so

it is about time I take Peanut out. I was so happy yesterday, it was

a real warm spring day, what a relief. But today it has been a grey

day, and I have been so cold. So I am taking my down jacket on now

for our evening walk!!!! I would really like it if I could put it

away for a few months now, but obviously not yet...

hugs,

Aase Marit

>

>Well there were no plans. Larry had to work. We'll celebrate next week. When

>we got married we were so tired after the wedding we waited until the next

>weekend to go to the beach on our honeymoon. So maybe next week we can sneak

>off to the beach for a day or so. Just don't know, one of the other cats,

>Pooh Pooh is on Chemotherapy now. She's only 3 years old.