Spina Bifida and EDS?

[Guest guest]

I was wondering if anyone was diagnoised with both EDS and Spina Bifida?

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=606408

.... The tenascin-X-deficient patients reported by Schalkwijk et al. (2001)

also had a range of additional clinical findings not typically associated

with EDS, including congenital adrenal hyperplasia, spina bifida occulta,

mitral valve prolapse, stroke, gastrointestinal bleeding, and premature

arteriosclerosis. It was not clear whether these additional disorders were

related to tenascin-X deficiency. ...

http://www2.alasbimnjournal.cl/alasbimn/CDA/sec_a/0,1205,SCID%253D6035%2526P

RT%253D5996%2526LNID%253D10,00.html

Utility of Bone Scintigraphy in the study of Hereditary Disorders of the

Connective Tissues (HDCT) ... Congenital malformations: of the toes or

fingers, cleft palate, spondylolisthesis, transitional vertebra, spina

bifida occulta. ...

http://neuro-www.mgh.harvard.edu/forum/EhlersDanlosSyndF/12.11.983.51AMOrigi

nallyDxwith

.... and Spina Bifida (mild variant) and it's only been the last 5 or 6

years(I'm now 44) that it's been suggested that my bone birth defects might

actually be Ehlers Danlos Syndrome..Type?? ... I've got the Extremely! loose

joints (fun when I was a kid, Painful! & disabling now),extra set of ribs,

missing last 3-4 " of spine (Spina Bifida variant)no supporting bone or

cartiledge in nose, little in ears, early onset severe osteopenia (extreme

bone loss usually only happens LONG after menopause like in the 70's)loss of

over 2 " in height already, extremely painful back with Degenerative Disk

Disease, etc etc.

http://www.edu.rcsed.ac.uk/Case%20Presentations/CP12.htm

.... The aetiology of heritable congenital tibiofemoral subluxation has been

postulated to be multifactorial. The various theories include genetic,

environmental, mechanical, endocrinal, mesenchymal and teratogenic. The

associated abnormalities are congenital talipes equinovarus, congenital

dislocation of the hip, dislocation of the elbow, spina bifida,

hydrocephalus, imperforate anus, facial palsy, cryptorchidism, scoliosis,

torticollis, angiomata, strabismus and absent patella. Ehlers-Danlos

syndrome, Larsen's syndrome, arthrogryposis multiplex congenita may have

coexisting congenital genu recurvatum [3]. It has been found that females,

breech presentation, oligohydramnios, foetal malposition, quadriceps

fibrosis and hypoplastic distal femoral condyle all predispose patients to

this condition ...

http://home.bluecrab.org/~health/coi/coi.html

Chronic Orthostatic Intolerance (COI) ... Some Complicating Conditions

(there may be others): Ehlers-Danlos Syndrome is an inherited condition in

which many tissues in the body (often including blood vessels) are fragile

and overly stretchy. ... Chiari II is seen in spina bifida, a disabling

condition present at birth .  Chiari I often causes no symptoms and may be 

unsuspected until adulthood.  Symptoms may beginning slowly for no apparent

reason, or may come on rapidly following head trauma or injury to the neck. 

The symptoms may mimic, or be exacerbated by, cervical stenosis (narrowing

of the interior of the vertebral column in the region of the neck, which

puts pressure on the spinal cord).

http://www.cafamily.org.uk/Direct/l18.html

Larsen syndrome was first described in 1950 by an orthopaedic surgeon,

ph Larsen. He noticed that a number of his patients shared common

features including multiple dislocations of the major joints (wrists,

elbows, hips and knees), deformities of the feet and an unusual facial

appearance characterised by a flat nasal bridge, wide-spaced eyes, and a

prominent forehead. ... The wide range of features associated with Larsen

syndrome include abnormalities of the growth centres and length of the

bones. This leads to short stature, Scoliosis, short stubby fingers, broad

thumbs, short metacarpals (the bones between the wrist and the base of the

fingers) and foot deformities. Individuals may also have abnormalities of

the cervical spine (the seven bones of the top end of the backbone that form

the neck) leading to cervical kyphosis (forward curving of the spine); the

thoraco-lumbar spine (the twelve bones below the cervical spine together

with the five bones of the lower back) leading to spina-bifida and

scoliosis; cleft lip and/or palate; tracheomalacia (softening of the

cartilages in the trachea); difficulties in swallowing and breathing; and

poorly developed kidneys (see entry, Kidney disease), ureters and urinary

bladder. Mixed hearing loss (see entry, Deafness) has been reported. ...

Larsen syndrome is thought to be caused by a generalised embryonic

connective tissue disorder during gestation. It is categorised as one of a

number of connective tissue disorders including Ehlers-Danlos syndrome,

Brittle Bone Disease/Osteogenesis Imperfecta and Marfan syndrome.

[Guest guest]

> I was wondering if anyone was diagnoised with both EDS and Spina

Bifida?

>

>

When my sister was pregnant they found that her daughter had (I

believe) Spina Bifida and also a cleft palet and her brain didn't

form correctly (I'm sorry, but I can't remember what that is

called). Babies with that condition cannot live outside the womb.

My mom's cousin's daughter had the exact same thing happen with one

of her children. They are part of the EDS side of the family - but I

have no clue as to whether they have EDS. I know my mom's cousin has

lots of back and leg pain and RSL - which I believe are all symptoms

of EDS.

[Guest guest]

AJ - I have spnia bifida occult in my lower back on one vertebrae. When I was

reading thru the signs/symptoms of EDS it stated this as one of the

signs...can't remember which one though, sorry.

Bonnie

Spina Bifida and EDS?

I was wondering if anyone was diagnoised with both EDS and Spina Bifida?

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=606408

... The tenascin-X-deficient patients reported by Schalkwijk et al. (2001)

also had a range of additional clinical findings not typically associated

with EDS, including congenital adrenal hyperplasia, spina bifida occulta,

mitral valve prolapse, stroke, gastrointestinal bleeding, and premature

arteriosclerosis. It was not clear whether these additional disorders were

related to tenascin-X deficiency. ...

http://www2.alasbimnjournal.cl/alasbimn/CDA/sec_a/0,1205,SCID%253D6035%2526P

RT%253D5996%2526LNID%253D10,00.html

Utility of Bone Scintigraphy in the study of Hereditary Disorders of the

Connective Tissues (HDCT) ... Congenital malformations: of the toes or

fingers, cleft palate, spondylolisthesis, transitional vertebra, spina

bifida occulta. ...

http://neuro-www.mgh.harvard.edu/forum/EhlersDanlosSyndF/12.11.983.51AMOrigi

nallyDxwith

... and Spina Bifida (mild variant) and it's only been the last 5 or 6

years(I'm now 44) that it's been suggested that my bone birth defects might

actually be Ehlers Danlos Syndrome..Type?? ... I've got the Extremely! loose

joints (fun when I was a kid, Painful! & disabling now),extra set of ribs,

missing last 3-4 " of spine (Spina Bifida variant)no supporting bone or

cartiledge in nose, little in ears, early onset severe osteopenia (extreme

bone loss usually only happens LONG after menopause like in the 70's)loss of

over 2 " in height already, extremely painful back with Degenerative Disk

Disease, etc etc.

http://www.edu.rcsed.ac.uk/Case%20Presentations/CP12.htm

... The aetiology of heritable congenital tibiofemoral subluxation has been

postulated to be multifactorial. The various theories include genetic,

environmental, mechanical, endocrinal, mesenchymal and teratogenic. The

associated abnormalities are congenital talipes equinovarus, congenital

dislocation of the hip, dislocation of the elbow, spina bifida,

hydrocephalus, imperforate anus, facial palsy, cryptorchidism, scoliosis,

torticollis, angiomata, strabismus and absent patella. Ehlers-Danlos

syndrome, Larsen's syndrome, arthrogryposis multiplex congenita may have

coexisting congenital genu recurvatum [3]. It has been found that females,

breech presentation, oligohydramnios, foetal malposition, quadriceps

fibrosis and hypoplastic distal femoral condyle all predispose patients to

this condition ...

http://home.bluecrab.org/~health/coi/coi.html

Chronic Orthostatic Intolerance (COI) ... Some Complicating Conditions

(there may be others): Ehlers-Danlos Syndrome is an inherited condition in

which many tissues in the body (often including blood vessels) are fragile

and overly stretchy. ... Chiari II is seen in spina bifida, a disabling

condition present at birth . Chiari I often causes no symptoms and may be

unsuspected until adulthood. Symptoms may beginning slowly for no apparent

reason, or may come on rapidly following head trauma or injury to the neck.

The symptoms may mimic, or be exacerbated by, cervical stenosis (narrowing

of the interior of the vertebral column in the region of the neck, which

puts pressure on the spinal cord).

http://www.cafamily.org.uk/Direct/l18.html

Larsen syndrome was first described in 1950 by an orthopaedic surgeon,

ph Larsen. He noticed that a number of his patients shared common

features including multiple dislocations of the major joints (wrists,

elbows, hips and knees), deformities of the feet and an unusual facial

appearance characterised by a flat nasal bridge, wide-spaced eyes, and a

prominent forehead. ... The wide range of features associated with Larsen

syndrome include abnormalities of the growth centres and length of the

bones. This leads to short stature, Scoliosis, short stubby fingers, broad

thumbs, short metacarpals (the bones between the wrist and the base of the

fingers) and foot deformities. Individuals may also have abnormalities of

the cervical spine (the seven bones of the top end of the backbone that form

the neck) leading to cervical kyphosis (forward curving of the spine); the

thoraco-lumbar spine (the twelve bones below the cervical spine together

with the five bones of the lower back) leading to spina-bifida and

scoliosis; cleft lip and/or palate; tracheomalacia (softening of the

cartilages in the trachea); difficulties in swallowing and breathing; and

poorly developed kidneys (see entry, Kidney disease), ureters and urinary

bladder. Mixed hearing loss (see entry, Deafness) has been reported. ...

Larsen syndrome is thought to be caused by a generalised embryonic

connective tissue disorder during gestation. It is categorised as one of a

number of connective tissue disorders including Ehlers-Danlos syndrome,

Brittle Bone Disease/Osteogenesis Imperfecta and Marfan syndrome.

To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

------------------------------------------------------------------------------

[Guest guest]

AJ - I have spnia bifida occult in my lower back on one vertebrae. When I was

reading thru the signs/symptoms of EDS it stated this as one of the

signs...can't remember which one though, sorry.

Bonnie

Spina Bifida and EDS?

I was wondering if anyone was diagnoised with both EDS and Spina Bifida?

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=606408

... The tenascin-X-deficient patients reported by Schalkwijk et al. (2001)

also had a range of additional clinical findings not typically associated

with EDS, including congenital adrenal hyperplasia, spina bifida occulta,

mitral valve prolapse, stroke, gastrointestinal bleeding, and premature

arteriosclerosis. It was not clear whether these additional disorders were

related to tenascin-X deficiency. ...

http://www2.alasbimnjournal.cl/alasbimn/CDA/sec_a/0,1205,SCID%253D6035%2526P

RT%253D5996%2526LNID%253D10,00.html

Utility of Bone Scintigraphy in the study of Hereditary Disorders of the

Connective Tissues (HDCT) ... Congenital malformations: of the toes or

fingers, cleft palate, spondylolisthesis, transitional vertebra, spina

bifida occulta. ...

http://neuro-www.mgh.harvard.edu/forum/EhlersDanlosSyndF/12.11.983.51AMOrigi

nallyDxwith

... and Spina Bifida (mild variant) and it's only been the last 5 or 6

years(I'm now 44) that it's been suggested that my bone birth defects might

actually be Ehlers Danlos Syndrome..Type?? ... I've got the Extremely! loose

joints (fun when I was a kid, Painful! & disabling now),extra set of ribs,

missing last 3-4 " of spine (Spina Bifida variant)no supporting bone or

cartiledge in nose, little in ears, early onset severe osteopenia (extreme

bone loss usually only happens LONG after menopause like in the 70's)loss of

over 2 " in height already, extremely painful back with Degenerative Disk

Disease, etc etc.

http://www.edu.rcsed.ac.uk/Case%20Presentations/CP12.htm

... The aetiology of heritable congenital tibiofemoral subluxation has been

postulated to be multifactorial. The various theories include genetic,

environmental, mechanical, endocrinal, mesenchymal and teratogenic. The

associated abnormalities are congenital talipes equinovarus, congenital

dislocation of the hip, dislocation of the elbow, spina bifida,

hydrocephalus, imperforate anus, facial palsy, cryptorchidism, scoliosis,

torticollis, angiomata, strabismus and absent patella. Ehlers-Danlos

syndrome, Larsen's syndrome, arthrogryposis multiplex congenita may have

coexisting congenital genu recurvatum [3]. It has been found that females,

breech presentation, oligohydramnios, foetal malposition, quadriceps

fibrosis and hypoplastic distal femoral condyle all predispose patients to

this condition ...

http://home.bluecrab.org/~health/coi/coi.html

Chronic Orthostatic Intolerance (COI) ... Some Complicating Conditions

(there may be others): Ehlers-Danlos Syndrome is an inherited condition in

which many tissues in the body (often including blood vessels) are fragile

and overly stretchy. ... Chiari II is seen in spina bifida, a disabling

condition present at birth . Chiari I often causes no symptoms and may be

unsuspected until adulthood. Symptoms may beginning slowly for no apparent

reason, or may come on rapidly following head trauma or injury to the neck.

The symptoms may mimic, or be exacerbated by, cervical stenosis (narrowing

of the interior of the vertebral column in the region of the neck, which

puts pressure on the spinal cord).

http://www.cafamily.org.uk/Direct/l18.html

Larsen syndrome was first described in 1950 by an orthopaedic surgeon,

ph Larsen. He noticed that a number of his patients shared common

features including multiple dislocations of the major joints (wrists,

elbows, hips and knees), deformities of the feet and an unusual facial

appearance characterised by a flat nasal bridge, wide-spaced eyes, and a

prominent forehead. ... The wide range of features associated with Larsen

syndrome include abnormalities of the growth centres and length of the

bones. This leads to short stature, Scoliosis, short stubby fingers, broad

thumbs, short metacarpals (the bones between the wrist and the base of the

fingers) and foot deformities. Individuals may also have abnormalities of

the cervical spine (the seven bones of the top end of the backbone that form

the neck) leading to cervical kyphosis (forward curving of the spine); the

thoraco-lumbar spine (the twelve bones below the cervical spine together

with the five bones of the lower back) leading to spina-bifida and

scoliosis; cleft lip and/or palate; tracheomalacia (softening of the

cartilages in the trachea); difficulties in swallowing and breathing; and

poorly developed kidneys (see entry, Kidney disease), ureters and urinary

bladder. Mixed hearing loss (see entry, Deafness) has been reported. ...

Larsen syndrome is thought to be caused by a generalised embryonic

connective tissue disorder during gestation. It is categorised as one of a

number of connective tissue disorders including Ehlers-Danlos syndrome,

Brittle Bone Disease/Osteogenesis Imperfecta and Marfan syndrome.

To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

------------------------------------------------------------------------------

[Guest guest]

AJ - I have spnia bifida occult in my lower back on one vertebrae. When I was

reading thru the signs/symptoms of EDS it stated this as one of the

signs...can't remember which one though, sorry.

Bonnie

Spina Bifida and EDS?

I was wondering if anyone was diagnoised with both EDS and Spina Bifida?

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=606408

... The tenascin-X-deficient patients reported by Schalkwijk et al. (2001)

also had a range of additional clinical findings not typically associated

with EDS, including congenital adrenal hyperplasia, spina bifida occulta,

mitral valve prolapse, stroke, gastrointestinal bleeding, and premature

arteriosclerosis. It was not clear whether these additional disorders were

related to tenascin-X deficiency. ...

http://www2.alasbimnjournal.cl/alasbimn/CDA/sec_a/0,1205,SCID%253D6035%2526P

RT%253D5996%2526LNID%253D10,00.html

Utility of Bone Scintigraphy in the study of Hereditary Disorders of the

Connective Tissues (HDCT) ... Congenital malformations: of the toes or

fingers, cleft palate, spondylolisthesis, transitional vertebra, spina

bifida occulta. ...

http://neuro-www.mgh.harvard.edu/forum/EhlersDanlosSyndF/12.11.983.51AMOrigi

nallyDxwith

... and Spina Bifida (mild variant) and it's only been the last 5 or 6

years(I'm now 44) that it's been suggested that my bone birth defects might

actually be Ehlers Danlos Syndrome..Type?? ... I've got the Extremely! loose

joints (fun when I was a kid, Painful! & disabling now),extra set of ribs,

missing last 3-4 " of spine (Spina Bifida variant)no supporting bone or

cartiledge in nose, little in ears, early onset severe osteopenia (extreme

bone loss usually only happens LONG after menopause like in the 70's)loss of

over 2 " in height already, extremely painful back with Degenerative Disk

Disease, etc etc.

http://www.edu.rcsed.ac.uk/Case%20Presentations/CP12.htm

... The aetiology of heritable congenital tibiofemoral subluxation has been

postulated to be multifactorial. The various theories include genetic,

environmental, mechanical, endocrinal, mesenchymal and teratogenic. The

associated abnormalities are congenital talipes equinovarus, congenital

dislocation of the hip, dislocation of the elbow, spina bifida,

hydrocephalus, imperforate anus, facial palsy, cryptorchidism, scoliosis,

torticollis, angiomata, strabismus and absent patella. Ehlers-Danlos

syndrome, Larsen's syndrome, arthrogryposis multiplex congenita may have

coexisting congenital genu recurvatum [3]. It has been found that females,

breech presentation, oligohydramnios, foetal malposition, quadriceps

fibrosis and hypoplastic distal femoral condyle all predispose patients to

this condition ...

http://home.bluecrab.org/~health/coi/coi.html

Chronic Orthostatic Intolerance (COI) ... Some Complicating Conditions

(there may be others): Ehlers-Danlos Syndrome is an inherited condition in

which many tissues in the body (often including blood vessels) are fragile

and overly stretchy. ... Chiari II is seen in spina bifida, a disabling

condition present at birth . Chiari I often causes no symptoms and may be

unsuspected until adulthood. Symptoms may beginning slowly for no apparent

reason, or may come on rapidly following head trauma or injury to the neck.

The symptoms may mimic, or be exacerbated by, cervical stenosis (narrowing

of the interior of the vertebral column in the region of the neck, which

puts pressure on the spinal cord).

http://www.cafamily.org.uk/Direct/l18.html

Larsen syndrome was first described in 1950 by an orthopaedic surgeon,

ph Larsen. He noticed that a number of his patients shared common

features including multiple dislocations of the major joints (wrists,

elbows, hips and knees), deformities of the feet and an unusual facial

appearance characterised by a flat nasal bridge, wide-spaced eyes, and a

prominent forehead. ... The wide range of features associated with Larsen

syndrome include abnormalities of the growth centres and length of the

bones. This leads to short stature, Scoliosis, short stubby fingers, broad

thumbs, short metacarpals (the bones between the wrist and the base of the

fingers) and foot deformities. Individuals may also have abnormalities of

the cervical spine (the seven bones of the top end of the backbone that form

the neck) leading to cervical kyphosis (forward curving of the spine); the

thoraco-lumbar spine (the twelve bones below the cervical spine together

with the five bones of the lower back) leading to spina-bifida and

scoliosis; cleft lip and/or palate; tracheomalacia (softening of the

cartilages in the trachea); difficulties in swallowing and breathing; and

poorly developed kidneys (see entry, Kidney disease), ureters and urinary

bladder. Mixed hearing loss (see entry, Deafness) has been reported. ...

Larsen syndrome is thought to be caused by a generalised embryonic

connective tissue disorder during gestation. It is categorised as one of a

number of connective tissue disorders including Ehlers-Danlos syndrome,

Brittle Bone Disease/Osteogenesis Imperfecta and Marfan syndrome.

To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

------------------------------------------------------------------------------

[Guest guest]

;

Thank you for your reply. It seems that many of the signs (of spina bifida

occulta) are signs of EDS as well.

.... 17% of people whose spines have been examined have spina bifida occulta.

Even though these people have a very slightly increased chance of a slipped

disc... Most people will not even be aware that they have spina bifida

occulta unless it shows up on an X-ray which they have for some unrelated

reason. It is usually just a small part of one vertebra low in the back

which is missing. See the diagrams below that show cross sections of one

vertebra... or some people (about 2% of those who have spina bifida occulta)

there can be other problems. These problems arise because there are other

things involved around the area where the vertebra has not formed properly.

Because the spine and the nerve roots at the site of the lesion are

affected, in theory any problem from the waist down can be due to OSD.

Depending on the amount of neural involvement, symptoms can be absent,

minimal, or severe. Symptoms can include:

Weakness or sensory loss in the legs, feet

Leg length difference

Foot deformity

Problems with gait (walking)

Bowel or bladder infection or incontinence

Constipation

Scoliosis (sideways curvature of the spine)

Back pain

Continence problems

Continence problems may present as

Bedwetting which persists well into childhood

ack of awareness of need to pass urine until it is urgent

Inability to hold on, even for a few minutes

Dribbling of urine between visits to the toilet

Recurrent urinary tract infections

Constipation

Some of the symptoms of a tethered spinal cord are:

Increased weakness or loss of muscle function

Increased muscle tone

Deterioration in gait

Worsening of bladder function

Progressing scoliosis

Back pain

.... the risk is also increased if the close family history includes OSD. The

risk of a child being born with a neural tube defect (anencephaly, spina

bifida) is the same irrespective of whether the close family history

includes anencephaly, spina bifida or occult spinal dysraphism. For a

first-degree relative i.e. a parent or sibling the risk is about 1 in 25...

http://www.spinabifida.org/occulta.htm

" ... Hips that are socketed at birth can and do pop out, knees can and do

bend in wrong directions (brace protection of knees is so very important).

Skin lacking sensation breaks down. We have seen deep thigh ulcers from a

steering wheel pressing the thigh (seat was up too high). Without sensation,

such a simple thing becomes a long hospitalization outcome.... Spinal

deformity... About 25% of persons with spina bifida have sensitivity to

latex. It can be lethal in even tiny exposures. Toys with latex are to be

avoided (Koosh balls, balloons etc.). The sensitivity may weakly cross react

with bananas or macadamia nuts. ... Incontinence.... kidney function.

Regular urologic exam is absolutely vital. We still see, in our orthopedic

setting, persons seeking some foot fix who have no idea that they have

almost no kidney function left.... "

According to this site; Anencephaly = total absence of the brain.

Encephalocele = partial deficient development of the brain with an external

cyst.

http://www.pediatric-orthopedics.com/Topics/Spina_Bifida/spina_bifida.html

On 4/4/04 11:48 PM, " ceda " ceda > wrote:

>

> Subject: Re: Spina Bifida and EDS?

>

>

>> I was wondering if anyone was diagnoised with both EDS and Spina

> Bifida?

>>

>>

> When my sister was pregnant they found that her daughter had (I

> believe) Spina Bifida and also a cleft palet and her brain didn't

> form correctly (I'm sorry, but I can't remember what that is

> called). Babies with that condition cannot live outside the womb.

>

> My mom's cousin's daughter had the exact same thing happen with one

> of her children. They are part of the EDS side of the family - but I

> have no clue as to whether they have EDS. I know my mom's cousin has

> lots of back and leg pain and RSL - which I believe are all symptoms

> of EDS.

>

>

>

[Guest guest]

Thanks Bonnie;

I am still reading and learning about it myself. I guess that if it is

there (for me) that there isn't much that can be done about it. It would

explain a lot for me concerning health issues that I have that are not part

of the EDS symptoms.

On 4/4/04 11:48 PM, " ceda " ceda > wrote:

>

> Subject: Re: Spina Bifida and EDS?

>

> AJ - I have spnia bifida occult in my lower back on one vertebrae. When I was

> reading thru the signs/symptoms of EDS it stated this as one of the

> signs...can't remember which one though, sorry.

> Bonnie

[Guest guest]

Wow - what a bunch of info! Thanks - I'll be printing it out and

looking into this.

My sister's and cousin's babies were both anencephalic.

> ;

>

> Thank you for your reply. It seems that many of the signs (of spina

bifida

> occulta) are signs of EDS as well.

>

>

[Guest guest]

Wow - what a bunch of info! Thanks - I'll be printing it out and

looking into this.

My sister's and cousin's babies were both anencephalic.

> ;

>

> Thank you for your reply. It seems that many of the signs (of spina

bifida

> occulta) are signs of EDS as well.

>

>

[Guest guest]

Wow - what a bunch of info! Thanks - I'll be printing it out and

looking into this.

My sister's and cousin's babies were both anencephalic.

> ;

>

> Thank you for your reply. It seems that many of the signs (of spina

bifida

> occulta) are signs of EDS as well.

>

>

[Guest guest]

My grandma had a spinal bifida baby. She died 3 hours after her birth.

[Guest guest]

My grandma had a spinal bifida baby. She died 3 hours after her birth.

[Guest guest]

Glad you were able to use the info. This is an interesting site. At the

bottom it talks about its connection to chairi malformation

http://www.pediatric-orthopedics.com/Topics/Spina_Bifida/spina_bifida.html

On 4/5/04 5:23 PM, " ceda " ceda > wrote:

>

> Subject: Re: Spina Bifida and EDS?

>

> Wow - what a bunch of info! Thanks - I'll be printing it out and

> looking into this.

>

> My sister's and cousin's babies were both anencephalic.