Re: Hello I am new to the group

[Guest guest]

To the Group!

We have a wonderful group of people here and loads of understanding of what you are going through.....When you are really having problems dealing with these strange and complicated illnesses .....there Will always be some one there at just the right time with just the right words to help you to cope. ..I love MY LUPIES and am sure you will too!....It sounds like you hava a wonderful family, your husband is great to take one day a week to help you with the housework.....now if we could just get that daughter of yours on board......I am also a neatness freak and a messy house drives me crazy! I am 60 years old and live alone .....so I don't have anyone but myself to blame when things get messy. I just try to pick up after myself as I go , and keep things as organized as possible.

I had my 12 yr old grand daughter with me for a few days last week while my daughter was in the hospital for a hernia repair......and thought.....this would be a good time to get some help with some of the things that are hard for me.....like vacuuming!......WRONG!!.....

I asked to vacuum for me......she whined ....but I got the vacuum out anyway......I moved the coffee table out of the way.....plugged in the vacuum ,and gave it to her.....then I left the room for a few minutes......When I came back in ....she had vacuumed where I had moved the table ....then put the vacuum away....Thank you very Much!!

She did however fix all her own meals and clean up after......which consisted of heating a T.V. dinner in the Microwave, and throwing the container in the trash.!!

I look forward to getting to know you better.

Hello I am new to the group

Hi Everyone,My name is Golanv in English it means Raven. I am a 44year old American Indian married to a wonderful guyand have a sweet daughter who is 14. I recently haddoctors say they are pretty sure I have lupus. I havebeen having problems they decribed as a mixedconnective tissue disorder for a few years. I have hadRaynaud's disease for years. I had a foot surgery thatlanded me with Reflex Sympathetic Dysthrophy (orComplex pain Syndrone) in 1991. I am very flustratedwith the deteriation of my health at such a young age.I'm stuggling to keep up a good front for my familybut failing at it. I get irritable and a bear to livewith at times. Recently I broke down and expressed Ineeded help keeping house so my husband is spendingone day on the weekend cleaning and helping me. Mydaughter bless her heart has always been lazy andhates house work. Me being a clean freak and not ableto do it is driving me nuts lol. I'm a registerednurse on disablity and miss being able to help others.From the post I can see many are going through similarproblems. I appreciate you all letting me join thelist and look forward to getting to know everyone.Thanks =)~Golanv"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Golanv,

Welcome to the group! In '93 I was diagnosed with Mixed Connective Tissue

Disease. In '02 I was diagnosed with SLE. I'm now 22 years old and I'm a

clean freak myself. Even if your daughter is lazy she should help out more

because you're sick and you won't be able to do all the things that you used

to do. My mom was an LPN and she missing helping people too. I hope that

you'll enjoy this group as much as I have.

-.

Hello I am new to the group

> Hi Everyone,

>

> My name is Golanv in English it means Raven. I am a 44

> year old American Indian married to a wonderful guy

> and have a sweet daughter who is 14. I recently had

> doctors say they are pretty sure I have lupus. I have

> been having problems they decribed as a mixed

[Guest guest]

Golanv, what a beautiful name. Welcome to our group.

I hope you will soon find ways to be at peace with not doing things they

way you used to. You definitely need to try. I am also very serious about

house work and everything being in its place. But, there are days when you

wouldn't believe it (like today). I have three boys: almost 4, 7 and almost

10.They help me a lot, but still there are days when the house is turned

upside down. And sometimes you just have to let it be and let others take

care of it, or take care of it later. It seems you have great help with your

hubby and your daughter.

Hope you feel good in our group and that you will find most of the answers

to your questions.

Kind regards,

Mojo

Hello I am new to the group

> Hi Everyone,

>

> My name is Golanv in English it means Raven. I am a 44

> year old American Indian married to a wonderful guy

> and have a sweet daughter who is 14. I recently had

> doctors say they are pretty sure I have lupus. I have

> been having problems they decribed as a mixed

> connective tissue disorder for a few years. I have had

> Raynaud's disease for years. I had a foot surgery that

> landed me with Reflex Sympathetic Dysthrophy (or

> Complex pain Syndrone) in 1991. I am very flustrated

> with the deteriation of my health at such a young age.

> I'm stuggling to keep up a good front for my family

> but failing at it. I get irritable and a bear to live

> with at times. Recently I broke down and expressed I

> needed help keeping house so my husband is spending

> one day on the weekend cleaning and helping me. My

> daughter bless her heart has always been lazy and

> hates house work. Me being a clean freak and not able

> to do it is driving me nuts lol. I'm a registered

> nurse on disablity and miss being able to help others.

> From the post I can see many are going through similar

> problems. I appreciate you all letting me join the

> list and look forward to getting to know everyone.

>

> Thanks =)

> ~Golanv

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

[Guest guest]

Golanv, what a beautiful name. Welcome to our group.

I hope you will soon find ways to be at peace with not doing things they

way you used to. You definitely need to try. I am also very serious about

house work and everything being in its place. But, there are days when you

wouldn't believe it (like today). I have three boys: almost 4, 7 and almost

10.They help me a lot, but still there are days when the house is turned

upside down. And sometimes you just have to let it be and let others take

care of it, or take care of it later. It seems you have great help with your

hubby and your daughter.

Hope you feel good in our group and that you will find most of the answers

to your questions.

Kind regards,

Mojo

Hello I am new to the group

> Hi Everyone,

>

> My name is Golanv in English it means Raven. I am a 44

> year old American Indian married to a wonderful guy

> and have a sweet daughter who is 14. I recently had

> doctors say they are pretty sure I have lupus. I have

> been having problems they decribed as a mixed

> connective tissue disorder for a few years. I have had

> Raynaud's disease for years. I had a foot surgery that

> landed me with Reflex Sympathetic Dysthrophy (or

> Complex pain Syndrone) in 1991. I am very flustrated

> with the deteriation of my health at such a young age.

> I'm stuggling to keep up a good front for my family

> but failing at it. I get irritable and a bear to live

> with at times. Recently I broke down and expressed I

> needed help keeping house so my husband is spending

> one day on the weekend cleaning and helping me. My

> daughter bless her heart has always been lazy and

> hates house work. Me being a clean freak and not able

> to do it is driving me nuts lol. I'm a registered

> nurse on disablity and miss being able to help others.

> From the post I can see many are going through similar

> problems. I appreciate you all letting me join the

> list and look forward to getting to know everyone.

>

> Thanks =)

> ~Golanv

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

[Guest guest]

Golanv, what a beautiful name. Welcome to our group.

I hope you will soon find ways to be at peace with not doing things they

way you used to. You definitely need to try. I am also very serious about

house work and everything being in its place. But, there are days when you

wouldn't believe it (like today). I have three boys: almost 4, 7 and almost

10.They help me a lot, but still there are days when the house is turned

upside down. And sometimes you just have to let it be and let others take

care of it, or take care of it later. It seems you have great help with your

hubby and your daughter.

Hope you feel good in our group and that you will find most of the answers

to your questions.

Kind regards,

Mojo

Hello I am new to the group

> Hi Everyone,

>

> My name is Golanv in English it means Raven. I am a 44

> year old American Indian married to a wonderful guy

> and have a sweet daughter who is 14. I recently had

> doctors say they are pretty sure I have lupus. I have

> been having problems they decribed as a mixed

> connective tissue disorder for a few years. I have had

> Raynaud's disease for years. I had a foot surgery that

> landed me with Reflex Sympathetic Dysthrophy (or

> Complex pain Syndrone) in 1991. I am very flustrated

> with the deteriation of my health at such a young age.

> I'm stuggling to keep up a good front for my family

> but failing at it. I get irritable and a bear to live

> with at times. Recently I broke down and expressed I

> needed help keeping house so my husband is spending

> one day on the weekend cleaning and helping me. My

> daughter bless her heart has always been lazy and

> hates house work. Me being a clean freak and not able

> to do it is driving me nuts lol. I'm a registered

> nurse on disablity and miss being able to help others.

> From the post I can see many are going through similar

> problems. I appreciate you all letting me join the

> list and look forward to getting to know everyone.

>

> Thanks =)

> ~Golanv

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>