Re: Pots/Autonomic Dysfunction/Anesthesia

[Guest guest]

Hi Sandy,

I have to ask - why do you feel that you are being pushed into this test?

A colonoscopy without sedation in someone with EDS is a very risk-ridden

thing - if you were to move suddenly while the scope was in place, your

fragile intestinal tissue could tear and perforate.

My advice to you is that if you feel that you are being pushed into the

test, re-evaluate the need for it at all. I assume that you are having

issues that the doctor feels requires this test, so it may be a case where

the good outweigh the bad.

Plus, if there are concerns with anaesthetics (It's my experience that this

test is not performed with a general anaesthetic, but rather with heavy

sedation), you have the right to request an anaesthetic consultation first -

in the hands of a anaesthetist, you will find hopefully, someone who will

listen and understand to your concerns.

Barring that, have your doctor contact Dr. Grubb in Toledo, Ohio and ask for

his opinion, he is a leader in the U.S. for POTS.

http://www.mco.edu/physicianapp/physingle.jsp?ID=75

Jill

[Guest guest]

If I'm butting in here, just ignore this..but what about the newest thing

where you swallow the little camera???

Love Lana

Re: Pots/Autonomic Dysfunction/Anesthesia

Hi Sandy,

I have to ask - why do you feel that you are being pushed into this test?

A colonoscopy without sedation in someone with EDS is a very risk-ridden

thing - if you were to move suddenly while the scope was in place, your

fragile intestinal tissue could tear and perforate.

My advice to you is that if you feel that you are being pushed into the

test, re-evaluate the need for it at all. I assume that you are having

issues that the doctor feels requires this test, so it may be a case where

the good outweigh the bad.

Plus, if there are concerns with anaesthetics (It's my experience that this

test is not performed with a general anaesthetic, but rather with heavy

sedation), you have the right to request an anaesthetic consultation first -

in the hands of a anaesthetist, you will find hopefully, someone who will

listen and understand to your concerns.

Barring that, have your doctor contact Dr. Grubb in Toledo, Ohio and ask for

his opinion, he is a leader in the U.S. for POTS.

http://www.mco.edu/physicianapp/physingle.jsp?ID=75

Jill

To learn more about EDS, visit our website: http://www.ceda.ca

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