an idea &one last comment Re: SSD Applications

[Guest guest]

I'm sorry.. everytime I read someone else's comments, I think that they are

so good that I have to say something !! Robin is right that it is document

after document and you do have to really learn to play this game they are

playing

like answering the reading question with an explanation.

I organized all my of papers chronilogical and then by docs and specialist.

Before they read annything though from the doctors, I prefaced everything with

a letter(call it a foreward)from me followed by several journal articles,

writtenn by doctors,, not laypeople.. describing EDS, the problems it cause

through out the body and the pain that it causes, that it 's debilitating,

etc... I

feel like that was really important to set the tone.

Maybe it would helpp those just getting started to have a list of research

that we think could be helpful so those who want to use them , they would be

available.

Just a thought.