Re: Having a rough time with respiratory infection/Jo

[Guest guest]

Dear Jo,

This sounds so terribly horrible, scary and painful! You may be getting a

secondary fungal infection from the antibiotics, this will of course require

a different medication in addition to the antibiotic. Gosh if you are worse,

please go back to the hospital! Good luck and prayers for you!

Sincerely, S.

Having a rough time with respiratory infection

> Hi everyone, I'm sorry but I need to whinge about germs and bacteria

> and all such nasties that are taking up residence in my upper

> respiratory tract right now. I've been knocked flat by a real

> humdinger of an infection, which hit me incredibly fast and hard. I

> woke up on Wednesday morning feeling a little grotty and like I was

> getting a cold, but nothing too serious. By lunchtime however I

> developed a hacking cough that caused me to dislocate a rib and it

> was a rapid descent from there. Within 20 minutes I was being rushed

> to the emergency doctor, unable to breath and in so much pain I

> honestly began wondering whether my rib had triggered a pneumothorax.

>

> The doctor was very concerned about my breathing which by now was

> getting laboured, but still just sent me home with a script for

> antibiotics. Stupid really as I should have been sent to the ER for

> oxygen therapy and IV meds but was too weak and tired to argue. By

> the time I got home my breathing had become almost impossible and I

> was spiking a temp of 104. I literally curled up in a ball on the

> sofa and on more than one occasion during the next scary few hours I

> actually stopped breathing for minutes at a time. I was terrified and

> should have been in hospital I know, but I was felt so ill I couldn't

> even bear to move. My poor long suffering parents were besides

> themslves with worry. Thankfully as the afternoon progressed the meds

> kicked in and I was able to use a steam therapy machine which helped

> ease my breathing a little.

>

> I've been taking the antibiotics religiously since, but thanks to the

> infection and dislocations from coughing, I've now developed

> pleurisy. Rather worryingly too, my throat has become infected since

> starting the meds, leaving my tonsils green and covered in horrible

> ulcerated lumps. I'm now concerned that I may be developing a

> secondary strep throat infection that isn't responding to the

> antibiotics. I haven't eaten in two days and even drinking is

> becoming difficult. My temp is still spiking highs of around 102, my

> head feels like there a jack hammer in there and I can't stand up

> without the room become a roller coaster. And of course I hurt all

> over because every time I cough or sneeze I sublux or dislocate

> something, usually a combination of my shoulder, ribs, neck or jaw.

>

> Something else that is freaking me out though, every time I have a

> coughing fit my heart rate goes ballistic, staying tachycardic for

> lomg periods and throwing ectopic beats all over the place too.

>

> I'm sorry for the whine, but I really do feel rotten and very scared

> right now as last time I feel asleep when I woke up I was suffering

> syncope and my finger nails were blue from reduced pulse/ox. Grrr, I

> hate germs!! Hope everyone is doing and thank you for allow me to be

> pathetic again!

>

> Love and hugs.....Jo

> xxx

>

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

[Guest guest]

* I'm sorry for the whine, but I really do feel rotten and very scared

> right now as last time I feel asleep when I woke up I was suffering

> syncope and my finger nails were blue from reduced pulse/ox. Grrr, I

> hate germs!! Hope everyone is doing and thank you for allow me to be

> pathetic again!

Jo, don't EVER apologize for whining! That's why we're here! But I'm very

worried about you. Do you think you should to to the hospital? What about

calling your primary doctor??? I'm afraid you may stop breathing during the

night or something - God, Jo, this sounds horrible! At least, please call

your doctor, or A doctor, to see if you should be in the hospital! Would

you do that for me? Maybe I'm over-reacting, and if so, I'm sure other

members on the list will say so, and I'll agree with the consensus, but just

know you will be in my thoughts and prayers! Please try to let us know how

you are doing.

Love Lana

[Guest guest]

> Lana,

> you are NOT overreacting I have been asking Jo to go to the

hospital for IV med's and fluids (as she can barely swallow either

and for 02 therapy and to have her breathing monitored (she was

having spontanous bleeds for the last few months and this coughing

etc cannot be helping and hse is not breathing properly.

OK, Jo, the CONSENSUS here is, that you get your little behind to the

hospital ASAP!!! PLEASE? How can we do without worrying for you, my

friend? Do it for us, so that we get off your back, if nothing else!

We won't stop until you do! Because we love you - OK?!?

Love Lana

[Guest guest]

> Lana,

> you are NOT overreacting I have been asking Jo to go to the

hospital for IV med's and fluids (as she can barely swallow either

and for 02 therapy and to have her breathing monitored (she was

having spontanous bleeds for the last few months and this coughing

etc cannot be helping and hse is not breathing properly.

OK, Jo, the CONSENSUS here is, that you get your little behind to the

hospital ASAP!!! PLEASE? How can we do without worrying for you, my

friend? Do it for us, so that we get off your back, if nothing else!

We won't stop until you do! Because we love you - OK?!?

Love Lana