for Cheryl J

[Guest guest]

From:

lyle-cheryl

Sent: Thursday, May 06, 2004 2:32

PM

To: LUPIES

Subject: for Cheryl J

All the symptoms you

described are just lupus symptoms. Yup, that’s it! Do you get

fevers? When you feel especially tired and achy, take your temperature.

You might have a fever and that is just lupus too. There is

absolutely no reason to believe you will get worse. There is every reason

to believe you might get it in better control with meds and even have a

remission for awhile, or maybe even years. A long time ago lupus was a

death sentence because Dr’s at the time couldn’t recognize it until

the person was near death. Most of us just live a long life with pain. We

have to accept it. It takes awhile to do that. We have to adjust to

it. When you are tired you must lie down. Don’t feel guilty

about resting; it is Dr’s orders to do so. I used to feel so guilty

about it. I learned to enjoy it now. It sounds like you are very

active, that’s real good. Some of us have other things wrong with

us that have nothing to do with lupus so don’t worry you will get worse.

OK?

From: Cheryl

Sent: Thursday, May 06, 2004 5:53

AM

To: LUPIES

Subject: Thanks

The only problems that I have encountered

trying to work and deal with

my symptoms are the fatigue, the aching and

painful joints, and the

foggy brain thing. There are days when

I feel like I have a suit of

armor on, weighing me down. Those days

I usually go home and go

straight to bed. I also have pain in my

hands, wrists, feet and ankles,

sometimes in my hips and back, but at least

it is not unbearable. I am

able to tolerate it okay. Does anyone

know if this stuff is

progressive? Do I look for these things

to get worse? Thank Heaven I

don't have the lung or heart problems (as

some of you do), but does the

pain get worse? Do I look for signs of

lung or heart problems? Any

info is appreciated. I bought a book,

but it isn't quite as detailed as

I would like it to be.

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