Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Sue, I don't have any advice, but maybe Schoenberg does? Good luck! Love Lana HI Gang It's me again and it looks like we are moving (drum roll please.........................) to the Boston area. Either in the city or suburbs. MY husbands job came down to the Seattle job which we would have loved living but it was a contract job. The other job is for a huge company where he would as part of a group of Top Gun computer consulters and would fly around the world where ever needed to solve computer systems problems. I think he should feel honored because his self esteem has been way down the last few years and I think this is a compliment. Anyway, since I will be in and around Boston......I am dealing with EDS< Fibro and the biggie a non-union of a fused subtalar joint with possible osteomyelitis (I Had mycobacterium fortuitum infection there 14 years ago and they think it may have returned.) 0h, I have been to three university hospitals and got 3 different stories on my ankle. I figure since I'm headed for Boston has anyone had any experiences with any of the Boston hospital or orthos (especially foot and ankle specialists) Please please pleasae share your stories with me. I am so afraid I may lose my leg and the thing that bothers me is the pain keeps increasing and no one is taking this seriously except the original infectious disease doctor who is now out of the picture. What ever this ends up to be I know it's going to be a long road so I want to be at a comfortable place with nice people, Thanks for any leeds because I am in such pain that even on morphine and 10 mg strength percocet my leg throbs up to my groin. Thanks in advance for any advice anyone can give me. Sue and her little doggy Jake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hi Sue, I can't comment on docs at all, being in Norway... But I just wanted to mention to you that I saw a programme on TV here a long time ago where they used hyperbaric chamber treatments for people with different problems. One was serious " crushing " fractures which would not heal. I guess such fractures can be compared to what is going on in a joint which has been operated on to fuse it. If you do a search on line, you will end up with lots of results. I once wrote one to ask about this, and they said that it has been used for this kind of thing and that it may be something to look into re. non fusion of a joint. So maybe you could try this and see if anybody knows about something and also see if you can find one in the Boston area? Anyway, just wanted to mention it to you, in case it may be something for you... After all, it is a really non invasive treatment, and if there could be a chamber near you, maybe... At least it is something that may be an idea to look into and ask about... BTW, which Sue are you? Sue K.? The e-mail address is not familar... And I am not even sure about Jake's name, my memory is so bad... Lots of Yorkie kisses to you and Jake from Peanut, my little 1 1/2 yrs old Yorkie friend... She is mom's girl for sure!!!! Right now she is sleeping on my lap, under my blanket, and I am sitting her typing in a really ackward position, but what don't you do for your little pooch? hugs, Aase Marit >It's me again and it looks like we are moving (drum roll >please.........................) to the Boston area. Either in the >city or suburbs. MY husbands >job came down to the Seattle job which we would have loved living but it was a >contract job. The other job is for a huge company where he would as part of a >group of Top Gun computer consulters and would fly around the world where ever >needed to solve computer systems problems. I think he should feel honored >because his self esteem has been way down the last few years and I >think this is >a compliment. Anyway, since I will be in and around Boston......I am dealing >with EDS< Fibro and the biggie a non-union of a fused subtalar joint with >possible osteomyelitis (I Had mycobacterium fortuitum infection >there 14 years ago >and they think it may have returned.) > > >0h, I have been to three university hospitals and got 3 different stories on >my ankle. I figure since I'm headed for Boston has anyone had any experiences >with any of the Boston hospital or orthos (especially foot and ankle >specialists) Please please pleasae share your stories with me. I am >so afraid I may >lose my leg and the thing that bothers me is the pain keeps >increasing and no one >is taking this seriously except the original infectious disease doctor who is >now out of the picture. What ever this ends up to be I know it's going to be >a long road so I want to be at a comfortable place with nice people, Thanks >for any leeds because I am in such pain that even on morphine and 10 >mg strength >percocet my leg throbs up to my groin. > >Thanks in advance for any advice anyone can give me. > > >Sue and her little doggy Jake > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hi, Probably for the best. Even though Seattle is a fabulous city, and the surrounding area is absolutly one of the most beautiful places I've ever been (and I've been all over this world) it's so damn wet here you'd probably grow webs between your toes. Dark, dreary, cold, wet, wet, wet. Boston sounds better to me! Now I'm gonna hear it from the Uggen - family! I just know it! Cause it's sunny today, and suppose to be around 70. That sounds great, but the pollen here is so high, you can't breath. With the wettness and the pollen, I'm about to embark on a business opportunity. People around here surely will be wearing full body bubbles to protect them from the air outside. It's a sure thing! Anyway, unless you like sloshing around in puddles, wet hair, ripping moss out of your lawn every spring, spraying your house with bleach weekly for mold, dark dreary days, you'll be happier in Boston. Oh, and your dog won't need a bath every day in Boston! Can I come along? Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hi , You gave me a really good laugh with your description of Seattle. It sure sounds like Bergen in Norway, it rains all the time there. The city is surrounded by " the 7 sisters " , 7 mountains that makes it rain always... It rains a lot here too, but not as bad as there. I hate rain!!! Luckily Peanut hates rain too, so I don't have to be out more than we have to for quick pee-trips on such days. Somebody should invent a doggie umbrella that you could fasten to the dog's back, Pea sure would have loved that!!! There is a doggie umbrella, and if I walked instead of using a chair, I would have gotten one for her. It is connected to the leash... I just had to ask you about the full body bubbles you mentioned... What is that??? Were you joking??? Aase Marit > People around here surely will be wearing full body bubbles to >protect them from the air outside. It's a sure thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 > Now I'm gonna hear it from the Uggen - family! Not at all, I agree -- the whether here is NOT EDS friendly. Coming from Alaska, the rain is better for me than the snow, but I agree that the achy joints and gloomy weather can be difficult. I just love the culture, theater, and other things about living in Seattle that it makes up for the rain. -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 haha Yea, I was joking about body bubbles. My family has been catching every single bug in the air lately, I've been thinking we need to live inside a sterile bubble to stay healthy. I blame a lot of it on our horrible climate here in Seattle. We have a lot of festivals here in Seattle during the summer. You know - music, arts and crafts, and so on. The funniest tee shirt I've seen here for a festival is for " The Seattle Rain Festival 1 January through 31 December " Yea, and that's a joke. There really isn't a rain festival. I shouldn't be complaining today, cause it's sunny and fairly warm today. is even laying out in the sun in her bikini. I should go out and get some sun on my face at least. But, the big joke here is that you don't tan, you rust. haha Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 I should go out and get some sun on my face at least. > But, the big joke here is that you don't tan, you rust. haha Ha ha, - I liked that! Only in MY case, I'd rust first, and then PEEL! LOL! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hey, Teri, I am so happy for you. Good luck on returning to work, and have a great vacation. Try not to get too much sun, use gallons of sunscreen, 'k? Hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hey, Teri, I am so happy for you. Good luck on returning to work, and have a great vacation. Try not to get too much sun, use gallons of sunscreen, 'k? Hugs, MM Quote Link to comment Share on other sites More sharing options...
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