keep fighting

[Guest guest]

Poor kid! Keep on fighting! Love, Cheryl in CA

From:

lonewolflinda

Sent: Wednesday, May 12, 2004 5:46

PM

To: LUPIES

Subject: Re: Dear

C/ everything will be okay....eventually....

Hi Cheryl,

Thank you for your concern.......but I got it handled.Everything

is going to be okay......as far as my medications is concerned.

But wouldn't you know it......My oldest son, told me to have new

tires put on my car because the ones that were on it were defective.....and he

would pay for the tires. ( I must have done sumthin' right with those

kids of mine).

Well I took it in today and got new tires.....but when I got back

in the car to come home........ " THE BLANKETY BLANK " A.C. went

out!.......I just can't catch a break.....so Now I have to let my other son

know that the A.C. is out and see what he wants me to do.....if he thinks he

can fix it or not . I had a Mechanic check it out hoping it was just a fuse or

something simple.....but it will be costly.....unless thinks he can fix

it himself .....at least the mechanic gave me a list of things it could be, so

he will know where to start.

----- Original

From: lyle-cheryl

To: LUPIES

Sent: Wednesday, May 12,

2004 6:03 PM

Subject: Dear

C

Oh ,

I'm worried about you. Any

idiot knows you have to taper off that stuff slowly. Please

let us know what happens. Medical

care is getting worse and worse. We

should all be worried about that. Love,

From:

lonewolflinda

Sent: Tuesday, May 11, 2004 6:27

PM

To: LUPIES

Subject: NOW WHAT DO I

DO?

Now what

do I do?

I'm at my

wit's end with my doctors......My Primary care Doc. doesn't want to prescribe

prednisone for me anymore.....he said that he only agreed to treat me for Lupus

till I got another Rheumatologist.....and the Rheumatologist is not

taking new patients untill June.....You absolutely cannot get to talk to anyone

at his office .....it is all `Voice Mail'......and tells you that your Doctor

has to send your information, and why you need a Rheumatologist.....then when

the Doctor reviews your information he will get in touch with you for an

appt...........We did all that last month.....and When I called Dr. Ohman's

office for refills for Prednisone.....he accused me of self medicating, because

I want to taper off the prednisone slowly, and he is not comfortable with

giving me enough prednisone to taper.....he wants me to drop 10mg. at once!

His

nurse told me to have my pharmacy fax my prednisone records to his

office....then to get on the phone with The Rheumy....Dr. Kier....and be

`ADAMANT' that he makes an appt. immediatly to see me!

How in

the Hell are you supposed to be Adamant with a Voice Mail system....no one will

call me back, and he isn't taking new patients untill June anyway. I'm supposed

to call my Primary Doc. tomorrow and let them know what I was able to do `Being

`Adamant with the Voice Mail System of Dr.Kier'

All day today I

have been making the rounds of emotions from anger to depression to being

downright scared that I am Going to find myself totally without a doctor to

treat me......and I am going to crash big time!

LINDA C.

" The

LUPIES Store " Come check out our store...

http://www.cafepress.com/thelupies

" The LUPIES Web Page "

http://www.itzarion.com/lupusgroup.html

" The LUPIES online photo albums! "

Check out what your fellow Lupies look like...

http://www.picturetrail.com/lupies

" The

LUPIES Store " Come check out our store...

http://www.cafepress.com/thelupies

" The LUPIES Web Page "

http://www.itzarion.com/lupusgroup.html

" The LUPIES online photo albums! "

Check out what your fellow Lupies look like...

http://www.picturetrail.com/lupies

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